Profiles

Monica Cuskelly

Professor Monica Cuskelly

Monica Cuskelly

Associate Head Research

Room A226c , Building A

61 3 6324 3461 (phone)

Monica.Cuskelly@utas.edu.au

Biography

After working as a psychologist in hospitals and educational systems for some years, I joined the Fred and Eleanor Schonell Special Education Research Centre, The University of Queensland (UQ) as a lecturer. I remained at UQ

Career summary

Qualifications

PhD (1993), 'Psychological adjustment of the siblings of children with Down syndrome', University of Queensland, Australia
MAppPsych (1988), 'The perception of behaviour disorders in Down syndrome children and their siblings', University of Queensland, Australia
GradDipEd (1986), Armidale CAE, Australia
MEdStud (1982), University of Queensland, Australia
BA (Hons) (1978), 'The method of loci and imagery skills', University of Queensland, Australia

Memberships

Professional practice

Registered Psychologist (#PSY0001366604)
International Association for the Scientific Study of Intellectual and Developmental Disability
Australasian Society for Intellectual Disability
American Association on Intellectual and Developmental Disabilities
Australian Psychological Society
Asia Pacific Down Syndrome Federation

Teaching

Human development; Intellectual disability; Developmental disability; Research methods

Research Appointments

Interim Director, Centre of Excellence for Challenging Behaviour
Vice Chair, Down Syndrome IASSIDD SIRG
Executive member, Down Syndrome International

Research Invitations

Invited address. Constructing futures: Roles of family. World Down Syndrome Day Conference. United Nations, New York. (2015)
Keynote address. Motivation in children with intellectual disability. 2014 Dalian International Summit Forum on Personality Development and Education of Children, Dalian, China. (2014)
Keynote address. Challenging the myths and redressing the missteps in family research. The second Asia-Pacific International Association of the Study of Intellectual Disability, Singapore. (2009)
Invited speaker. Brothers and sisters: Their role in the life of a person with a disability. What is the research telling us? Centre for Disability Studies, The University of Sydney, Sydney. (2009)

View more on Professor Monica Cuskelly in WARP

Expertise

Intellectual disability;
Down syndrome;
Family functioning in families with a member with a disability;
Developmental disabilities;
Self-regulation;
Mastery motivation.

Current projects

Down Syndrome Research Program – longitudinal study of the cognitive development of individuals with Down syndrome now in its 35^th year; longitudinal study of the development of self-determination in individuals with Down syndrome now in its 20^th year; maternal influences on developmental outcomes of individuals with Down syndrome.
Self-regulation and mastery motivation in individuals with intellectual disability – influences on, consequences of, and interventions.
Constructing Futures: Career development for individuals with an intellectual disability – examination of the hopes and aspirations of adults with intellectual disability and of their parents alongside investigation of expectations held, and services provided by, support service workers.
Loneliness and intellectual disability – new area of research; focussed on (1) measurement issues; (2) understanding the reasons for increased vulnerability to loneliness in this population; (3) developmental aspects related to understanding of friendship; and (4) amelioration of loneliness in these individuals.

Fields of Research

Developmental Psychology and Ageing (170102)
Special Education and Disability (130312)
Social and Community Psychology (170113)
Health, Clinical and Counselling Psychology (170106)
Health and Community Services (111708)
Human Resources Management (150305)
Counselling, Welfare and Community Services (160702)
Educational Psychology (170103)
Mathematics and Numeracy Curriculum and Pedagogy (130208)
Education (139999)
Psychology (170199)
Studies in Human Society (169999)
Vocational Education and Training Curriculum and Pedagogy (130213)
Psychology and Cognitive Sciences (179999)
Philosophical Psychology (incl. Moral Psychology and Philosophy of Action) (220311)
Culture, Gender, Sexuality (200205)
Educational Counselling (130305)
Learning Sciences (130309)
Human Rights and Justice Issues (220104)
Higher Education (130103)
Teacher Education and Professional Development of Educators (130313)

Research Objectives

Ability and Disability (940101)
Special Needs Education (939907)
Families and Family Services (940112)
Learner Development (930103)
Disability and Functional Capacity (920403)
Carer Health (920202)
Child Health (920501)
Education and Training Systems Policies and Development (930501)
Learner and Learning Achievement (930101)
Health Education and Promotion (920205)
Allied Health Therapies (excl. Mental Health Services) (920201)
Expanding Knowledge in Psychology and Cognitive Sciences (970117)
Pedagogy (930201)
Equity and Access to Education (939903)
Carers Development and Welfare (940104)
Ageing and Older People (940103)
School/Institution Community and Environment (930402)
Specific Population Health (excl. Indigenous Health) (920599)
Moral and Social Development (incl. Affect) (930104)
Education and Training (939999)
School/Institution Policies and Development (930403)
Learner and Learning Processes (930102)
Social Ethics (950407)
Gender Aspects of Education (939904)
International Organisations (940303)
Expanding Knowledge in Education (970113)
Mental Health Services (920209)

Publications

On the editorial boards of:

Research and Practice in Intellectual and Developmental Disabilities
International Journal of Disability, Development and Education
Voice

Total publications

Journal Article

(60 outputs)

Year	Citation	Altmetrics
2020	Cuskelly M, 'Parents and schools: Commentary on 'Identifying child, parent, and school correlates of stress among parents of children with intellectual and developmental disabilities' (Burke, Rios, & Aleman-Tovar, 2020)', Research and Practice in Intellectual and Developmental Disabilities ISSN 2329-7018 (2020) [Contribution to Refereed Journal] [eCite] [Details]
2020	McMahon M, Moni K, Cuskelly M, Lloyd J, Jobling A, 'Aspirations held by young adults with intellectual disabilities and their mothers', Australian Journal of Career Development ISSN 1038-4162 (In Press) [Refereed Article] [eCite] [Details]
2020	Opoku M, Rayner C, Cuskelly M, Pedersen S, 'The Impact of Teacher Attributes on Intentions to Practice Inclusive Education in Secondary Schools in Ghana', International Journal of Disability, Development and Education pp. 1-17. ISSN 1034-912X (2020) [Refereed Article] DOI: 10.1080/1034912X.2020.1731434 [eCite] [Details] Citations: Web of Science - 1 Co-authors: Opoku M; Rayner C; Pedersen S Tweet
2019	Cuskelly M, Faragher R, 'Developmental dyscalculia and down syndrome: indicative evidence', International Journal of Disability, Development and Education, 66, (2) pp. 151-161. ISSN 1034-912X (2019) [Refereed Article] DOI: 10.1080/1034912X.2019.1569209 [eCite] [Details] Citations: Scopus - 2 Tweet
2019	Opoku MP, Rayner CS, Pedersen SJ, Cuskelly M, 'Mapping the evidence-based research on Ghana's inclusive education to policy and practices: a scoping review', International Journal of Inclusive Education ISSN 1360-3116 (2019) [Refereed Article] DOI: 10.1080/13603116.2019.1600055 [eCite] [Details] Co-authors: Opoku MP; Rayner CS; Pedersen SJ Tweet
2018	Fernandez Y, Ziviani J, Cuskelly M, Colquhoun R, Jones F, 'Participation in community leisure programs: experiences and perspectives of children with developmental difficulties and their parents', Leisure Sciences: An Interdisciplinary Journal, 40, (3) pp. 110-130. ISSN 0149-0400 (2018) [Refereed Article] DOI: 10.1080/01490400.2017.1408509 [eCite] [Details] Citations: Scopus - 1Web of Science - 1 Tweet
2018	Lloyd J, Jobling A, White EL, Labosse M, Moni K, et al., 'A dialogic approach to working inclusively in a Research Reference Committee', British Journal of Learning Disabilities pp. 1-7. ISSN 1354-4187 (2018) [Contribution to Refereed Journal] DOI: 10.1111/bld.12253 [eCite] [Details] Citations: Web of Science - 2 Tweet
2018	Mann G, Cuskelly MM, Moni K, 'An investigation of parents' decisions to transfer children from regular to special schools', Journal of Policy and Practice in Intellectual Disabilities, 15, (3) pp. 183-192. ISSN 1741-1122 (2018) [Refereed Article] DOI: 10.1111/jppi.12238 [eCite] [Details] Citations: Scopus - 6Web of Science - 5 Tweet
2018	Riany YE, Cuskelly M, Meredith P, 'Parenting style among Indonesian parents of a child with Autism Spectrum Disorder: Associations with socio-economic status and social supports', Journal of Developmental and Physical Disabilities ISSN 1056-263X (2018) [Refereed Article] DOI: 10.1007/s10882-018-9638-5 [eCite] [Details] Tweet
2018	Riany YE, Cuskelly M, Meredith P, 'Psychometric Properties of Parenting Measures in Indonesia', Makara Hubs Asia, 22, (2) pp. 75-90. ISSN 2355-794X (2018) [Refereed Article] DOI: 10.7454/hubs.asia.1160118 [eCite] [Details] Citations: Web of Science - 1 Tweet
2018	Su H, Cuskelly M, Gilmore L, Sullivan K, 'Perceptions of support in Chinese mothers of a child with intellectual disability', Journal of Developmental and Physical Disabilities, 30, (4) pp. 509-525. ISSN 1056-263X (2018) [Refereed Article] DOI: 10.1007/s10882-018-9599-8 [eCite] [Details] Citations: Scopus - 1Web of Science - 1 Tweet
2017	Gilmore L, Cuskelly M, 'Associations of child and adolescent mastery motivation and self-regulation with adult outcomes: a longitudinal study of individuals with Down syndrome', American Journal on Intellectual and Developmental Disabilities, 122, (3) pp. 235-246. ISSN 1944-7515 (2017) [Refereed Article] DOI: 10.1352/1944-7558-122.3.235 [eCite] [Details] Citations: Scopus - 3Web of Science - 1 Tweet
2017	Riany YE, Cuskelly M, Meredith P, 'Parenting style and parent-child relationship: A comparative study of Indonesian parents of children with and without Autism Spectrum Disorder (ASD)', Journal of Child and Family Studies, 26, (12) pp. 3559-3571. ISSN 1062-1024 (2017) [Refereed Article] DOI: 10.1007/s10826-017-0840-3 [eCite] [Details] Citations: Scopus - 4Web of Science - 4 Tweet
2017	Riany YE, Meredith P, Cuskelly M, 'Understanding the Influence of Traditional Cultural Values on Indonesian Parenting', Marriage & Family Review, 53, (3) pp. 207-226. ISSN 0149-4929 (2017) [Refereed Article] DOI: 10.1080/01494929.2016.1157561 [eCite] [Details] Citations: Scopus - 6Web of Science - 8 Tweet
2017	Su H, Cuskelly M, Gilmore L, Sullivan K, 'Authoritative parenting of Chinese mothers of children with and without intellectual disability', Journal of Child and Family Studies, 26, (4) pp. 1173-1183. ISSN 1062-1024 (2017) [Refereed Article] DOI: 10.1007/s10826-016-0628-x [eCite] [Details] Citations: Scopus - 3Web of Science - 2 Tweet
2017	Wooderson J, Cuskelly M, Meyer K, 'Evaluating the performance improvement preferences of disability service managers: An exploratory study using Gilbert's Behavior Engineering model', Journal of Applied Research in Intellectual Disabilities, 30, (4) pp. 661-671. ISSN 1360-2322 (2017) [Refereed Article] DOI: 10.1111/jar.12260 [eCite] [Details] Citations: Scopus - 1Web of Science - 1 Tweet
2016	Cuskelly M, 'Contributors to adult sibling relationships and intention to care of siblings of individuals with Down syndrome', American Journal on Intellectual and Developmental Disabilities, 121, (3) pp. 204-218. ISSN 1944-7515 (2016) [Refereed Article] DOI: 10.1352/1944-7558-121.3.204 [eCite] [Details] Citations: Scopus - 12Web of Science - 10 Tweet
2016	Cuskelly M, Gilmore L, Glenn S, Jobling A, 'Delay of gratification: a comparison study of children with Down syndrome, moderate intellectual disability and typical development', Journal of Intellectual Disability Research, 60, (9) pp. 865-873. ISSN 0964-2633 (2016) [Refereed Article] DOI: 10.1111/jir.12262 [eCite] [Details] Citations: Scopus - 3Web of Science - 3 Tweet
2016	Cuskelly M, Povey J, Jobling A, 'The trajectory of development of receptive vocabulary in individuals with Down syndrome', Journal of Policy and Practice in Intellectual Disabilities, 13, (2) pp. 111-119. ISSN 1741-1122 (2016) [Refereed Article] DOI: 10.1111/jppi.12151 [eCite] [Details] Citations: Scopus - 7Web of Science - 6 Tweet
2016	Gilmore L, Ryan B, Cuskelly M, Gavidia-Payne S, 'Understanding maternal support for autonomy in young children with Down syndrome', Journal of Policy and Practice in Intellectual Disabilities, 13, (2) pp. 92-101. ISSN 1741-1122 (2016) [Refereed Article] DOI: 10.1111/jppi.12163 [eCite] [Details] Citations: Scopus - 3Web of Science - 2 Tweet
2016	Mann G, Moni K, Cuskelly M, 'Parents' views of an optimal school life: using Social Role Valorization to explore differences in parental perspectives when children have intellectual disability', International Journal of Qualitative Studies in Education, 29, (7) pp. 964-979. ISSN 0951-8398 (2016) [Refereed Article] DOI: 10.1080/09518398.2016.1174893 [eCite] [Details] Citations: Scopus - 8Web of Science - 8 Tweet
2016	Riany YE, Cuskelly M, Meredith P, 'Cultural beliefs about autism in Indonesia', International Journal of Disability, Development and Education, 63, (6) pp. 623-640. ISSN 1034-912X (2016) [Refereed Article] DOI: 10.1080/1034912X.2016.1142069 [eCite] [Details] Citations: Scopus - 16Web of Science - 12 Tweet
2015	Cuskelly M, 'Commentary on Improving policy and practice: Adults with intellectual disability and their families (Fyffe, Pierce, Ilsley, & Paul, 2015)', Research and Practice in Intellectual and Developmental Disabilities, 2, (1) pp. 79-82. ISSN 2329-7018 (2015) [Contribution to Refereed Journal] DOI: 10.1080/23297018.2015.1021707 [eCite] [Details] Citations: Web of Science - 1 Tweet
2015	Cuskelly M, Morris M, Gilmore L, Besley T, 'Parents' reported use and views of strategies for managing the behaviour of their preschool child', Australasian Journal of Early Childhood, 40, (2) pp. 99-106. ISSN 1836-9391 (2015) [Refereed Article] DOI: 10.1177/183693911504000212 [eCite] [Details] Citations: Web of Science - 1 Tweet
2015	Gilmore L, Cuskelly M, Browning M, 'Mastery motivation in children with intellectual disability: Is there evidence for a Down syndrome behavioural phenotype?', International Journal of Disability, Development and Education, 62, (3) pp. 265-275. ISSN 1034-912X (2015) [Refereed Article] DOI: 10.1080/1034912X.2015.1020923 [eCite] [Details] Citations: Scopus - 4Web of Science - 3 Tweet
2015	Mann G, Cuskelly M, Moni K, 'Choosing a school: parental decision-making when special schools are an option', Disability & Society, 30, (9) pp. 1413-1427. ISSN 0968-7599 (2015) [Refereed Article] DOI: 10.1080/09687599.2015.1108182 [eCite] [Details] Citations: Scopus - 9Web of Science - 7 Tweet
2015	Morgan MF, Moni KB, Cuskelly M, 'The development of research skills in young adults with intellectual disability in participatory research', International Journal of Disability, Development and Education, 62, (4) pp. 438-457. ISSN 1034-912X (2015) [Refereed Article] DOI: 10.1080/1034912X.2015.1028905 [eCite] [Details] Citations: Scopus - 3Web of Science - 4 Tweet
2015	Su H, Cuskelly M, Gilmore L, Sullivan K, 'Examination of a scale assessing attitudes towards individuals with intellectual disability in China', International Journal of Disability, Development and Education, 62, (6) pp. 660-675. ISSN 1034-912X (2015) [Refereed Article] DOI: 10.1080/1034912X.2015.1077938 [eCite] [Details] Tweet
2014	Cuskelly M, Gilmore L, 'Motivation in children with intellectual disability', Research and Practice in Intellectual and Developmental Disabilities, 1, (1) pp. 51-59. ISSN 2329-7018 (2014) [Refereed Article] DOI: 10.1080/23297018.2014.906051 [eCite] [Details] Tweet
2014	Gilmore L, Cuskelly M, 'Vulnerability to loneliness in people with intellectual disability: An explanatory model', Journal of Policy and Practice in Intellectual Disabilities, 11, (3) pp. 192-199. ISSN 1741-1122 (2014) [Refereed Article] DOI: 10.1111/jppi.12089 [eCite] [Details] Citations: Scopus - 45Web of Science - 43 Tweet
2014	Hunter L, Abbot R, Macdonald D, Ziviani J, Cuskelly MM, 'Active kids active minds: a physical activity intervention to promote learning?', Asia-Pacific Journal of Health, Sport and Physical Education, 5, (2) pp. 117-131. ISSN 1837-7130 (2014) [Refereed Article] DOI: 10.1080/18377122.2014.906057 [eCite] [Details] Tweet
2014	Mallardo M, Cuskelly M, White P, Jobling A, 'Mental health problems in adults with Down syndrome and their association with life circumstances', Journal of Mental Health Research in Intellectual Disabilities, 7, (3) pp. 229-245. ISSN 1931-5864 (2014) [Refereed Article] DOI: 10.1080/19315864.2013.842622 [eCite] [Details] Citations: Scopus - 8Web of Science - 6 Tweet
2014	Morgan M, Cuskelly M, Moni KB, 'Unanticipated ethical issues in a participatory research project with individuals with intellectual disability', Disability and Society, 29, (8) pp. 1305-1318. ISSN 0968-7599 (2014) [Refereed Article] DOI: 10.1080/09687599.2014.934440 [eCite] [Details] Citations: Scopus - 11Web of Science - 7 Tweet
2014	Woodersen JR, Cuskelly M, Meyer KA, 'A systematic review of interventions for improving the work performance of direct support staff', Research and Practice in Intellectual and Developmental Disabilities, 1, (2) pp. 160-173. ISSN 2329-7018 (2014) [Refereed Article] DOI: 10.1080/23297018.2014.941967 [eCite] [Details] Tweet
2013	Cuskelly M, Moni K, Lloyd J, Jobling A, 'Reliability of a method for establishing the capacity of individuals with an intellectual disability to respond to Likert scales', Journal of Intellectual & Developmental Disability, 38, (4) pp. 318-324. ISSN 1366-8250 (2013) [Refereed Article] DOI: 10.3109/13668250.2013.832734 [eCite] [Details] Citations: Scopus - 4Web of Science - 3 Tweet
2013	Gray PH, Edwards DM, O'Callaghan MJ, Cuskelly M, Gibbons K, 'Parenting stress in mothers of very preterm infants Influence of development, temperament and maternal depression', Early Human Development, 89, (9) pp. 625-629. ISSN 0378-3782 (2013) [Refereed Article] DOI: 10.1016/j.earlhumdev.2013.04.005 [eCite] [Details] Citations: Scopus - 57Web of Science - 49 Tweet
2013	Law PC, Cuskelly MM, Carroll A, 'Young people's perceptions of family, peer, and school connectedness and their impact on adjustment', Australian Journal of Guidance and Counselling, 23, (1) pp. 115-140. ISSN 1037-2911 (2013) [Refereed Article] DOI: 10.1017/jgc.2012.19 [eCite] [Details] Citations: Scopus - 12Web of Science - 15 Tweet
2013	Morgan MF, Moni KB, Cuskelly M, 'Literacy strategies used by adults with intellectual disability in negotiating their everyday community environments', Australian Journal of Adult Learning, 53, (3) pp. 411-435. ISSN 1443-1394 (2013) [Refereed Article] [eCite] [Details] Citations: Web of Science - 6 Tweet
2012	Couzens D, Haynes M, Cuskelly M, 'Individual and environmental characteristics associated with cognitive development in Down Syndrome: a longitudinal study', Journal of Applied Research in Intellectual Disabilities, 25, (5) pp. 396-413. ISSN 1468-3148 (2012) [Refereed Article] DOI: 10.1111/j.1468-3148.2011.00673.x [eCite] [Details] Citations: Scopus - 19Web of Science - 14 Tweet
2012	Douglas L, Cuskelly M, 'A focus group study of police officers' recognition of individuals with intellectual disability', Psychiatry Psychology and Law, 19, (1) pp. 35-44. ISSN 1321-8719 (2012) [Refereed Article] DOI: 10.1080/13218719.2010.543403 [eCite] [Details] Citations: Scopus - 9Web of Science - 6 Tweet
2012	Gilmore L, Cuskelly M, 'Parenting satisfaction and self-efficacy: a longitudinal study of mothers of children with Down syndrome', Journal of Family Studies, 18, (1) pp. 28-35. ISSN 1322-9400 (2012) [Refereed Article] DOI: 10.5172/jfs.2012.18.1.28 [eCite] [Details] Citations: Scopus - 11Web of Science - 9 Tweet
2012	Gray PH, Edwards DM, O'Callaghan MJ, Cuskelly M, 'Parenting stress in mothers of preterm infants during early infancy', Early Human Development, 88, (1) pp. 45-49. ISSN 0378-3782 (2012) [Refereed Article] DOI: 10.1016/j.earlhumdev.2011.06.014 [eCite] [Details] Citations: Scopus - 54Web of Science - 47 Tweet
2012	Lynn L, Cuskelly M, Gray P, O'Callaghan M, 'Self-regulation in children born with extremely low birth weight at 2 years old: a comparison study', Infants & Young Children, 25, (2) pp. 136-148. ISSN 0896-3746 (2012) [Refereed Article] DOI: 10.1097/IYC.0b013e31824963a2 [eCite] [Details] Citations: Scopus - 3Web of Science - 3 Tweet
2012	Perez M, Carlson G, Ziviani J, Cuskelly M, 'Contribution of occupational therapists in positive behaviour support', Australian Occupational Therapy Journal, 59, (6) pp. 428-436. ISSN 0045-0766 (2012) [Refereed Article] DOI: 10.1111/j.1440-1630.2012.01036.x [eCite] [Details] Citations: Scopus - 2Web of Science - 2 Tweet
2012	Ziviani J, Feeney R, Cuskelly M, Meredith P, Hunt K, 'Effectiveness of support services for children and young people with challenging behaviours related to or secondary to disability, who are in out-of-home care: a systematic review', Children and Youth Services Review, 34, (4) pp. 758-770. ISSN 0190-7409 (2012) [Refereed Article] DOI: 10.1016/j.childyouth.2012.01.002 [eCite] [Details] Citations: Scopus - 8Web of Science - 6 Tweet
2011	Couzens D, Cuskelly M, Haynes M, Haynes M, 'Cognitive development and Down syndrome: age-related change on the Stanford-Binet Test (Fourth Edition)', American Journal on Intellectual and Developmental Disabilities, 116, (3) pp. 181-204. ISSN 1944-7515 (2011) [Refereed Article] DOI: 10.1352/1944-7558-116.3.181 [eCite] [Details] Citations: Scopus - 42Web of Science - 39 Tweet
2011	Cuskelly M, Gordon K, 'Social comparisons: associations with psychosocial functioning In individuals With Down syndrome', Down Syndrome Quarterly, 13, (1) pp. 20-28. ISSN 1087-1756 (2011) [Refereed Article] [eCite] [Details] Tweet
2011	Gilmore L, Cuskelly M, 'Observational assessment and maternal reports of motivation in children and adolescents with Down syndrome', American Journal on Intellectual and Developmental Disabilities, 116, (2) pp. 153-164. ISSN 1944-7515 (2011) [Refereed Article] DOI: 10.1352/1944-7558-116.2.153 [eCite] [Details] Citations: Scopus - 19Web of Science - 14 Tweet
2011	Khadye M, Ziviani J, Cuskelly M, 'Measures of parent satisfaction with early intervention services for children with physical disabilities: a systematic review', Journal of Occupational Therapy, Schools and Early Intervention, 4, (3-4) pp. 247-259. ISSN 1941-1243 (2011) [Refereed Article] DOI: 10.1080/19411243.2011.632263 [eCite] [Details] Citations: Scopus - 2 Tweet
2011	Lynn LN, Cuskelly M, O'Callaghan MJ, Gray PH, 'Self-regulation: a new perspective on learning problems experienced by children born extremely preterm', Australian Journal of Educational and Developmental Psychology, 11 pp. 1-10. ISSN 1446-5442 (2011) [Refereed Article] [eCite] [Details] Tweet
2011	Morgan MF, Cuskelly M, Moni KB, 'Broadening the conceptualization of literacy in the lives of adults with intellectual disability', Research and Practice for Persons with Severe Disabilities, 36, (3-4) pp. 112-120. ISSN 1540-7969 (2011) [Refereed Article] DOI: 10.2511/027494811800824516 [eCite] [Details] Citations: Web of Science - 10 Tweet
2011	Rowbotham M, Carroll A, Cuskelly M, 'Mothers' and fathers' roles in caring for an adult child with an intellectual disability', International Journal of Disability, Development and Education, 58, (3) pp. 223-240. ISSN 1034-912X (2011) [Refereed Article] DOI: 10.1080/1034912X.2011.598396 [eCite] [Details] Citations: Scopus - 18Web of Science - 19 Tweet
2011	Rowbotham M, Cuskelly MM, Carroll A, 'Sustainable caregiving? Demands upon and resources of female carers of adults with intellectual disability', Journal of Women & Aging, 23, (2) pp. 129-148. ISSN 0895-2841 (2011) [Refereed Article] DOI: 10.1080/08952841.2011.561141 [eCite] [Details] Citations: Scopus - 7Web of Science - 7 Tweet
2011	Rowbotham M, Cuskelly MM, Carroll A, 'Long-term care-giving: a short-term longitudinal examination of the experiences of women caring for adults with intellectual disabilities', Journal of Alternative Medicine Research, 3, (1) pp. 73-90. ISSN 1939-5868 (2011) [Refereed Article] [eCite] [Details] Tweet
2010	Ziviani J, Cuskelly M, Feeny R, 'Parent satisfaction with early intervention services for children With physical disabilities: internal consistency of the European parent satisfaction scale about early intervention', Infants and Young Children, 23, (3) pp. 184-194. ISSN 0896-3746 (2010) [Refereed Article] DOI: 10.1097/IYC.0b013e3181e32a28 [eCite] [Details] Citations: Scopus - 9Web of Science - 8 Tweet
2009	Cuskelly M, 'Challenging the myths and redressing the missteps in family research', Journal of Policy and Practice in Intellectual Disabilities, 6, (2) pp. 86-88. ISSN 1741-1122 (2009) [Refereed Article] DOI: 10.1111/j.1741-1130.2009.00211.x [eCite] [Details] Citations: Scopus - 2Web of Science - 2 Tweet
2009	Gilmore L, Cuskelly M, 'A longitudinal study of motivation and competence in children with Down syndrome: early childhood to early adolescence', Journal of Intellectual Disability Research, 53, (5) pp. 484-492. ISSN 0964-2633 (2009) [Refereed Article] DOI: 10.1111/j.1365-2788.2009.01166.x [eCite] [Details] Citations: Scopus - 29Web of Science - 23 Tweet
2009	Gilmore L, Cuskelly M, 'Factor structure of the parenting sense of competence scale using a normative sample', Child: Care, Health and Development, 53, (1) pp. 48-55. ISSN 1365-2214 (2009) [Refereed Article] DOI: 10.1111/j.1365-2214.2008.00867.x [eCite] [Details] Citations: Scopus - 109Web of Science - 103 Tweet
2009	Gilmore L, Cuskelly M, Jobling A, Hayes A, 'Maternal support for autonomy: relationships with persistence for children with Down syndrome and typically developing children', Research in Developmental Disabilities, 30, (5) pp. 1023-1033. ISSN 0891-4222 (2009) [Refereed Article] DOI: 10.1016/j.ridd.2009.02.005 [eCite] [Details] Citations: Scopus - 30Web of Science - 27 Tweet
2008	Cuskelly M, Hauser-Cram P, Van Riper M, 'Families of children with Down syndrome: what we know and what we need to know', Down Syndrome Research and Practice pp. 105-113. ISSN 0968-7912 (2008) [Refereed Article] DOI: 10.3104/reviews.2079 [eCite] [Details] Tweet

Book

(4 outputs)

Year	Citation	Altmetrics
2015	Poulsen PP, Ziviani J, Cuskelly MM, 'Goal setting and motivation in therapy: engaging children and parents', Jessica Kingsley Publishers, United Kingdom, pp. 256. ISBN 978-1-84905-448-5 (2015) [Edited Book] [eCite] [Details] Tweet
2013	Ziviani J, Poulsen A, Cuskelly MM, 'The art and science of motivation: a therapist's guide to working with children', Jessica Kingsley Publishers, United Kingdom, pp. 296. ISBN 978-1-84905-125-5 (2013) [Edited Book] DOI: 10.1111/camh.12053_4 [eCite] [Details] Tweet
2006	Cuskelly MM, Brown I, Shearer J, Singh B, 'Families of Adults with Down Syndrome (Down Syndrome Issues & Information)', The Down Syndrome Educational Trust, United Kingdom, pp. 48. ISBN 1-903806-69-0 (2006) [Edited Book] [eCite] [Details]
2002	Cuskelly MM, Jobling A, Buckley S, 'Down Syndrome Across the Life Span', Whurr, United Kingdom, pp. 219. ISBN 9781861562302 (2002) [Edited Book] DOI: 10.1002/9780470777886 [eCite] [Details] Tweet

Chapter in Book

(2 outputs)

Year	Citation	Altmetrics
2020	Cuskelly M, 'Siblings' Influence on the Development of Individuals with Down Syndrome', The Oxford Handbook of Down Syndrome and Development, Oxford University Press, JA Burack, JO Edgin, L Abbeduto and J Busciglio (ed), United Kingdom ISBN 9780190645441 (2020) [Research Book Chapter] DOI: 10.1093/oxfordhb/9780190645441.013.7 [eCite] [Details] Tweet
2020	McMahon M, Cuskelly M, 'Career development of students with intellectual development: A systems theory perspective', Careers for Students with Special Educational Needs: Perspectives on Development and Transitions from the Asia-Pacific Region, Springer Singapore, M Yuen, W Beamish, & VS Solberg (ed), Singapore ISBN 978-981-15-4442-2 (In Press) [Other Book Chapter] DOI: 10.1007/978-981-15-4443-9 [eCite] [Details] Tweet

Year

Citation

Altmetrics

2020

Cuskelly M, 'Siblings' Influence on the Development of Individuals with Down Syndrome', The Oxford Handbook of Down Syndrome and Development, Oxford University Press, JA Burack, JO Edgin, L Abbeduto and J Busciglio (ed), United Kingdom ISBN 9780190645441 (2020) [Research Book Chapter]

DOI: 10.1093/oxfordhb/9780190645441.013.7 [eCite] [Details]

2020

McMahon M, Cuskelly M, 'Career development of students with intellectual development: A systems theory perspective', Careers for Students with Special Educational Needs: Perspectives on Development and Transitions from the Asia-Pacific Region, Springer Singapore, M Yuen, W Beamish, & VS Solberg (ed), Singapore ISBN 978-981-15-4442-2 (In Press) [Other Book Chapter]

DOI: 10.1007/978-981-15-4443-9 [eCite] [Details]

Grants & Funding

Funding Summary

Number of grants

Total funding

$1,773,867

Projects

College of Experts 2019-2021: Prof Monica Cuskelly (2019 - 2021)$16,950

Funding: Australian Research Council ($16,950)
Scheme: Contract Research
Administered By: University of Tasmania
Research Team: Cuskelly MM
Period: 2019 - 2021

Sibling Influence on Development of Children with Autism Spectrum Disorder (2019 - 2021)$490,000

Description: This project aims to learn whether and how typically-developing (TD) siblings affect development of children withautism spectrum disorder (ASD). ASD involves difficulties with language, executive functions and socialunderstanding. For TD children, growing up with siblings gives an advantage in these cognitive functions. Yet littleis known about how having siblings impacts on cognitive development of children with ASD. This study willexplore longitudinally the mechanisms of sibling impact in families with and without a child with ASD. Theoutcomes will deepen our understanding of child development, providing an evidence base for effectiveinterventions to increase child competence and aiming ultimately to reduce the social costs of ASD.
Funding: Australian Research Council ($490,000)
Scheme: Grant-Discovery Projects
Administered By: University of Tasmania
Research Team: Cuskelly MM; Slaughter V; Gilmore L; Rayner CS
Period: 2019 - 2021
Grant Reference: DP190101427

Learning Year Level Appropriate Curriculum: Secondary Mathematics for Students with Down Syndrome (2018 - 2019)$46,886

Description: Inclusive secondary mathematics for all parents want it, students need it, the Australian Curriculum mandates it but how do teachers achieve it? Students with Down syndrome are known to find arithmetic difficult but there is also evidence that they can be successful with other areas of mathematics, using techniques that are appropriate for general classroom use. At this time, there is little research evidence about best practice approaches to guide teachers and assessment authorities.The aim of this project is to investigate the practices of teachers as they adjust, teach, and assess a unit of secondary mathematics to their classes which include a student with Down syndrome.The significance of this study is in solving a problem facing teachers who are required by law to provide mathematics programs that are inclusive of learners with intellectual disability, such as those with Down syndrome. Research evidence to guide best practice is almost non-existent in the area of secondary mathematics teaching and assessment of learners with Down syndrome in areas of the curriculum beyond arithmetic.
Funding: University of Queensland ($46,886)
Scheme: Grant - Project Grant Funding
Administered By: University of Queensland
Research Team: Beswick K; Cuskelly MM; Faragher R; Nankervis K
Period: 2018 - 2019

Research Enhancement Program (REP) 2017 (2017)$22,500

Funding: University of Tasmania ($22,500)
Scheme: Grant- Research Enhancement Program
Administered By: University of Tasmania
Research Team: Cuskelly MM
Year: 2017

Constructing futures: Career development of individuals with an intellectual disability. (2012 - 2015)$176,000

Funding: Australian Research Council ($176,000)
Scheme: Linkage Project
Administered By: University of Queensland
Research Team: Cuskelly M
Period: 2012 - 2015

Screening for autism spectrum disorders in preterm infants in early childhood. (2010 - 2011)$36,899

Funding: Mater Mothers' Research Centre ($36,899)
Scheme: Contract Research
Administered By: University of Queensland
Research Team: Cuskelly M
Period: 2010 - 2011

Evaluation of the EVOLVE Behaviour Support Service (2009 - 2011)$129,144

Funding: Department of Communities ($129,144)
Scheme: Contract Research
Administered By: University of Queensland
Research Team: Cuskelly M
Period: 2009 - 2011

Evaluation of early intervention for young children with cerebral palsy and their families. (2008 - 2010)$306,495

Funding: Disability Services Queensland ($306,495)
Scheme: Contract Research
Administered By: University of Queensland
Research Team: Cuskelly M
Period: 2008 - 2010

Evaluation of the effectiveness of increased school-based activity for enhanced learning (2008)$80,000

Funding: Department of Education & the Arts ($80,000)
Scheme: Contract Research
Administered By: University of Queensland
Research Team: Cuskelly M
Year: 2008

Self-regulation in very low birthweight/very preterm 2 and 4 year olds: A comparison study (2007 - 2009)$96,000

Funding: Australian Research Council ($96,000)
Scheme: Linkage Project
Administered By: University of Queensland
Research Team: Cuskelly M
Period: 2007 - 2009

The development of the capacity to delay gratification in children with intellectual disability (2004 - 2006)$75,000

Funding: Australian Research Council ($75,000)
Scheme: Discovery Project
Administered By: University of Queensland
Research Team: Cuskelly M; Gilmore L; Glenn SM; Hayes AH; Chant D; Gunn P; Elkins JE
Period: 2004 - 2006

The factors associated with healthy eating and physical activity in young people with Down syndrome (2000)$11,120

Funding: Australian Research Council ($11,120)
Scheme: Research Grant
Administered By: University of Queensland
Research Team: Cuskelly M
Year: 2000

The developmental progression of motivation over the early years of schooling: Personal characteristics, parental influences and academic experiences (1999)$15,098

Funding: Australian Research Council ($15,098)
Scheme: Research Grant
Administered By: University of Queensland
Research Team: Cuskelly M
Year: 1999

A cross cultural study of self-imposed delay of gratification (1999)$15,192

Funding: Australian Research Council ($15,192)
Scheme: Research Grant
Administered By: University of Queensland
Research Team: Cuskelly M
Year: 1999

Parenting employment decisions and family functioning in community contexts: Normative features and disability specific factors (1995 - 1997)$107,907

Funding: Australian Research Council ($107,907)
Scheme: Research Grant
Administered By: University of Queensland
Research Team: Cuskelly M
Period: 1995 - 1997

Facilitating self-regulation and management of learning in children with Down syndrome (1995)$15,000

Funding: Apex ($15,000)
Scheme: Contract Research
Administered By: University of Queensland
Research Team: Cuskelly M
Year: 1995

Maternal support for exploratory behaviour: Implications for mastery motivation (1995)$15,776

Funding: Australian Research Council ($15,776)
Scheme: Research Grant
Administered By: University of Queensland
Research Team: Cuskelly M
Year: 1995

Variability and change: An Australian longitudinal study of disability. (1992 - 1994)$105,000

Funding: Australian Research Council ($105,000)
Scheme: Research Grant
Administered By: University of Queensland
Research Team: Cuskelly M
Period: 1992 - 1994

Sibling relationships of children with Down syndrome. (1992)$12,900

Funding: Australian Research Council ($12,900)
Scheme: Research Grant
Administered By: University of Queensland
Research Team: Cuskelly M
Year: 1992

Research Supervision

Supervised 21 successful HDR students to date.

Current

Degree	Title	Commenced
PhD	Teachers Decision-Making with Respect to Evidence-Based Practices for Students with Autism Spectrum Disorder	2017
PhD	Environments to Decrease Loneliness amongst People with Intellectual Disability	2017
PhD	The Intentions of Secondary School Teachers towards Practicing Inclusive Education in Ghana	2017
PhD	Technological Collaboration: Teachers, parents, and allied health professionals supporting students with autism spectrum disorder through information communication technology	2018
PhD	Towards Inclusive Education for Refugee Children: Exploring barriers of inclusion of culturally and linguistically diverse [CALD] students in Tasmanian primary schools	2018