Profiles

Monica Cuskelly

UTAS Home Professor Monica Cuskelly

Monica Cuskelly

Professor

Room A226c , Building A

61 3 6324 3461 (phone)

Monica.Cuskelly@utas.edu.au

Monica Cuskelly is a Professor in the School of Education. She originally trained as a psychologist and has experience in both hospital and educational settings.  Her work as a psychologist in schools stimulated her interest in the difficulties some children experienced in learning.  She worked as a psychologist the first early intervention units in the Queensland Department of Education, and it was this experience that motivated her to undertake further study in the area of intellectual disability.  This interest has underpinned much of her subsequent research.

Biography

Monica’s first academic appointment was a staff member of the Fred and Eleanor Schonell Special Education Centre at The University of Queensland.  She became a member of the team investigating the development of children with Down syndrome, a project that became a longitudinal study of more than 40 years. Monica was Director of this program of research for 12 years, prior to her leaving The University of Queensland. After the closure of the Schonell Centre, Monica joined the Faculty of Education at The University of Queensland.  During her time at The University of Queensland, she took on the role of Interim Director of the Centre of Excellence for Behaviour Support, a joint initiative between the Queensland Department of Communities and Disability Services and The University of Queensland.  This Centre was established in response to the enquiry by Justice W.J. Carter into developing a service response for adults with intellectual disability who exhibited severely challenging behaviour.  She joined the University of Tasmania in 2016 as Associate Dean Research of the Faculty of Education, later, Associate Head Research in the School of Education.

Career summary

Qualifications

  • PhD (1993), 'Psychological adjustment of the siblings of children with Down syndrome', University of Queensland, Australia
  • MAppPsych (1988), 'The perception of behaviour disorders in Down syndrome children and their siblings', University of Queensland, Australia
  • GradDipEd (1986), Armidale CAE, Australia
  • MEdStud (1982), University of Queensland, Australia
  • BA (Hons) (1978), 'The method of loci and imagery skills', University of Queensland, Australia

Memberships

Professional practice

  • Registered Psychologist (#PSY0001366604)
  • International Association for the Scientific Study of Intellectual and Developmental Disability
  • Vice Chair, Down Syndrome Special Interest Group
  • Australasian Society for Intellectual Disability
  • Australian Psychological Society

Teaching

Human development; Intellectual disability; Developmental disability; Research methods

Research Appointments

2021 -  Research Director, Applied Research Centre for Disability and Wellbeing

2019-2021 Australian Research Council Panel of Experts

2021-2024 Australian Research Council Medical Research Advisory Group

Research Invitations

  • Cuskelly, M. (2018). Keynote address: Constructing futures: aspirations and expectations for the lives of adults with intellectual disability. Australian Association for Intellectual Disability, Gold Coast, Queensland.
  • Cuskelly, M. (2015).Invited address. Constructing futures: Roles of family. World Down Syndrome Day Conference. United Nations, New York.
  • Cuskelly, M. (2014).Keynote address. Motivation in children with intellectual disability. 2014 Dalian International Summit Forum on Personality Development and Education of Children, Dalian, China

View more on Professor Monica Cuskelly in WARP

Expertise

Monica conducts research using a variety of approaches.  She has a particular interest in observational methods.  Collecting data that authentically represents the experiences of individuals who may have difficult expressing themselves is a challenge for the field of research in intellectual disability; however, it is essential that efforts to improve in this area continue.  Several current projects being conducted with others address this problem.  Surveys are employed in a great deal of social science research and Monica has an interest in creating and refining instruments to improve their utility in the Australian context.

Areas of research expertise:

  • Intellectual and Developmental Disabilities
  • Down syndrome
  • Family functioning when there is a member with disability
  • Mastery motivation
  • Self-regulation

Current projects

The Applied Research Centre in Disability and Wellbeing is a new endeavour and is focussed on improving the lives of those with intellectual and development disabilities. A range of projects will be developed under the umbrella of the Centre

ARC Discovery: Sibling influences on the development of children with autism spectrum disorder.

This project aims to learn whether and how typically developing (TD) siblings affect development of children with autism spectrum disorder (ASD). ASD involves difficulties with language, executive functions and social understanding.  Little is known about how having siblings impacts on these cognitive functions in children with ASD. This study explores the mechanisms of sibling impact in families with and without a child with ASD.

ARC Linkage: Reasonable adjustments to maths for students with intellectual disabilities

The aim of this project is to find ways to adjust, teach and assess secondary mathematics for students with intellectual and developmental disabilities. The significance of this study is in solving a problem facing teachers who are required by law to teach mathematics without evidence informed approaches. Expected outcomes are an evidence-base for reasonable adjustments to secondary mathematics and approaches and strategies for teachers for inclusive practices

Fields of Research

  • Special education and disability (390411)
  • Child and adolescent development (520101)
  • Psychology of ageing (520106)
  • Inclusive education (390407)
  • Social psychology (520505)
  • Counselling, wellbeing and community services (440902)
  • Health and community services (420305)
  • People with disability (420318)
  • Health psychology (520304)
  • Specialist studies in education (390499)
  • Social policy (440712)
  • Human resources management (350503)
  • Applied and developmental psychology (520199)
  • Mathematics and numeracy curriculum and pedagogy (390109)
  • Occupational therapy (420104)
  • Other education (399999)
  • Educational psychology (520102)
  • Other language, communication and culture (479999)
  • Testing, assessment and psychometrics (520108)
  • Social work (440999)
  • Vocational education and training curriculum and pedagogy (390114)
  • Other psychology (529999)
  • Social change (441004)
  • Communication and media studies (470199)
  • Gender relations (440504)
  • Philosophical psychology (incl. moral psychology and philosophy of action) (500311)
  • Central nervous system (320903)
  • Educational counselling (390404)
  • Learning sciences (390409)
  • Higher education (390303)
  • Teacher education and professional development of educators (390307)
  • Medical ethics (500106)
  • Human rights and justice issues (excl. law) (500104)
  • Neurogenetics (310511)
  • Secondary education (390306)

Research Objectives

  • Ability and disability (230101)
  • Inclusive education (160203)
  • Families and family services (230107)
  • Disability and functional capacity (200403)
  • Learner and learning (160199)
  • Provision of health and support services (200399)
  • Policies and development (160205)
  • Carers' support (230103)
  • Neonatal and child health (200506)
  • Other education and training (169999)
  • Specific population health (excl. Indigenous health) (200599)
  • Allied health therapies (excl. mental health services) (200301)
  • Schools and learning environments (160299)
  • Expanding knowledge in human society (280123)
  • Community services (230199)
  • Equity and access to education (160201)
  • Pedagogy (160302)
  • Health education and promotion (200203)
  • Assessment, development and evaluation of curriculum (160301)
  • Social ethics (130304)
  • Gender aspects in education (160202)
  • Teacher and instructor development (160303)
  • Expanding knowledge in psychology (280121)
  • Expanding knowledge in education (280109)
  • International organisations (230303)
  • Health related to ageing (200502)
  • Mental health services (200305)

Publications

Monica primarily publishes her work in peer reviewed journals. These journals contribute to a number of fields including disability (an interdisciplinary field), developmental psychology, family studies and education.  She has 120 peer reviewed papers, 29 chapters and 3 edited books. She is currently on the editorial boards of Research and Practice in Intellectual and Developmental Disabilities and the Australian Educational and Developmental Psychologist.  She has held this position and other editorial positions on a number of other journals in the past.

Total publications

74

Journal Article

(68 outputs)
YearCitationAltmetrics
2021Garrad T-A, Rayner R, Pedersen S, Cuskelly M, 'From research to reality: Australian evidence-based practice in autism education', Journal of Research in Special Educational Needs pp. 1-11. ISSN 1471-3802 (2021) [Refereed Article]

DOI: 10.1111/1471-3802.12537 [eCite] [Details]

Co-authors: Rayner R; Pedersen S

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2021LLoyd J, Moni K, Cuskelly M, Jobling A, 'National disability insurance scheme: is it creating an ordinary life for adults with intellectual disability?', Disability and Society ISSN 0968-7599 (2021) [Refereed Article]

DOI: 10.1080/09687599.2021.1907548 [eCite] [Details]

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2021Lloyd J, Moni K, Cuskelly M, Jobling A, 'Exploring the complexity of implementing National Disability Insurance Scheme plans for adults with intellectual disability: parents' perspectives', Journal of Intellectual & Developmental Disability, 46, (3) pp. 281-290. ISSN 1366-8250 (2021) [Refereed Article]

DOI: 10.3109/13668250.2020.1843764 [eCite] [Details]

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2021Opoku MP, Rayner CS, Pedersen SJ, Cuskelly M, 'Mapping the evidence-based research on Ghana's inclusive education to policy and practices: a scoping review', International Journal of Inclusive Education, 25, (10) pp. 1157-1173. ISSN 1360-3116 (2021) [Refereed Article]

DOI: 10.1080/13603116.2019.1600055 [eCite] [Details]

Citations: Scopus - 9

Co-authors: Opoku MP; Rayner CS; Pedersen SJ

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2020Cuskelly M, 'Parents and schools: Commentary on 'Identifying child, parent, and school correlates of stress among parents of children with intellectual and developmental disabilities' (Burke, Rios, & Aleman-Tovar, 2020)', Research and Practice in Intellectual and Developmental Disabilities ISSN 2329-7018 (2020) [Contribution to Refereed Journal]

[eCite] [Details]

2020LLoyd J, Moni K, Cuskelly M, Jobling A, 'Engaging with National Disability Insurance Scheme Planning: perspectives of parents of an adult with intellectual disability', Journal of Intellectual & Developmental Disability, 45, (3) pp. 254-263. ISSN 1366-8250 (2020) [Refereed Article]

DOI: 10.3109/13668250.2019.1654275 [eCite] [Details]

Citations: Scopus - 3Web of Science - 2

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2020Lynn LN, Cuskelly M, Gray PH, 'Self-regulation in children born with extremely low birth weight at four years of age: a comparison study', Early Education and Development ISSN 1040-9289 (2020) [Refereed Article]

DOI: 10.1080/10409289.2020.1810502 [eCite] [Details]

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2020McMahon M, Moni K, Cuskelly M, Lloyd J, Jobling A, 'Aspirations held by young adults with intellectual disabilities and their mothers', Australian Journal of Career Development, 29, (2) pp. 107-116. ISSN 1038-4162 (2020) [Refereed Article]

[eCite] [Details]

2020O'Brien ZK, Cuskelly M, Slaughter V, 'Social behaviors of children with ASD during play with siblings and parents: parental perceptions', Research in Developmental Disabilities, 97 Article 103525. ISSN 0891-4222 (2020) [Refereed Article]

DOI: 10.1016/j.ridd.2019.103525 [eCite] [Details]

Citations: Scopus - 5Web of Science - 5

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2020Opoku M, Rayner C, Cuskelly M, Pedersen S, 'The Impact of Teacher Attributes on Intentions to Practice Inclusive Education in Secondary Schools in Ghana', International Journal of Disability, Development and Education pp. 1-17. ISSN 1034-912X (2020) [Refereed Article]

DOI: 10.1080/1034912X.2020.1731434 [eCite] [Details]

Citations: Web of Science - 2

Co-authors: Opoku M; Rayner C; Pedersen S

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2020Opoku MP, Cuskelly M, Pedersen SJ, Rayner CS, 'Applying the theory of planned behaviour in assessments of teachers' intentions towards practicing inclusive education: a scoping review', European Journal of Special Needs Education ISSN 0885-6257 (2020) [Refereed Article]

DOI: 10.1080/08856257.2020.1779979 [eCite] [Details]

Citations: Scopus - 7Web of Science - 7

Co-authors: Opoku MP; Pedersen SJ; Rayner CS

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2020Opoku MP, Cuskelly M, Pedersen SJ, Rayner CS, 'Attitudes and self-efficacy as significant predictors of intention of secondary school teachers towards the implementation of inclusive education in Ghana', European Journal of Psychology of Education ISSN 0256-2928 (2020) [Refereed Article]

DOI: 10.1007/s10212-020-00490-5 [eCite] [Details]

Citations: Scopus - 3Web of Science - 6

Co-authors: Opoku MP; Pedersen SJ; Rayner CS

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2019Cuskelly M, Faragher R, 'Developmental dyscalculia and down syndrome: indicative evidence', International Journal of Disability, Development and Education, 66, (2) pp. 151-161. ISSN 1034-912X (2019) [Refereed Article]

DOI: 10.1080/1034912X.2019.1569209 [eCite] [Details]

Citations: Scopus - 3Web of Science - 3

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2019Riany YE, Cuskelly M, Meredith P, 'Parenting style among Indonesian parents of a child with Autism Spectrum Disorder: Associations with socio-economic status and social supports', Journal of Developmental and Physical Disabilities, 31 pp. 267-283 . ISSN 1056-263X (2019) [Refereed Article]

DOI: 10.1007/s10882-018-9638-5 [eCite] [Details]

Citations: Scopus - 3Web of Science - 2

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2018Fernandez Y, Ziviani J, Cuskelly M, Colquhoun R, Jones F, 'Participation in community leisure programs: experiences and perspectives of children with developmental difficulties and their parents', Leisure Sciences: An Interdisciplinary Journal, 40, (3) pp. 110-130. ISSN 0149-0400 (2018) [Refereed Article]

DOI: 10.1080/01490400.2017.1408509 [eCite] [Details]

Citations: Scopus - 3Web of Science - 4

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2018Lloyd J, Jobling A, White EL, Labosse M, Moni K, et al., 'A dialogic approach to working inclusively in a Research Reference Committee', British Journal of Learning Disabilities pp. 1-7. ISSN 1354-4187 (2018) [Contribution to Refereed Journal]

DOI: 10.1111/bld.12253 [eCite] [Details]

Citations: Web of Science - 2

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2018Mann G, Cuskelly MM, Moni K, 'An investigation of parents' decisions to transfer children from regular to special schools', Journal of Policy and Practice in Intellectual Disabilities, 15, (3) pp. 183-192. ISSN 1741-1122 (2018) [Refereed Article]

DOI: 10.1111/jppi.12238 [eCite] [Details]

Citations: Scopus - 14Web of Science - 13

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2018Riany YE, Cuskelly M, Meredith P, 'Psychometric Properties of Parenting Measures in Indonesia', Makara Hubs Asia, 22, (2) pp. 75-90. ISSN 2355-794X (2018) [Refereed Article]

DOI: 10.7454/hubs.asia.1160118 [eCite] [Details]

Citations: Web of Science - 1

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2018Su H, Cuskelly M, Gilmore L, Sullivan K, 'Perceptions of support in Chinese mothers of a child with intellectual disability', Journal of Developmental and Physical Disabilities, 30, (4) pp. 509-525. ISSN 1056-263X (2018) [Refereed Article]

DOI: 10.1007/s10882-018-9599-8 [eCite] [Details]

Citations: Scopus - 2Web of Science - 3

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2017Gilmore L, Cuskelly M, 'Associations of child and adolescent mastery motivation and self-regulation with adult outcomes: a longitudinal study of individuals with Down syndrome', American Journal on Intellectual and Developmental Disabilities, 122, (3) pp. 235-246. ISSN 1944-7515 (2017) [Refereed Article]

DOI: 10.1352/1944-7558-122.3.235 [eCite] [Details]

Citations: Scopus - 8Web of Science - 4

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2017Riany YE, Cuskelly M, Meredith P, 'Parenting style and parent-child relationship: A comparative study of Indonesian parents of children with and without Autism Spectrum Disorder (ASD)', Journal of Child and Family Studies, 26, (12) pp. 3559-3571. ISSN 1062-1024 (2017) [Refereed Article]

DOI: 10.1007/s10826-017-0840-3 [eCite] [Details]

Citations: Scopus - 9Web of Science - 6

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2017Riany YE, Meredith P, Cuskelly M, 'Understanding the Influence of Traditional Cultural Values on Indonesian Parenting', Marriage & Family Review, 53, (3) pp. 207-226. ISSN 0149-4929 (2017) [Refereed Article]

DOI: 10.1080/01494929.2016.1157561 [eCite] [Details]

Citations: Scopus - 17Web of Science - 17

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2017Su H, Cuskelly M, Gilmore L, Sullivan K, 'Authoritative parenting of Chinese mothers of children with and without intellectual disability', Journal of Child and Family Studies, 26, (4) pp. 1173-1183. ISSN 1062-1024 (2017) [Refereed Article]

DOI: 10.1007/s10826-016-0628-x [eCite] [Details]

Citations: Scopus - 4Web of Science - 3

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2017Wooderson J, Cuskelly M, Meyer K, 'Evaluating the performance improvement preferences of disability service managers: An exploratory study using Gilbert's Behavior Engineering model', Journal of Applied Research in Intellectual Disabilities, 30, (4) pp. 661-671. ISSN 1360-2322 (2017) [Refereed Article]

DOI: 10.1111/jar.12260 [eCite] [Details]

Citations: Scopus - 2Web of Science - 2

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2016Cuskelly M, 'Contributors to adult sibling relationships and intention to care of siblings of individuals with Down syndrome', American Journal on Intellectual and Developmental Disabilities, 121, (3) pp. 204-218. ISSN 1944-7515 (2016) [Refereed Article]

DOI: 10.1352/1944-7558-121.3.204 [eCite] [Details]

Citations: Scopus - 15Web of Science - 14

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2016Cuskelly M, Gilmore L, Glenn S, Jobling A, 'Delay of gratification: a comparison study of children with Down syndrome, moderate intellectual disability and typical development', Journal of Intellectual Disability Research, 60, (9) pp. 865-873. ISSN 0964-2633 (2016) [Refereed Article]

DOI: 10.1111/jir.12262 [eCite] [Details]

Citations: Scopus - 7Web of Science - 7

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2016Cuskelly M, Povey J, Jobling A, 'The trajectory of development of receptive vocabulary in individuals with Down syndrome', Journal of Policy and Practice in Intellectual Disabilities, 13, (2) pp. 111-119. ISSN 1741-1122 (2016) [Refereed Article]

DOI: 10.1111/jppi.12151 [eCite] [Details]

Citations: Scopus - 10Web of Science - 9

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2016Gilmore L, Ryan B, Cuskelly M, Gavidia-Payne S, 'Understanding maternal support for autonomy in young children with Down syndrome', Journal of Policy and Practice in Intellectual Disabilities, 13, (2) pp. 92-101. ISSN 1741-1122 (2016) [Refereed Article]

DOI: 10.1111/jppi.12163 [eCite] [Details]

Citations: Scopus - 5Web of Science - 3

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2016Mann G, Moni K, Cuskelly M, 'Parents' views of an optimal school life: using Social Role Valorization to explore differences in parental perspectives when children have intellectual disability', International Journal of Qualitative Studies in Education, 29, (7) pp. 964-979. ISSN 0951-8398 (2016) [Refereed Article]

DOI: 10.1080/09518398.2016.1174893 [eCite] [Details]

Citations: Scopus - 9Web of Science - 9

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2016Riany YE, Cuskelly M, Meredith P, 'Cultural beliefs about autism in Indonesia', International Journal of Disability, Development and Education, 63, (6) pp. 623-640. ISSN 1034-912X (2016) [Refereed Article]

DOI: 10.1080/1034912X.2016.1142069 [eCite] [Details]

Citations: Scopus - 27Web of Science - 21

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2015Cuskelly M, 'Commentary on Improving policy and practice: Adults with intellectual disability and their families (Fyffe, Pierce, Ilsley, & Paul, 2015)', Research and Practice in Intellectual and Developmental Disabilities, 2, (1) pp. 79-82. ISSN 2329-7018 (2015) [Contribution to Refereed Journal]

DOI: 10.1080/23297018.2015.1021707 [eCite] [Details]

Citations: Web of Science - 1

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2015Cuskelly M, Morris M, Gilmore L, Besley T, 'Parents' reported use and views of strategies for managing the behaviour of their preschool child', Australasian Journal of Early Childhood, 40, (2) pp. 99-106. ISSN 1836-9391 (2015) [Refereed Article]

DOI: 10.1177/183693911504000212 [eCite] [Details]

Citations: Web of Science - 1

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2015Gilmore L, Cuskelly M, Browning M, 'Mastery motivation in children with intellectual disability: Is there evidence for a Down syndrome behavioural phenotype?', International Journal of Disability, Development and Education, 62, (3) pp. 265-275. ISSN 1034-912X (2015) [Refereed Article]

DOI: 10.1080/1034912X.2015.1020923 [eCite] [Details]

Citations: Scopus - 4Web of Science - 3

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2015Mann G, Cuskelly M, Moni K, 'Choosing a school: parental decision-making when special schools are an option', Disability & Society, 30, (9) pp. 1413-1427. ISSN 0968-7599 (2015) [Refereed Article]

DOI: 10.1080/09687599.2015.1108182 [eCite] [Details]

Citations: Scopus - 15Web of Science - 12

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2015Morgan MF, Moni KB, Cuskelly M, 'The development of research skills in young adults with intellectual disability in participatory research', International Journal of Disability, Development and Education, 62, (4) pp. 438-457. ISSN 1034-912X (2015) [Refereed Article]

DOI: 10.1080/1034912X.2015.1028905 [eCite] [Details]

Citations: Scopus - 5Web of Science - 6

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2015Su H, Cuskelly M, Gilmore L, Sullivan K, 'Examination of a scale assessing attitudes towards individuals with intellectual disability in China', International Journal of Disability, Development and Education, 62, (6) pp. 660-675. ISSN 1034-912X (2015) [Refereed Article]

DOI: 10.1080/1034912X.2015.1077938 [eCite] [Details]

Citations: Scopus - 1

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2014Cuskelly M, Gilmore L, 'Motivation in children with intellectual disability', Research and Practice in Intellectual and Developmental Disabilities, 1, (1) pp. 51-59. ISSN 2329-7018 (2014) [Refereed Article]

DOI: 10.1080/23297018.2014.906051 [eCite] [Details]

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2014Gilmore L, Cuskelly M, 'Vulnerability to loneliness in people with intellectual disability: An explanatory model', Journal of Policy and Practice in Intellectual Disabilities, 11, (3) pp. 192-199. ISSN 1741-1122 (2014) [Refereed Article]

DOI: 10.1111/jppi.12089 [eCite] [Details]

Citations: Scopus - 68Web of Science - 66

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2014Hunter L, Abbot R, Macdonald D, Ziviani J, Cuskelly MM, 'Active kids active minds: a physical activity intervention to promote learning?', Asia-Pacific Journal of Health, Sport and Physical Education, 5, (2) pp. 117-131. ISSN 1837-7130 (2014) [Refereed Article]

DOI: 10.1080/18377122.2014.906057 [eCite] [Details]

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2014Mallardo M, Cuskelly M, White P, Jobling A, 'Mental health problems in adults with Down syndrome and their association with life circumstances', Journal of Mental Health Research in Intellectual Disabilities, 7, (3) pp. 229-245. ISSN 1931-5864 (2014) [Refereed Article]

DOI: 10.1080/19315864.2013.842622 [eCite] [Details]

Citations: Scopus - 10Web of Science - 6

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2014Morgan M, Cuskelly M, Moni KB, 'Unanticipated ethical issues in a participatory research project with individuals with intellectual disability', Disability and Society, 29, (8) pp. 1305-1318. ISSN 0968-7599 (2014) [Refereed Article]

DOI: 10.1080/09687599.2014.934440 [eCite] [Details]

Citations: Scopus - 12Web of Science - 8

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2014Woodersen JR, Cuskelly M, Meyer KA, 'A systematic review of interventions for improving the work performance of direct support staff', Research and Practice in Intellectual and Developmental Disabilities, 1, (2) pp. 160-173. ISSN 2329-7018 (2014) [Refereed Article]

DOI: 10.1080/23297018.2014.941967 [eCite] [Details]

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2013Cuskelly M, Moni K, Lloyd J, Jobling A, 'Reliability of a method for establishing the capacity of individuals with an intellectual disability to respond to Likert scales', Journal of Intellectual & Developmental Disability, 38, (4) pp. 318-324. ISSN 1366-8250 (2013) [Refereed Article]

DOI: 10.3109/13668250.2013.832734 [eCite] [Details]

Citations: Scopus - 7Web of Science - 5

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2013Gray PH, Edwards DM, O'Callaghan MJ, Cuskelly M, Gibbons K, 'Parenting stress in mothers of very preterm infants Influence of development, temperament and maternal depression', Early Human Development, 89, (9) pp. 625-629. ISSN 0378-3782 (2013) [Refereed Article]

DOI: 10.1016/j.earlhumdev.2013.04.005 [eCite] [Details]

Citations: Scopus - 70Web of Science - 63

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2013Law PC, Cuskelly MM, Carroll A, 'Young people's perceptions of family, peer, and school connectedness and their impact on adjustment', Australian Journal of Guidance and Counselling, 23, (1) pp. 115-140. ISSN 1037-2911 (2013) [Refereed Article]

DOI: 10.1017/jgc.2012.19 [eCite] [Details]

Citations: Scopus - 21Web of Science - 22

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2013Morgan MF, Moni KB, Cuskelly M, 'Literacy strategies used by adults with intellectual disability in negotiating their everyday community environments', Australian Journal of Adult Learning, 53, (3) pp. 411-435. ISSN 1443-1394 (2013) [Refereed Article]

[eCite] [Details]

Citations: Web of Science - 9

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2012Couzens D, Haynes M, Cuskelly M, 'Individual and environmental characteristics associated with cognitive development in Down Syndrome: a longitudinal study', Journal of Applied Research in Intellectual Disabilities, 25, (5) pp. 396-413. ISSN 1468-3148 (2012) [Refereed Article]

DOI: 10.1111/j.1468-3148.2011.00673.x [eCite] [Details]

Citations: Scopus - 24Web of Science - 18

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2012Douglas L, Cuskelly M, 'A focus group study of police officers' recognition of individuals with intellectual disability', Psychiatry Psychology and Law, 19, (1) pp. 35-44. ISSN 1321-8719 (2012) [Refereed Article]

DOI: 10.1080/13218719.2010.543403 [eCite] [Details]

Citations: Scopus - 14Web of Science - 9

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2012Gilmore L, Cuskelly M, 'Parenting satisfaction and self-efficacy: a longitudinal study of mothers of children with Down syndrome', Journal of Family Studies, 18, (1) pp. 28-35. ISSN 1322-9400 (2012) [Refereed Article]

DOI: 10.5172/jfs.2012.18.1.28 [eCite] [Details]

Citations: Scopus - 17Web of Science - 14

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2012Gray PH, Edwards DM, O'Callaghan MJ, Cuskelly M, 'Parenting stress in mothers of preterm infants during early infancy', Early Human Development, 88, (1) pp. 45-49. ISSN 0378-3782 (2012) [Refereed Article]

DOI: 10.1016/j.earlhumdev.2011.06.014 [eCite] [Details]

Citations: Scopus - 62Web of Science - 55

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2012Lynn L, Cuskelly M, Gray P, O'Callaghan M, 'Self-regulation in children born with extremely low birth weight at 2 years old: a comparison study', Infants & Young Children, 25, (2) pp. 136-148. ISSN 0896-3746 (2012) [Refereed Article]

DOI: 10.1097/IYC.0b013e31824963a2 [eCite] [Details]

Citations: Scopus - 4Web of Science - 4

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2012Perez M, Carlson G, Ziviani J, Cuskelly M, 'Contribution of occupational therapists in positive behaviour support', Australian Occupational Therapy Journal, 59, (6) pp. 428-436. ISSN 0045-0766 (2012) [Refereed Article]

DOI: 10.1111/j.1440-1630.2012.01036.x [eCite] [Details]

Citations: Scopus - 6Web of Science - 5

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2012Ziviani J, Feeney R, Cuskelly M, Meredith P, Hunt K, 'Effectiveness of support services for children and young people with challenging behaviours related to or secondary to disability, who are in out-of-home care: a systematic review', Children and Youth Services Review, 34, (4) pp. 758-770. ISSN 0190-7409 (2012) [Refereed Article]

DOI: 10.1016/j.childyouth.2012.01.002 [eCite] [Details]

Citations: Scopus - 10Web of Science - 8

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2011Couzens D, Cuskelly M, Haynes M, Haynes M, 'Cognitive development and Down syndrome: age-related change on the Stanford-Binet Test (Fourth Edition)', American Journal on Intellectual and Developmental Disabilities, 116, (3) pp. 181-204. ISSN 1944-7515 (2011) [Refereed Article]

DOI: 10.1352/1944-7558-116.3.181 [eCite] [Details]

Citations: Scopus - 51Web of Science - 46

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2011Cuskelly M, Gordon K, 'Social comparisons: associations with psychosocial functioning In individuals With Down syndrome', Down Syndrome Quarterly, 13, (1) pp. 20-28. ISSN 1087-1756 (2011) [Refereed Article]

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2011Gilmore L, Cuskelly M, 'Observational assessment and maternal reports of motivation in children and adolescents with Down syndrome', American Journal on Intellectual and Developmental Disabilities, 116, (2) pp. 153-164. ISSN 1944-7515 (2011) [Refereed Article]

DOI: 10.1352/1944-7558-116.2.153 [eCite] [Details]

Citations: Scopus - 22Web of Science - 15

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2011Khadye M, Ziviani J, Cuskelly M, 'Measures of parent satisfaction with early intervention services for children with physical disabilities: a systematic review', Journal of Occupational Therapy, Schools and Early Intervention, 4, (3-4) pp. 247-259. ISSN 1941-1243 (2011) [Refereed Article]

DOI: 10.1080/19411243.2011.632263 [eCite] [Details]

Citations: Scopus - 2

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2011Lynn LN, Cuskelly M, O'Callaghan MJ, Gray PH, 'Self-regulation: a new perspective on learning problems experienced by children born extremely preterm', Australian Journal of Educational and Developmental Psychology, 11 pp. 1-10. ISSN 1446-5442 (2011) [Refereed Article]

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2011Morgan MF, Cuskelly M, Moni KB, 'Broadening the conceptualization of literacy in the lives of adults with intellectual disability', Research and Practice for Persons with Severe Disabilities, 36, (3-4) pp. 112-120. ISSN 1540-7969 (2011) [Refereed Article]

DOI: 10.2511/027494811800824516 [eCite] [Details]

Citations: Web of Science - 12

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2011Rowbotham M, Carroll A, Cuskelly M, 'Mothers' and fathers' roles in caring for an adult child with an intellectual disability', International Journal of Disability, Development and Education, 58, (3) pp. 223-240. ISSN 1034-912X (2011) [Refereed Article]

DOI: 10.1080/1034912X.2011.598396 [eCite] [Details]

Citations: Scopus - 21Web of Science - 22

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2011Rowbotham M, Cuskelly MM, Carroll A, 'Sustainable caregiving? Demands upon and resources of female carers of adults with intellectual disability', Journal of Women & Aging, 23, (2) pp. 129-148. ISSN 0895-2841 (2011) [Refereed Article]

DOI: 10.1080/08952841.2011.561141 [eCite] [Details]

Citations: Scopus - 11Web of Science - 11

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2011Rowbotham M, Cuskelly MM, Carroll A, 'Long-term care-giving: a short-term longitudinal examination of the experiences of women caring for adults with intellectual disabilities', Journal of Alternative Medicine Research, 3, (1) pp. 73-90. ISSN 1939-5868 (2011) [Refereed Article]

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2010Ziviani J, Cuskelly M, Feeny R, 'Parent satisfaction with early intervention services for children With physical disabilities: internal consistency of the European parent satisfaction scale about early intervention', Infants and Young Children, 23, (3) pp. 184-194. ISSN 0896-3746 (2010) [Refereed Article]

DOI: 10.1097/IYC.0b013e3181e32a28 [eCite] [Details]

Citations: Scopus - 10Web of Science - 9

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2009Cuskelly M, 'Challenging the myths and redressing the missteps in family research', Journal of Policy and Practice in Intellectual Disabilities, 6, (2) pp. 86-88. ISSN 1741-1122 (2009) [Refereed Article]

DOI: 10.1111/j.1741-1130.2009.00211.x [eCite] [Details]

Citations: Scopus - 2Web of Science - 2

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2009Gilmore L, Cuskelly M, 'A longitudinal study of motivation and competence in children with Down syndrome: early childhood to early adolescence', Journal of Intellectual Disability Research, 53, (5) pp. 484-492. ISSN 0964-2633 (2009) [Refereed Article]

DOI: 10.1111/j.1365-2788.2009.01166.x [eCite] [Details]

Citations: Scopus - 30Web of Science - 25

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2009Gilmore L, Cuskelly M, 'Factor structure of the parenting sense of competence scale using a normative sample', Child: Care, Health and Development, 53, (1) pp. 48-55. ISSN 1365-2214 (2009) [Refereed Article]

DOI: 10.1111/j.1365-2214.2008.00867.x [eCite] [Details]

Citations: Scopus - 138Web of Science - 126

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2009Gilmore L, Cuskelly M, Jobling A, Hayes A, 'Maternal support for autonomy: relationships with persistence for children with Down syndrome and typically developing children', Research in Developmental Disabilities, 30, (5) pp. 1023-1033. ISSN 0891-4222 (2009) [Refereed Article]

DOI: 10.1016/j.ridd.2009.02.005 [eCite] [Details]

Citations: Scopus - 38Web of Science - 31

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2008Cuskelly M, Hauser-Cram P, Van Riper M, 'Families of children with Down syndrome: what we know and what we need to know', Down Syndrome Research and Practice pp. 105-113. ISSN 0968-7912 (2008) [Refereed Article]

DOI: 10.3104/reviews.2079 [eCite] [Details]

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Book

(4 outputs)
YearCitationAltmetrics
2015Poulsen PP, Ziviani J, Cuskelly MM, 'Goal setting and motivation in therapy: engaging children and parents', Jessica Kingsley Publishers, United Kingdom, pp. 256. ISBN 978-1-84905-448-5 (2015) [Edited Book]

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2013Ziviani J, Poulsen A, Cuskelly MM, 'The art and science of motivation: a therapist's guide to working with children', Jessica Kingsley Publishers, United Kingdom, pp. 296. ISBN 978-1-84905-125-5 (2013) [Edited Book]

DOI: 10.1111/camh.12053_4 [eCite] [Details]

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2006Cuskelly MM, Brown I, Shearer J, Singh B, 'Families of Adults with Down Syndrome (Down Syndrome Issues & Information)', The Down Syndrome Educational Trust, United Kingdom, pp. 48. ISBN 1-903806-69-0 (2006) [Edited Book]

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2002Cuskelly MM, Jobling A, Buckley S, 'Down Syndrome Across the Life Span', Whurr, United Kingdom, pp. 219. ISBN 9781861562302 (2002) [Edited Book]

DOI: 10.1002/9780470777886 [eCite] [Details]

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Chapter in Book

(2 outputs)
YearCitationAltmetrics
2020Cuskelly M, 'Siblings' Influence on the Development of Individuals with Down Syndrome', The Oxford Handbook of Down Syndrome and Development, Oxford University Press, JA Burack, JO Edgin, L Abbeduto and J Busciglio (ed), United Kingdom ISBN 9780190645441 (2020) [Research Book Chapter]

DOI: 10.1093/oxfordhb/9780190645441.013.7 [eCite] [Details]

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2020McMahon M, Cuskelly M, 'Career development of students with intellectual development: A systems theory perspective', Careers for Students with Special Educational Needs: Perspectives on Development and Transitions from the Asia-Pacific Region, Springer Singapore, M Yuen, W Beamish, & VS Solberg (ed), Singapore, pp. 17-29. ISBN 978-981-15-4442-2 (2020) [Other Book Chapter]

DOI: 10.1007/978-981-15-4443-9 [eCite] [Details]

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Grants & Funding

Monica has attracted funding for research from a number of sources including the Australian Research Council Discovery (10) and Linkage (3) schemes. In addition to these, she has been a member of teams who have completed successful government tenders, examining aspects of services to children with disability and their families and educational initiatives.  She is currently working on two projects funded by the Australian Research Council (see current research).

Funding Summary

Number of grants

20

Total funding

$1,793,867

Projects

Australia-ASEAN Academics Forum: Online Education during COVID-19 and Beyond (2020)$20,000
Description
This project will bring Australian and ASEAN academicstogether to discuss the practices and challenges ofonline education during COVID-19 in 10 ASEAN countriesand showcase the best online teaching practices at theUniversity of Tasmania to assist ASEAN countries.
Funding
Department of Foreign Affairs and Trade ($20,000)
Scheme
Grant-Australia-ASEAN Council
Administered By
University of Tasmania
Research Team
To VT; Carrington VM; Fraser SP; Cuskelly MM
Year
2020
College of Experts 2019-2021: Prof Monica Cuskelly (2019 - 2021)$16,950
Funding
Australian Research Council ($16,950)
Scheme
Contract Research
Administered By
University of Tasmania
Research Team
Cuskelly MM
Period
2019 - 2021
Sibling Influence on Development of Children with Autism Spectrum Disorder (2019 - 2021)$490,000
Description
This project aims to learn whether and how typically-developing (TD) siblings affect development of children withautism spectrum disorder (ASD). ASD involves difficulties with language, executive functions and socialunderstanding. For TD children, growing up with siblings gives an advantage in these cognitive functions. Yet littleis known about how having siblings impacts on cognitive development of children with ASD. This study willexplore longitudinally the mechanisms of sibling impact in families with and without a child with ASD. Theoutcomes will deepen our understanding of child development, providing an evidence base for effectiveinterventions to increase child competence and aiming ultimately to reduce the social costs of ASD.
Funding
Australian Research Council ($490,000)
Scheme
Grant-Discovery Projects
Administered By
University of Tasmania
Research Team
Cuskelly MM; Slaughter V; Gilmore L; Rayner CS
Period
2019 - 2021
Grant Reference
DP190101427
Learning Year Level Appropriate Curriculum: Secondary Mathematics for Students with Down Syndrome (2018 - 2019)$46,886
Description
Inclusive secondary mathematics for all parents want it, students need it, the Australian Curriculum mandates it but how do teachers achieve it? Students with Down syndrome are known to find arithmetic difficult but there is also evidence that they can be successful with other areas of mathematics, using techniques that are appropriate for general classroom use. At this time, there is little research evidence about best practice approaches to guide teachers and assessment authorities.The aim of this project is to investigate the practices of teachers as they adjust, teach, and assess a unit of secondary mathematics to their classes which include a student with Down syndrome.The significance of this study is in solving a problem facing teachers who are required by law to provide mathematics programs that are inclusive of learners with intellectual disability, such as those with Down syndrome. Research evidence to guide best practice is almost non-existent in the area of secondary mathematics teaching and assessment of learners with Down syndrome in areas of the curriculum beyond arithmetic.
Funding
University of Queensland ($46,886)
Scheme
Grant - Project Grant Funding
Administered By
University of Queensland
Research Team
Beswick K; Cuskelly MM; Faragher R; Nankervis K
Period
2018 - 2019
Research Enhancement Program (REP) 2017 (2017)$22,500
Funding
University of Tasmania ($22,500)
Scheme
Grant- Research Enhancement Program
Administered By
University of Tasmania
Research Team
Cuskelly MM
Year
2017
Constructing futures: Career development of individuals with an intellectual disability. (2012 - 2015)$176,000
Funding
Australian Research Council ($176,000)
Scheme
Linkage Project
Administered By
University of Queensland
Research Team
Cuskelly M
Period
2012 - 2015
Screening for autism spectrum disorders in preterm infants in early childhood. (2010 - 2011)$36,899
Funding
Mater Mothers' Research Centre ($36,899)
Scheme
Contract Research
Administered By
University of Queensland
Research Team
Cuskelly M
Period
2010 - 2011
Evaluation of the EVOLVE Behaviour Support Service (2009 - 2011)$129,144
Funding
Department of Communities ($129,144)
Scheme
Contract Research
Administered By
University of Queensland
Research Team
Cuskelly M
Period
2009 - 2011
Evaluation of early intervention for young children with cerebral palsy and their families. (2008 - 2010)$306,495
Funding
Disability Services Queensland ($306,495)
Scheme
Contract Research
Administered By
University of Queensland
Research Team
Cuskelly M
Period
2008 - 2010
Evaluation of the effectiveness of increased school-based activity for enhanced learning (2008)$80,000
Funding
Department of Education & the Arts ($80,000)
Scheme
Contract Research
Administered By
University of Queensland
Research Team
Cuskelly M
Year
2008
Self-regulation in very low birthweight/very preterm 2 and 4 year olds: A comparison study (2007 - 2009)$96,000
Funding
Australian Research Council ($96,000)
Scheme
Linkage Project
Administered By
University of Queensland
Research Team
Cuskelly M
Period
2007 - 2009
The development of the capacity to delay gratification in children with intellectual disability (2004 - 2006)$75,000
Funding
Australian Research Council ($75,000)
Scheme
Discovery Project
Administered By
University of Queensland
Research Team
Cuskelly M; Gilmore L; Glenn SM; Hayes AH; Chant D; Gunn P; Elkins JE
Period
2004 - 2006
The factors associated with healthy eating and physical activity in young people with Down syndrome (2000)$11,120
Funding
Australian Research Council ($11,120)
Scheme
Research Grant
Administered By
University of Queensland
Research Team
Cuskelly M
Year
2000
The developmental progression of motivation over the early years of schooling: Personal characteristics, parental influences and academic experiences (1999)$15,098
Funding
Australian Research Council ($15,098)
Scheme
Research Grant
Administered By
University of Queensland
Research Team
Cuskelly M
Year
1999
A cross cultural study of self-imposed delay of gratification (1999)$15,192
Funding
Australian Research Council ($15,192)
Scheme
Research Grant
Administered By
University of Queensland
Research Team
Cuskelly M
Year
1999
Parenting employment decisions and family functioning in community contexts: Normative features and disability specific factors (1995 - 1997)$107,907
Funding
Australian Research Council ($107,907)
Scheme
Research Grant
Administered By
University of Queensland
Research Team
Cuskelly M
Period
1995 - 1997
Facilitating self-regulation and management of learning in children with Down syndrome (1995)$15,000
Funding
Apex ($15,000)
Scheme
Contract Research
Administered By
University of Queensland
Research Team
Cuskelly M
Year
1995
Maternal support for exploratory behaviour: Implications for mastery motivation (1995)$15,776
Funding
Australian Research Council ($15,776)
Scheme
Research Grant
Administered By
University of Queensland
Research Team
Cuskelly M
Year
1995
Variability and change: An Australian longitudinal study of disability. (1992 - 1994)$105,000
Funding
Australian Research Council ($105,000)
Scheme
Research Grant
Administered By
University of Queensland
Research Team
Cuskelly M
Period
1992 - 1994
Sibling relationships of children with Down syndrome. (1992)$12,900
Funding
Australian Research Council ($12,900)
Scheme
Research Grant
Administered By
University of Queensland
Research Team
Cuskelly M
Year
1992

Research Supervision

Monica has supervised 26 HDR and 47 Honours theses to successful completion. Many of these projects have focussed on some aspect of the lives of individuals with intellectual disability and/or their families.  As a developmental psychologist, Monica is interested in issues across the lifespan, including educationally focussed questions and those that are focussed on adult lives.  She has supervised (among others) topics on mastery motivation, self-regulation, parental decision -making with respect to schooling and parenting a child with a disability.

Monica is particularly interested in supervising topics that deal with matters related to the experiences and lives of adults with intellectual disability, in keeping with the mission of the Applied Research Centre in Disability and Wellbeing.

Current

5

Completed

2

Current

DegreeTitleCommenced
PhDEnvironments to Decrease Loneliness amongst People with Intellectual Disability2017
PhDTechnological Collaboration: Teachers, parents, and allied health professionals supporting students with autism spectrum disorder through information communication technology2018
PhDTowards Inclusive Education for Refugee Children: Exploring barriers of inclusion of culturally and linguistically diverse [CALD] students in Tasmanian primary schools2018
PhDThe Impact of Using Nationally Calibrated Assessment Items for Classroom Assessment on Teacher Practice and Student Learning2021
PhDeExams Transforming Pedagogy2021

Completed

DegreeTitleCompleted
PhDTeachers' Decision-Making with Respect to Evidence-Based Practices for Students with Autism Spectrum Disorder
Candidate: Traci-Ann Garrad
2020
PhDThe Intentions of Secondary School Teachers towards Practicing Inclusive Education in Ghana
Candidate: Maxwell Peprah Opoku
2020