Profiles

Margaret Otlowski

UTAS Home Professor Margaret Otlowski

Margaret Otlowski

Professor of Law

Room 2.18 , Faculty of Law Building

+61 3 6226 7569 (phone)

+61 3 6226 7623 (fax)

Margaret.Otlowski@utas.edu.au

Professor Margaret Otlowski is focused on the relationship between the law, health and ethics. She is passionate about protecting people from harm in this era. Reviewing laws, and recommending change in light of new ethical questions is a fundamental aspect of her work.

When health technology and ethics collide: reviewing and updating the laws that protect us from discrimination and harm.

How would the philosophers of the Enlightenment have reacted if they could see into the future and how we live in this millennium? The Age of Reason, which began in their lifetime, triggered rapid technological innovation. Technology has been the catalyst for some profound philosophical and ethical questions, and it continues to be. We can map someone's DNA from a single hair, perhaps without his or her knowledge or consent. Genome sequencing will soon become the norm. Robots may have the potential to wage wars. We can keep people alive in hospitals even when their bodies and minds are incapable of surviving on their own. We can keep people alive against their will. How do we reconcile the clash of technology and ethics that progress has bestowed on our generation?

Technological advancement is so rapid that the law can be slow to respond. What legal mechanisms can be brought to bear to protect humans from the implications of technology?  Who grapples with the ethical questions that our ever-changing technological environment presents?

Professor Margaret Otlowski is focused on the relationship between the law, health and ethics. She is passionate about protecting people from harm in this era. Reviewing laws, and recommending change in light of new ethical questions is a fundamental aspect of her work.

'When technology enables unethical practices to occur, our laws need to be revised to protect people from harm,' said Professor Otlowski. 'To be able to have a tangible impact on policy or law reform through my recommendations is very rewarding.'

'Issues such as euthanasia and the regulation of information regarding genome sequencing demand consideration. How should our laws respond to these changing circumstances?'

Professor Otlowski feels strongly about changing the laws in relation to euthanasia. Her PhD thesis on voluntary euthanasia was so highly regarded that it was made into a book published by Oxford University Press, Voluntary Euthanasia and the Common Law 1997.

'Euthanasia is an example of how technological developments demand a rethink of the law. I still feel passionate about it. Even genetics, a field that can help us so much, raises issues around discrimination and consent.'

Professor Otlowski has served as expert and high-level policy advisor to the government as member of the Australian Health Ethics Committee (AHEC) and the Human Genetics Advisory Committee (HGAC), both of which are Principal Committees of the National Health and Medical Research Council (NHMRC).

Professor Otlowski was appointed chair of the working group responsible for rewriting the chapter on genetics in the NHMRC's National Statement.

By obtaining a strand of someone's hair, it is possible to assess their DNA without their knowledge or consent. Professor Otlowski has produced papers on protecting people from non-consensual genetic testing.

'The possibility of someone's genetic sequence being made available raises a range of ethical questions depending on who has access to this information,' said Professor Otlowski.

How does the law operate in regards to controlling access to someone's genetic sequence? There are considerable grounds for discrimination and the breach of human rights.

'To establish the need for law reform regarding discrimination and consent in relation to genetic testing, we need to understand the viewpoints of the people we are assessing,' said Professor Otlowski. Her genetic discrimination research has involved input from key stakeholders involved in the field of genetics.

'We have surveyed patients who have undergone genetic testing, the insurance industry which has a vested interest in knowing the results, and employer groups' attitudes to genetic testing. It is important to assess these kinds of ethical dilemmas at the coal face.'

'The Tasmanian Law Reform Institute (TLRI) is part of our identity at the Faculty of Law,' said Professor Otlowski. 'It has helped to imbue a tradition of thinking about law reform among our staff and students.'

Margaret Otlowski is a Professor of Law at the School of Law in the College of Arts, Law and Education and Deputy Director of the Centre for Law and Genetics. She holds an adjunct professorial appointment with the Menzies Institute for Medical Research. Her research has focused on health law. She was Dean of Law from 2010-2017 and Pro Vice Chancellor (Culture, Wellbeing and Sustainability) from 2018-2020. She has been admitted to practice and has been a part-time member of various Commonwealth and State Tribunals including the Social Security Appeals Tribunal, the Tasmanian Anti-Discrimination Board and the Tasmanian Guardianship Board. She was made a fellow of the Australian Academy of Law in 2015. She has also served on a range of national and state committees.

Biography

Margaret graduated in 1985 with First Class Honours in Law. After completing the Legal Practice Course, she did her articles with Page Seager solicitors in Hobart and was admitted as Barrister and Solicitor in 1986. After some part-time lecturing involvements, she was appointed in a full-time academic role at UTAS in 1987. She completed a PhD in 1992 which was published in the UK by Oxford University Press (Voluntary Euthanasia and the Common Law). Since then, she has pursued her career through the University of Tasmania and was appointed Professor through a Personal Chair in 2003. Margaret has served in a range of roles at UTAS, including as Dean of Law 2010-2017, Pro Vice Chancellor (Culture, Wellbeing and Sustainability) 2018-2020, Vice Chancellor’s Envoy (Europe) and Senior Academic Adviser, Graduate Research (2021).

Her principal areas of research expertise are in relation to end-of-life issues and aspects of law and genetics, with particular focus on genetic discrimination, privacy and regulatory issues. She has taught across a number of areas including Family Law, Torts, Law and Ethics of Health Care, Biotechnology Law and more recently Ethics, Social Responsibility and the Law and Foundations of Law. She was an inaugural recipient of a UTAS Teaching Excellence Award in 1992 and has also been awarded a Teaching Merit Certificate.

Career summary

Qualifications

  • PhD, University of Tasmania, Australia, 1993, Legal Aspects of Voluntary Euthanasia in Australia
  • LLB (1st Class Hons), University of Tasmania, Australia, 1985
  • Legal Practice Certificate, Tasmanian Board of Legal Education 1985

Languages (other than English)

Margaret is a dual national (Australian/Swiss). She speaks Swiss German/German.

Memberships

Professional practice

  • Patron, Tasmanian Women’s Lawyer (TWL) since 2018
  • Fellow, Australian Academy of Law since 2015
  • Member, Australian Research Integrity Committee since 2017
  • Honorary Consul for Switzerland since 2000
  • Member, NHMRC Electronic Cigarettes Working Committee since 2000
  • Chair, Australian Genetic Non-Discrimination Working Group since 2016
  • Member, Expert Panel for the Genetic Discrimination Observatory since 2019
  • Member, Legal Profession Board Sexual Harassment Working Group since 2021

Administrative expertise

Margaret has a broad range of administrative experience. As Dean and Head of the Law School from 2010-2017 she was responsible for running the Law Faculty and School. In addition to other roles within the Law School, she has also served the broader university in a diverse range of senior roles.

Teaching

Law and Ethics of Health Care, Family Law, Tort Law, Ethics and Social Responsibility

Teaching expertise

Margaret has taught across a variety of units over the course of her career, including Labour Law, Employment Law, Family Law, Torts, Law and Ethics of Health Care and Biotechnology Law. Since concluding her Deanship role, during which she had limited teaching involvement, she has coordinated LAW181 Ethics, Social Responsibility and the Law and has taught into Introduction to Law units (Legal Systems and currently LAW107 Foundations of Law). She has been responsible for unit design of many of these units.  She has also been involved in teaching health law and ethics topics to medical students.

Research Appointments

  • Member, Australian Research Integrity Committee since 2017
  • Member, NHMRC Electronic Cigarettes Working Committee since 2000
  • Member, Expert Panel for the Genetic Discrimination Observatory since 2019

Research Invitations

  • Margaret has been a regular invited contributor on expert panels, including on legal and ethical perspectives on genetic testing for the Royal College of Pathologists of Australasia.
  • Specific research related invitations include:
  • Invited Public Lecture for the Queensland Genomic Health Alliance, Queensland University of Technology, Queensland, 'Genetic Discrimination in Australia: A Timely Reappraisal’ June 2018
  • Centre for Biomedical Ethics, Yong Loo Lin School of Medicine, National University of Singapore, Big Data Ethics Symposium,  presentation, ‘Collaborative Research in the Genome Era: The Imperative of Data Sharing but How Best to Facilitate?’ Singapore, March 2018
  • Australian Academy of Technology, Big Data Symposium ‘Complexities of Big Data’ Sydney September 2018
  • Australian Academy of Health and Medicine Annual Meeting, Addressing the Broader Challenges and Issues of Precision Medicine,’ panel member to discuss the regulatory, societal, ethical and legal considerations associated with realizing the promise to precision health. 15 October 2020.
  • Invitation to present to the Science and Society Network Seminar on Genetic Discrimination (October 2021)

View more on Professor Margaret Otlowski in WARP

Expertise

  • End of life/voluntary assisted dying
  • Genetic discrimination
  • Privacy
  • Biobanking
  • Regulation of genetic technologies

Margaret uses doctrinal research methods and critical legal analysis to examine laws and practices in health care and research to evaluate their effectiveness and identify areas for reform or where new forms of regulation are required. This is also sometimes supplemented with empirical research methods including surveys and interviews. She partners with academics and practitioners in law and health related disciplines and has received public funding to address particular legal-ethical challenges arising from technological developments in health care. This has included focus on beginning of life (artificial conception, surrogacy) and end of life issues including voluntary assisted dying. Over the last two decades, her research has focused predominantly on legal and ethical issues raised by technological developments with genetic testing and more recently genomic sequencing.

Through her books, chapters, articles as well as submissions to public inquiries and presentations she provides insight into contemporary challenges in these areas and guidance on law and policy through recommendations for reform. Her work is frequently cited and has been influential in shaping law and policy in her key areas of expertise.

Collaboration

Margaret frequently collaborates with researchers from law and other disciplines in Australia as well as the UK, US and Canada. She is the Australian representative for the Expert Panel for the International Genetic Discrimination Observatory which involves collaboration with researchers from across the globe.

Margaret has been Chief Investigator on numerous grants with funding from ARC, NHMRC and Genomics Health Future Mission, involving collaborations with a range of partners including University of Sydney, Monash University, University of Melbourne, Swinburne University, University of Western Australia, Garvan Institute, Children’s Cancer Institute and Kids’ Cancer Centre. Internationally, she has collaborated with researchers from a range of institutions including HeLEX at Oxford, University of Toronto and University of Alberta, Canada and University of Iowa and University of Indiana in the US.

Awards

Margaret is a Fellow of the Australian Academy of Law.

Current projects

Margaret is a Chief Investigator on the following grants:

From Discovery to Therapy in Genetic Eye Disease (2018-2021) NHMRC, Centre of Research Excellence led by Professor David Mackey, University of Western Australia ($2,498,223)

Genomic Data Sharing: Issues in Law, Research, Ethics and Society, ARC Discovery Project, (2018-2021) led by Professor Dianne Nicol ($614,454) see further https://www.utas.edu.au/law-and-genetics/research-and-projects/genomic-data-sharing-issues-in-law,-research-ethics-and-society

Returning Raw Genomic Data: Patient Autonomy or Legal Minefield?  funded by the Medical Research Future Fund, Genomics Health Futures Missions, ELSI Scheme, (2020-2022) led by Associate Professor Jane Nielsen ($388,026)

Moratorium on Genetic Testing and Life Insurance: Monitoring the Impact (2020-2022) funded by the Medical Research Future Fund, Genomics Health Futures Missions, ELSI Scheme, led by Associate Professor Paul Lacaze, Monash University ($499,999) https://www.monash.edu/medicine/a-glimmer/home

Fields of Research

  • Public law (480799)
  • Other law and legal studies (489999)
  • Medical and health law (480412)
  • Family law (480402)
  • Labour law (480104)
  • Bioethics (500101)
  • Health services and systems (420399)
  • Law and society and socio-legal research (480405)
  • Criminal law (480401)
  • International humanitarian and human rights law (480307)
  • Privacy and data rights (480706)
  • Medical ethics (500106)
  • Ethical use of new technology (500103)
  • Preventative health care (420605)
  • Legal theory, jurisprudence and legal interpretation (480410)
  • Law reform (480406)
  • Public health nutrition (321005)
  • Genetics (310599)
  • Food sustainability (300606)
  • Human rights and justice issues (excl. law) (500104)
  • Genomics (310509)
  • Health policy (440706)
  • Health counselling (420307)
  • Access to justice (480501)
  • Research, science and technology policy (440710)
  • Oncology and carcinogenesis (321199)
  • Professional ethics (500107)
  • Legal institutions (incl. courts and justice systems) (480504)
  • Applied ethics (500199)
  • Social psychology (520505)
  • Social policy (440712)
  • Property law (excl. intellectual property law) (480604)
  • Public policy (440709)
  • Intellectual property law (480603)
  • Australian history (430302)
  • Comparative law (480302)
  • Commercial law (480102)
  • Administrative law (480701)

Research Objectives

  • Justice and the law (230499)
  • Law reform (230405)
  • Expanding knowledge in human society (280123)
  • Expanding knowledge in psychology (280121)
  • Other health (209999)
  • Bioethics (130301)
  • Expanding knowledge in law and legal studies (280117)
  • Clinical health (200199)
  • Health status (incl. wellbeing) (200407)
  • Environmental ethics (130303)
  • Law enforcement (230404)
  • Design (130101)
  • Evaluation of health and support services (200299)
  • Public health (excl. specific population health) (200499)
  • Civil justice (230401)
  • Other law, politics and community services (239999)
  • Understanding Australia's past (130703)
  • Preventive medicine (200412)
  • Health policy evaluation (200205)
  • Environmental policy, legislation and standards (190299)
  • Social structure and health (200207)
  • Technological and organisational innovation (150306)
  • Health inequalities (200204)
  • Expanding knowledge in the environmental sciences (280111)
  • Technological ethics (130305)

Publications

Margaret has published extensively in the field of health law and ethics, including a book with Oxford University Press (UK) (Voluntary Euthanasia and the Common Law 1997), a number of monographs, book chapters and more than 100 peer reviewed journal publications.

Margaret publishes in peer reviewed law journals as well as biomedical, bioethics and social sciences journals, reflecting the inter-disciplinary nature of her work. Given the strong focus on law and policy reform in Margaret’s work, she also endeavours to disseminate her research through other channels. This has included numerous written submissions to law reform bodies and public inquiries as well as providing oral evidence on invitation. She has also authored/co-authored various consultancy reports for national and state bodies including the HMRC (Biobanks Information Paper, 2010) and the National Bioethics Consultative Committee, Discussion Paper Surrogacy, Implementation, October 1990.

Margaret has been a member of a number of Editorial Boards, including the Australian Journal of Family Law 1999-2021; Australian Health Law Bulletin 1998-2013; Journal of Bioethical Inquiry 2006-2013; Australian Journal of Labour Law 1992-2008; and AGENDA: A Journal of Policy Analysis and Reform 2004-2006. She has also acted as referee for numerous journals to review manuscripts in health law and ethics.

Total publications

283

Highlighted publications

(7 outputs)
YearTypeCitationAltmetrics
2005Journal ArticleOtlowski MFA, 'Use of Genetic Test Information in Life Insurance: An Evaluation of Different Regulatory Models', Journal of International Biotechnology Law, 2/2005, (3) pp. 99-104. ISSN 1612-6068 (2005) [Refereed Article]

[eCite] [Details]

2005Journal ArticleOtlowski MFA, 'Exploring the Concept of Genetic Discrimination', Journal of Bioethical Inquiry, 2, (3) pp. 165-176. ISSN 1176-7529 (2005) [Refereed Article]

DOI: 10.1007/BF02448597 [eCite] [Details]

Citations: Scopus - 12

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2004Journal ArticleOtlowski MFA, 'An exploration of the legal and socio-ethical implications of predictive genetic testing of children', Australian Journal of Family Law, 18, (2) pp. 147-169. ISSN 0817-623X (2004) [Refereed Article]

PMID: 17058338 [eCite] [Details]

Citations: Scopus - 6

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2002Journal ArticleOtlowski MFA, 'Employers' Use of Genetic Test Information: Is There a Need for Regulation?', Australian Journal of Labour Law, 15, (1) pp. 1-39. ISSN 1030-7222 (2002) [Refereed Article]

[eCite] [Details]

2001Chapter in BookOtlowski MFA, 'The Effectiveness of Legal Control of Euthanasia Lessons from Comparative Law', Regulating Physician-Negotiated Death, Elsevier, Albert Klijn, Margaret Otlowski, Margo Trappenburg (ed), Gravenhage, pp. 137-156. ISBN 90-5749-751-4 (2001) [Research Book Chapter]

[eCite] [Details]

2000Journal ArticleOtlowski MFA, 'Resolving the Conundrum: Should Insurers be Entitled to Access to Genetic Test Information', Insurance Law Journal, 11, (3) pp. 193-215. ISSN 1030-2379 (2000) [Refereed Article]

[eCite] [Details]

2000BookOtlowski MFA, 'Voluntary Euthanasia and the Common Law', Oxford University Press, New York, pp. 564. ISBN 0-19-825996-4 (2000) [Revision/New Edition]

[eCite] [Details]

Journal Article

(181 outputs)
YearCitationAltmetrics
2021Joly Y, Huerne K, Arych M, Bombard Y, De Paor A, et al., 'The Genetic Discrimination Observatory: confronting novel issues in genetic discrimination', Trends in Genetics, 37, (11) pp. 951-954. ISSN 0168-9525 (2021) [Refereed Article]

DOI: 10.1016/j.tig.2021.08.004 [eCite] [Details]

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2021Kent K, Visentin D, Peterson C, Primo C, Elliott C, et al., 'The perceived importance and intended purchasing patterns of sustainable foods in Australian university students', Sustainability, 13, (21) pp. 1-17. ISSN 2071-1050 (2021) [Refereed Article]

DOI: 10.3390/su132111928 [eCite] [Details]

Co-authors: Kent K; Visentin D; Peterson C; Primo C; Elliott C; Murray S

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2021Murray S, Peterson C, Primo Perez C, Elliott C, Otlowski M, et al., 'Prevalence of food insecurity and satisfaction with on-campus food choices among Australian university students', International Journal of Sustainability in Higher Education ISSN 1467-6370 (2021) [Refereed Article]

DOI: 10.1108/IJSHE-09-2020-0348 [eCite] [Details]

Citations: Scopus - 3Web of Science - 3

Co-authors: Murray S; Peterson C; Primo Perez C; Elliott C; Auckland S; Kent K

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2021Tiller J, Bilkey G, Macintosh R, O'Sullivan S, Groube S, et al., 'Disclosing genetic information to family members without consent in Australia', Privacy Law Bulletin, 17, (9) pp. 170-172. ISSN 1449-8227 (2021) [Professional, Non Refereed Article]

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2021Tiller J, McInerney-Leo A, Belcher A, Boughtwood T, Gleeson P, et al., 'Study protocol: the Australian genetics and life insurance moratorium - monitoring the effectiveness and response (A-GLIMMER) project', BMC Medical Ethics, 22, (1) Article 63. ISSN 1472-6939 (2021) [Refereed Article]

DOI: 10.1186/s12910-021-00634-2 [eCite] [Details]

Citations: Scopus - 2Web of Science - 2

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2021Tiller J, Winship I, Otlowski MFA, Lacaze PA, 'Monitoring the genetic testing and life insurance moratorium in Australia: a national research project', Medical Journal of Australia, 214, (4) pp. 157-159. ISSN 0025-729X (2021) [Professional, Refereed Article]

DOI: 10.5694/mja2.50922 [eCite] [Details]

Citations: Scopus - 5Web of Science - 4

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2021Tiller JM, Keogh LA, McInerney-Leo AM, Belcher A, Barlow-Stewart K, et al., 'A step forward, but still inadequate: Australian health professionals' views on the genetics and life insurance moratorium', Journal of Medical Genetics Article 107989. ISSN 0022-2593 (2021) [Refereed Article]

DOI: 10.1136/jmedgenet2021-107989 [eCite] [Details]

Citations: Web of Science - 5

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2020Craig JM, Cutler TL, Murphy K, Rankin M, Denton J, et al., 'The importance of zygosity knowledge for twins, parents and professionals', International Journal of Birth and Parent Education, 7, (3) pp. 6-12. ISSN 2054-0779 (2020) [Professional, Refereed Article]

[eCite] [Details]

2020Dive L, Critchley C, Otlowski M, Mason P, Wiersma M, et al., 'Public trust and global biobank networks', BMC Medical Ethics, 21 Article 73. ISSN 1472-6939 (2020) [Refereed Article]

DOI: 10.1186/s12910-020-00515-0 [eCite] [Details]

Citations: Scopus - 3Web of Science - 2

Co-authors: Critchley C

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2020Joly Y, Dalpe G, Dupras C, Beviere-Boyer B, de Paor A, et al., 'Establishing the International Genetic Discrimination Observatory', Nature Genetics, 52, (5) pp. 466-468. ISSN 1061-4036 (2020) [Contribution to Refereed Journal]

DOI: 10.1038/s41588-020-0606-5 [eCite] [Details]

Citations: Scopus - 6Web of Science - 10

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2020McWhirter R, Eckstein L, Chalmers D, Critchley C, Nielsen J, et al., 'A scenario-based methodology for analyzing the ethical, legal, and social issues in genomic data sharing', Journal of Empirical Research on Human Research Ethics, 15, (4) pp. 355-364. ISSN 1556-2654 (2020) [Refereed Article]

DOI: 10.1177/1556264620920460 [eCite] [Details]

Co-authors: McWhirter R; Eckstein L; Chalmers D; Critchley C; Nielsen J; Nicol D

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2020Nicol D, Chalmers D, Critchley C, Eckstein L, Nielsen J, et al., 'Australian perspectives on the ethical and regulatory considerations for responsible data sharing in response to the COVID-19 pandemic', Journal of Law and Medicine, 27, (4) pp. 829-838. ISSN 1320-159X (2020) [Refereed Article]

PMID: 32880401 [eCite] [Details]

Citations: Web of Science - 1

Co-authors: Nicol D; Chalmers D; Critchley C; Eckstein L; Nielsen J

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2020Nicol D, Joly Y, Kaye J, Knoppers B, Meslin EM, et al., 'Don Chalmers: His contributions to legal research and education, health law, and research ethics, locally and globally', Journal of Law and Medicine, 28 pp. 289-297. ISSN 1320-159X (2020) [Letter or Note in Journal]

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Co-authors: Nicol D; Nielsen J; Warner K

2020Tiller J, Bilkey G, Macintosh R, O'Sullivan S, Groube S, et al., 'Disclosing genetic information to family members without consent: five Australian case studies', European Journal of Medical Genetics, 63, (11) Article 104035. ISSN 1769-7212 (2020) [Refereed Article]

DOI: 10.1016/j.ejmg.2020.104035 [eCite] [Details]

Citations: Scopus - 1Web of Science - 1

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2019Otlowski M, Tiller J, Barlow-Stewart K, Lacaze P, 'Genetic testing and insurance in Australia', Australian Journal of General Practice, 48, (3) pp. 96-99. ISSN 2208-7958 (2019) [Refereed Article]

DOI: 10.31128/AJGP-10-18-4722 [eCite] [Details]

Citations: Scopus - 10Web of Science - 8

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2019Tiller J, Morris S, Rice T, Barter K, Riaz M, et al., 'Genetic discrimination by Australian insurance companies: a survey of consumer experiences', European Journal of Human Genetics, 28 pp. 108-113. ISSN 1476-5438 (2019) [Refereed Article]

DOI: 10.1038/s41431-019-0426-1 [eCite] [Details]

Citations: Scopus - 12Web of Science - 37

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2018Barlow-Stewart K, Liepins M, Doble A, Otlowski M, 'How are genetic test results being used by Australian life insurers?', European Journal of Human Genetics, 26 pp. 1248-1256. ISSN 1018-4813 (2018) [Refereed Article]

DOI: 10.1038/s41431-018-0198-z [eCite] [Details]

Citations: Scopus - 6Web of Science - 26

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2018Eckstein L, Chalmers D, Critchley C, Jeanneret R, McWhirter R, et al., 'Australia: regulating genomic data sharing to promote public trust', Human Genetics, 137, (8) pp. 583-591. ISSN 1432-1203 (2018) [Refereed Article]

DOI: 10.1007/s00439-018-1914-z [eCite] [Details]

Citations: Scopus - 5Web of Science - 20

Co-authors: Eckstein L; Chalmers D; Critchley C; Jeanneret R; McWhirter R; Nielsen J; Nicol D

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2018Eckstein L, Otlowski M, 'Strategies to guide the return of genomic research findings: an Australian perspective', Journal of Bioethical Inquiry, 15, (3) pp. 403-415. ISSN 1176-7529 (2018) [Refereed Article]

DOI: 10.1007/s11673-018-9856-7 [eCite] [Details]

Citations: Scopus - 1

Co-authors: Eckstein L

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2018Tiller J, Keogh L, Wake S, Delatycki M, Otlowski M, et al., 'Genetics, insurance and professional practice: Survey of the Australasian clinical genetics workforce', Frontiers in Public Health, 6 Article 333. ISSN 2296-2565 (2018) [Refereed Article]

DOI: 10.3389/fpubh.2018.00333 [eCite] [Details]

Citations: Scopus - 7Web of Science - 5

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2017Newson AJ, TIller J, Keogh LA, Otlowski M, Lacaze P, 'Genetics and insurance in Australia: concerns around a self-regulated industry', Public Health Genomics, 20, (4) pp. 247-257. ISSN 1662-4246 (2017) [Refereed Article]

DOI: 10.1159/000481450 [eCite] [Details]

Citations: Scopus - 14Web of Science - 11

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2017Nicol D, Eckstein L, Morrison M, Sherkow JS, Otlowski M, et al., 'Key challenges in bringing CRISPR-mediated somatic cell therapy into the clinic', Genome Medicine, 9, (1) Article 85. ISSN 1756-994X (2017) [Contribution to Refereed Journal]

DOI: 10.1186/s13073-017-0475-4 [eCite] [Details]

Citations: Scopus - 10Web of Science - 9

Co-authors: Nicol D; Eckstein L; Burdon KP; Chalmers D; Charlesworth J; Dickinson JL; Hewitt AW; Mackey DA; Nielsen J; McWhirter RE

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2017Tiller J, Otlowski M, Lacaze P, 'Should Australia ban the use of genetic test results in life insurance?', Frontiers in Public Health, 5 Article 330. ISSN 2296-2565 (2017) [Refereed Article]

DOI: 10.3389/fpubh.2017.00330 [eCite] [Details]

Citations: Web of Science - 12

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2016Chalmers D, Nicol D, Kaye J, Bell J, Campbell AV, et al., 'Has the biobank bubble burst? Withstanding the challenges for sustainable biobanking in the digital era', BMC Medical Ethics, 17, (39) pp. 1-14. ISSN 1472-6939 (2016) [Refereed Article]

DOI: 10.1186/s12910-016-0124-2 [eCite] [Details]

Citations: Scopus - 58Web of Science - 64

Co-authors: Chalmers D; Nicol D; Whitton T

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2016Fleming J, Otlowski M, Stewart C, Critchley C, Kerridge I, 'Disclosure of individual research results and incidental findings in biobank research: Why we need an evidence-based approach', Journal of Law and Medicine, 24 pp. 89-95. ISSN 1320-159X (2016) [Refereed Article]

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Co-authors: Critchley C

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2016McWhirter RE, Otlowski M, 'Regulation of non-consensual genetic testing in Australia: use of samples from deceased persons', Journal of Law and Medicine, 24 pp. 150-165. ISSN 1320-159X (2016) [Refereed Article]

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Co-authors: McWhirter RE

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2016Nicol D, Bubela T, Chalmers D, Charbonneau J, Critchley C, et al., 'Precision medicine: drowning in a regulatory soup?', Journal of Law and the Biosciences, 3, (2) pp. 281-303. ISSN 2053-9711 (2016) [Refereed Article]

DOI: 10.1093/jlb/lsw018 [eCite] [Details]

Citations: Scopus - 15Web of Science - 15

Co-authors: Nicol D; Chalmers D; Charbonneau J; Dickinson J; Hewitt AW; McWhirter R

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2016Otlowski M, 'Ethical issues arising in the use of genomics in cancer', Cancer Forum, 40, (2) pp. 114-119. ISSN 0311-306X (2016) [Refereed Article]

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Citations: Web of Science - 1

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2016Souzeau E, Burdon KP, Mackey DA, Hewitt AW, Savarirayan R, et al., 'Ethical considerations for the return of incidental findings in ophthalmic genomic research', Translational Vision Science and Technology, 5, (1) pp. 1-11. ISSN 2164-2591 (2016) [Refereed Article]

DOI: 10.1167/tvst.5.1.3 [eCite] [Details]

Citations: Scopus - 7Web of Science - 7

Co-authors: Burdon KP; Mackey DA; Hewitt AW

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2015Critchley CR, Nicol D, Otlowski M, 'The impact of commercialisation and genetic data sharing arrangements on public trust and the intention to participate in biobank research', Public Health Genomics, 18 pp. 160-172. ISSN 1662-4246 (2015) [Refereed Article]

DOI: 10.1159/000375441 [eCite] [Details]

Citations: Scopus - 39Web of Science - 42

Co-authors: Critchley CR; Nicol D

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2015Critchley CR, Nicol D, Otlowski MFA, Chalmers DRC, 'Public reaction to direct-to-consumer online genetic tests: Comparing attitudes, trust and intentions across commercial and conventional providers', Public Understanding of Science, 24, (6) pp. 731-750. ISSN 0963-6625 (2015) [Refereed Article]

DOI: 10.1177/0963662513519937 [eCite] [Details]

Citations: Scopus - 23Web of Science - 22

Co-authors: Critchley CR; Nicol D; Chalmers DRC

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2015Fleming J, Critchley c, Otlowski M, Stewart C, Kerridge I, 'Attitudes of the general public towards the disclosure of individual research results and incidental findings from biobank genomic research in Australia', Internal Medicine Journal, 45, (12) pp. 1274-1279. ISSN 1444-0903 (2015) [Refereed Article]

DOI: 10.1111/imj.12911 [eCite] [Details]

Citations: Scopus - 16Web of Science - 14

Co-authors: Critchley c

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2015Otlowski MFA, 'Disclosing genetic information to at-risk relatives: new Australian privacy principles, but uniformity still elusive', Medical Journal of Australia, 202, (6) pp. 335-338. ISSN 0025-729X (2015) [Refereed Article]

DOI: 10.5694/mja14.00670 [eCite] [Details]

Citations: Scopus - 12

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2014Caulfield T, Burningham S, Joly Y, Master Z, Shabani M, et al., 'A review of the key issues associated with the commercialisation of biobanks', Journal of Law and the Biosciences, 1, (1) pp. 94-110. ISSN 2053-9711 (2014) [Refereed Article]

DOI: 10.1093/jlb/lst004 [eCite] [Details]

Citations: Scopus - 59Web of Science - 58

Co-authors: Nicol D

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2014Chalmers D, McWhirter RE, Nicol D, Whitton T, Otlowski M, et al., 'New avenues within community engagement: addressing the ingenuity gap in our approach to health research and future provision of health care', Journal of Responsible Innovation, 1, (3) pp. 321-328. ISSN 2329-9460 (2014) [Refereed Article]

DOI: 10.1080/23299460.2014.963002 [eCite] [Details]

Citations: Scopus - 8

Co-authors: Chalmers D; McWhirter RE; Nicol D; Whitton T; Critchley C; Dickinson JL

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2014Chalmers DRC, Nicol D, Otlowski MFA, 'To share or not to share is the question', Applied and Translational Genomics, 3, (4) pp. 116-119. ISSN 2212-0661 (2014) [Refereed Article]

DOI: 10.1016/j.atg.2014.09.011 [eCite] [Details]

Citations: Scopus - 7

Co-authors: Chalmers DRC; Nicol D

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2014McWhirter RE, Critchley CR, Nicol D, Chalmers DRC, Whitton TC, et al., 'Community Engagement for Big Epidemiology: Deliberative Democracy as a Tool', Journal of Personalized Medicine, 4, (4) pp. 459-474. ISSN 2075-4426 (2014) [Refereed Article]

DOI: 10.3390/jpm4040459 [eCite] [Details]

Co-authors: McWhirter RE; Critchley CR; Nicol D; Chalmers DRC; Whitton TC; Dickinson JL

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2013Chalmers D, Nicol D, Otlowski M, Critchley C, 'Personalised medicine in the genome era', Journal of Law and Medicine, 20, (3) pp. 577-594. ISSN 1320-159X (2013) [Refereed Article]

PMID: 23600190 [eCite] [Details]

Citations: Scopus - 8

Co-authors: Chalmers D; Nicol D; Critchley C

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2013Keogh LA, Otlowski MFA, 'Life insurance and genetic test results: a mutation carrier's fight to achieve full cover', Medical Journal of Australia, 199, (5) pp. 363-366. ISSN 0025-729X (2013) [Refereed Article]

DOI: 10.5694/mja13.10202 [eCite] [Details]

Citations: Scopus - 17Web of Science - 18

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2013Otlowski M, 'Australian reforms enabling disclosure of genetic information to genetic relatives by health practitioners', Journal of Law and Medicine, 21, (1) pp. 217-234. ISSN 1320-159X (2013) [Refereed Article]

PMID: 24218794 [eCite] [Details]

Citations: Scopus - 8

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2013Otlowski MFA, 'Establishing the offense of non-consensual genetic testing in Australia: a call for action', Journal of Law and Medicine, 21, (2) pp. 335-342. ISSN 1320-159X (2013) [Refereed Article]

PMID: 24597382 [eCite] [Details]

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2012Critchley C, Nicol D, Otlowski MFA, Stranger MJA, 'Predicting intention to biobank: a national survey', European Journal of Public Health, 22, (1) pp. 139-144. ISSN 1101-1262 (2012) [Refereed Article]

DOI: 10.1093/eurpub/ckq136 [eCite] [Details]

Citations: Scopus - 48Web of Science - 50

Co-authors: Nicol D; Stranger MJA

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2012Otlowski M, Taylor S, Bombard Y, 'Genetic discrimination: international perspectives', Annual Review of Genomics and Human Genetics, 13 pp. 433-454. ISSN 1527-8204 (2012) [Refereed Article]

DOI: 10.1146/annurev-genom-090711-163800 [eCite] [Details]

Citations: Scopus - 83Web of Science - 73

Co-authors: Taylor S

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2012Otlowski MFA, 'Tackling legal challenges posed by population biobanks: reconceptualising consent requirements', Medical Law Review, 20, (2) pp. 191-226. ISSN 0967-0742 (2012) [Refereed Article]

DOI: 10.1093/medlaw/fwr035 [eCite] [Details]

Citations: Scopus - 12Web of Science - 13

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2012Rahman B, Meiser B, Sachdev P, Barlow-Stewart K, Otlowski M, et al., 'To know or not to know: an update of the literature on the psychological and behavioral impact of genetic testing for Alzheimer disease risk', Genetic Testing and Molecular Biomarkers, 16, (8) pp. 935-942. ISSN 1945-0265 (2012) [Refereed Article]

DOI: 10.1089/gtmb.2011.0300 [eCite] [Details]

Citations: Scopus - 19Web of Science - 18

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2011Devereaux L, Campbell I, Dawson MT, Fox S, Hopper J, et al., 'lifepool: A collaboration between Women and Researchers', Biopreservation and Biobanking, 9, (1) pp. 72. ISSN 1947-5535 (2011) [Letter or Note in Journal]

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2011Otlowski MFA, 'An overview of the NHMRC's medical genetic testing information paper for health professionals', Australian Health Law Bulletin, 19, (2) pp. 22-26. ISSN 1038-1473 (2011) [Non Refereed Article]

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2011Otlowski MFA, 'Getting the Law Right on Physician-Assisted Death', Amsterdam Law Forum, 3, (1) pp. 127-138. ISSN 1876-8156 (2011) [Non Refereed Article]

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2011Otlowski MFA, 'Hepburn v Noble', Family Law Review, 1, (3) pp. 184-188. ISSN 1837-8757 (2011) [Contribution to Refereed Journal]

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2010Bartels L, Otlowski M, 'A right to die? Euthanasia and the law in Australia', Journal of Law and Medicine, 17, (4) pp. 532-555. ISSN 1320-159X (2010) [Refereed Article]

PMID: 20329456 [eCite] [Details]

Citations: Scopus - 9

Co-authors: Bartels L

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2010Otlowski M, Nicol D, Stranger M, 'Biobanks Information Paper 2010', Journal of Law and Information Science, 20, (1) pp. 87-205. ISSN 0729-1485 (2010) [Refereed Article]

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Co-authors: Nicol D; Stranger M

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2010Otlowski MFA, 'Tackling genetic discrimination: taking a look at GINA in the context of other reform developments', Roche Institute Current Comments (2010) [Professional, Non Refereed Article]

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2010Otlowski MFA, 'Recent cases: Price v Underwood', Family Law Review, 1, (1) pp. 46-48. ISSN 1837-8757 (2010) [Contribution to Refereed Journal]

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2010Otlowski MFA, 'Recent cases: Baker v Landon', Family Law Review, 1, (2) pp. 106-110. ISSN 1837-8757 (2010) [Contribution to Refereed Journal]

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2010Otlowski MFA, 'Recent cases: Simpson v Brockmann', Family Law Review, 1, (1) pp. 49-50. ISSN 1837-8757 (2010) [Contribution to Refereed Journal]

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2010Otlowski MFA, 'Donnell v Dovey', Family Law Review, 1, (2) pp. 111-117. ISSN 1837-8757 (2010) [Contribution to Refereed Journal]

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2010Otlowski MFA, 'Z (A Solicitor) v Limousin', Family Law Review, 1, (2) pp. 122-126. ISSN 1837-8757 (2010) [Contribution to Refereed Journal]

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2010Otlowski MFA, Nicol D, 'The NHMRC Biobanks Information Paper (2010): an overview', Australian Health Law Bulletin, 18, (8-9) pp. 115-117. ISSN 1038-1473 (2010) [Non Refereed Article]

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Co-authors: Nicol D

2010Otlowski MFA, Stranger MJA, Taylor SD, Barlow-Stewart K, Treloar S, 'Practices and Attitudes of Australian Employers in Relation to the Use of Genetic Information: Report on a National Study', Comparative Labor Law and Policy Journal, 31, (4) pp. 637-691. ISSN 1095-6654 (2010) [Refereed Article]

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Co-authors: Stranger MJA; Taylor SD

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2009Barlow-Stewart K, Taylor SD, Treloar SA, Stranger M, Otlowski MFA, 'Verification of consumers' experiences and perceptions of genetic discrimination and its impact on utilization of genetic testing', Genetics in Medicine, 11, (3) pp. 193-201. ISSN 1098-3600 (2009) [Refereed Article]

DOI: 10.1097/GIM.0b013e318194ee75 [eCite] [Details]

Citations: Scopus - 49Web of Science - 42

Co-authors: Taylor SD; Stranger M

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2009Otlowski MFA, 'LK v Director-General, Department of Community Services', Current Family Law, 14, (2) pp. 103-106. ISSN 1037-6631 (2009) [Non Refereed Article]

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2009Otlowski MFA, 'Keaton v Aldridge', Current Family Law, 14, (2) pp. 107-112. ISSN 1037-6631 (2009) [Non Refereed Article]

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2009Otlowski MFA, 'Re Susan', Current Family Law, 14, (3) pp. 158-162. ISSN 1037-6631 (2009) [Non Refereed Article]

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2009Otlowski MFA, 'Zhao v Xie', Current Family Law, 14, (1) pp. 58-62. ISSN 1037-6631 (2009) [Non Refereed Article]

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2009Otlowski MFA, 'Forbes v Bream', Current Family Law, 14, (1) pp. 51-53. ISSN 1037-6631 (2009) [Non Refereed Article]

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2009Otlowski MFA, 'House of Lords directs DPP to clarify assisted suicide law', Australian Health Law Bulletin, 18, (1&2) pp. 6-8. ISSN 1038-1473 (2009) [Non Refereed Article]

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2008Caufield T, McGuire A, Cho M, Buchanan J, Burgess M, et al., 'Research Ethics Recommendations for Whole-Genome Research: Consensus Statement', PLoSBiology, 6, (3) Article e73. ISSN 1544-9173 (2008) [Refereed Article]

DOI: 10.1371/journal.pbio.0060073 [eCite] [Details]

Citations: Scopus - 189Web of Science - 179

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2008Otlowski MFA, 'Dacia v Bennington', Current Family Law, 13, (4) pp. 220-223. ISSN 1037-6631 (2008) [Letter or Note in Journal]

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2008Otlowski MFA, 'Tyagi v Meares (SSAT Appeal)', Current Family Law, 13, (4) pp. 224-226. ISSN 1037-6631 (2008) [Letter or Note in Journal]

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2008Otlowski MFA, 'Australian Developments With Regard To Regulation of Embryonic Stem Cell Research and Therapeutic Human Cloning', Journal of International Biotechnology Law , 05, (01) pp. 37-44. ISSN 1612-6068 (2008) [Contribution to Refereed Journal]

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2008Otlowski MFA, 'Key Themes in the Policy Debate on Human Genetic Research and Genetic Databanks: An Evaluation', Journal of International Biotechnology Law, 05, (04) pp. 143-152. ISSN 1612-6068 (2008) [Refereed Article]

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2008Otlowski MFA, 'Sankil v Sankil', Current Family Law, 13, (2) pp. 107-111. ISSN 1037-6631 (2008) [Letter or Note in Journal]

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2008Otlowski MFA, 'P v S (No 2)', Current Family Law, 13, (2) pp. 112-116. ISSN 1037-6631 (2008) [Letter or Note in Journal]

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2008Otlowski MFA, 'Assisted Dying and Legal Change', Medical Law Review, 16, (2) pp. 313-319. ISSN 0967-0742 (2008) [Letter or Note in Journal]

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2008Otlowski MFA, 'Genetic Testing of Children', Reform, Winter 2008, (92) pp. 62-66. ISSN 0313-153X (2008) [Non Refereed Article]

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2008Stranger MJA, Bell EJ, Nicol D, Otlowski MFA, Chalmers DRC, 'Human genetic databanks in Australia: indications of inconsistency and confusion', New Genetics and Society, 27, (4) pp. 311-321. ISSN 1463-6778 (2008) [Refereed Article]

DOI: 10.1080/14636770802485400 [eCite] [Details]

Citations: Scopus - 6Web of Science - 5

Co-authors: Stranger MJA; Bell EJ; Nicol D; Chalmers DRC

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2008Taylor SD, Treloar S, Barlow-Stewart K, Stranger MJA, Otlowski MFA, 'Investigating genetic discrimination in Australia: a large-scale survey of clinical genetics clients', Clinical Genetics, 74, (1) pp. 20-30. ISSN 0009-9163 (2008) [Refereed Article]

DOI: 10.1111/j.1399-0004.2008.01016.x [eCite] [Details]

Citations: Scopus - 61Web of Science - 47

Co-authors: Taylor SD; Stranger MJA

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2007Otlowski MFA, 'Donor Perspectives on Issues Associated with Donation of Genetic Samples and Information: An Australian Viewpoint', Journal of bioethical inquiry, 4, (2) pp. 135-150. ISSN 1176-7529 (2007) [Refereed Article]

DOI: 10.1007/s11673-007-9055-4 [eCite] [Details]

Citations: Scopus - 7Web of Science - 8

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2007Otlowski MFA, 'Disclosure of genetic information to at-risk relatives: recent amendments to the Privacy Act 1988 (Cwlth)', The Medical Journal of Australia, 187, (7) pp. 398-399. ISSN 0025-729X (2007) [Refereed Article]

DOI: 10.5694/j.1326-5377.2007.tb01311.x [eCite] [Details]

Citations: Scopus - 14Web of Science - 10

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2007Otlowski MFA, 'Aspen v Selby', Current Family Law, 13, (1) pp. 30-33. ISSN 1037-6631 (2007) [Letter or Note in Journal]

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2007Otlowski MFA, 'OS v PS', Current Family Law, 13, (1) pp. 3437. ISSN 1037-6631 (2007) [Letter or Note in Journal]

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2007Otlowski MFA, Stranger MJA, Barlow-Stewart K, Taylor SD, Treloar S, 'Investigating genetic discrimination in the Australian life insurance sector: The use of genetic test results in underwriting, 1999-2003', Journal of Law and Medicine, 14, (February 2007) pp. 367-396. ISSN 1320-159X (2007) [Refereed Article]

PMID: 17355100 [eCite] [Details]

Citations: Scopus - 29

Co-authors: Stranger MJA; Taylor SD

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2007Otlowski MFA, Stranger MJA, Taylor S, Barlow-Stewart K, Treloar S, 'The Use of Legal Remedies in Australia for Pursuing Allegations of Genetic Discrimination: Findings of an Empirical Study', International Journal of Discrimination and the Law, 9, (1) pp. 3-36. ISSN 1358-2291 (2007) [Refereed Article]

DOI: 10.1177/135822910700900102 [eCite] [Details]

Citations: Scopus - 16

Co-authors: Stranger MJA

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2007Taylor SD, Treloar S, Barlow-Stewart K, Otlowski MFA, Stranger MJA, 'Investigating Genetic Discrimination in Australia: Perceptions and Experiences of Clinical Genetics Service Clients Regarding Coercion to Test, Insurance and Employment', Australian Journal of Emerging Technologies and Society, 5, (2) pp. 83. ISSN 1449-0706 (2007) [Refereed Article]

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Citations: Scopus - 17

Co-authors: Taylor SD; Stranger MJA

2006Otlowski MFA, 'Essentially Yours: The Protection of Human Genetic Information in Australia', Gene Watch, 19, (16) pp. 9-12. ISSN 1523-2816 (2006) [Non Refereed Article]

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2006Otlowski MFA, 'The Lockhart Report on Human Cloning and the Regulation of Research Involving Human Embryos: An Overview ', Health Law Bulletin, 15, (2 and 3) pp. 20-24. ISSN 1038-1473 (2006) [Non Refereed Article]

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2006Otlowski MFA, 'D v C', Current Family Law, 12, (2) pp. 101-104. ISSN 1037-6631 (2006) [Letter or Note in Journal]

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2006Otlowski MFA, 'KB v TC', Current Family Law, 12, (2) pp. 112-117. ISSN 1037-6631 (2006) [Letter or Note in Journal]

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2006Otlowski MFA, 'Re AM', Current Family Law, 12, (4) pp. 206-210. ISSN 1037-6631 (2006) [Letter or Note in Journal]

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2006Otlowski MFA, 'Miller v Miller; McFarlane v McFarlane', Current Family Law, 12, (4) pp. 210-215. ISSN 1037-6631 (2006) [Letter or Note in Journal]

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2006Otlowski MFA, 'R v C', Current Family Law, 12, (247) pp. 263-266. ISSN 1037-6631 (2006) [Letter or Note in Journal]

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2005Nicol D, Otlowski MFA, 'Examining Legal and Ethical Implications of Genetics in Australia', Australian Health Law Bulletin, 13, (6) pp. 65-69. ISSN 1038-1473 (2005) [Non Refereed Article]

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Co-authors: Nicol D

2005Otlowski MFA, 'Use of Genetic Test Information in Life Insurance: An Evaluation of Different Regulatory Models', Journal of International Biotechnology Law, 2/2005, (3) pp. 99-104. ISSN 1612-6068 (2005) [Refereed Article]

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2005Otlowski MFA, 'Exploring the Concept of Genetic Discrimination', Journal of Bioethical Inquiry, 2, (3) pp. 165-176. ISSN 1176-7529 (2005) [Refereed Article]

DOI: 10.1007/BF02448597 [eCite] [Details]

Citations: Scopus - 12

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2005Otlowski MFA, 'Pro Helvetia', Lithuanian Papers, 19 - 2005 pp. 33-35. ISSN 1031-3958 (2005) [Non Refereed Article]

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2005Otlowski MFA, 'Page v Glover', Current Family Law, 11, (1) pp. 56-58. ISSN 1037-6631 (2005) [Letter or Note in Journal]

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2004Otlowski MFA, 'An exploration of the legal and socio-ethical implications of predictive genetic testing of children', Australian Journal of Family Law, 18, (2) pp. 147-169. ISSN 0817-623X (2004) [Refereed Article]

PMID: 17058338 [eCite] [Details]

Citations: Scopus - 6

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2004Otlowski MFA, 'Legislative developments in Australia with regard to regulation of research involving human embryos and human cloning: implications for embryonic stem cell research', Australian Health Law Bulletin, 12, (5) pp. 57-66. ISSN 1038-1473 (2004) [Non Refereed Article]

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2004Otlowski MFA, 'Public interest determinations and the NPPs: collection of family medical history', Privacy Law Bulletin, 1, (1) pp. 1-5. ISSN 1449-8227 (2004) [Non Refereed Article]

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2004Otlowski MFA, 'Update on ACCC's decision on the IFSA Genetic Testing Policy', Australian Insurance Law Bulletin, 19, (6) pp. 65-67. ISSN 1035-1639 (2004) [Professional, Non Refereed Article]

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2004Otlowski MFA, 'Re B (Alleged Apprehension of Bias)', Current Family Law, 10, (6) pp. 296-301. ISSN 1037-6631 (2004) [Letter or Note in Journal]

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2004Otlowski MFA, 'BvM', Current Family Law, 10, (2) pp. 92-95. ISSN 1037-6631 (2004) [Letter or Note in Journal]

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2004Otlowski MFA, 'Re Alex: Hormonal Treatment for Gender Identity Dysphoria', Current Family Law, 10, (4) pp. 196-200. ISSN 1037-6631 (2004) [Letter or Note in Journal]

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2004Otlowski MFA, 'Book Review - 'Angels of Death: Exploring the Euthanasia Underground'', Journal of Medical Ethics, 30, (e004) pp. 1-2. ISSN 0306-6800 (2004) [Letter or Note in Journal]

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2004Taylor SD, Otlowski MFA, Barlow-Stewart K, Treloar S, Stranger MJA, et al., 'Investigating genetic discrimination in Australia: opportunities and challenges in the early stages', New Genetics and Society, 23, (2) pp. 225-239. ISSN 1463-6778 (2004) [Refereed Article]

DOI: 10.1080/1463677042000237053 [eCite] [Details]

Citations: Scopus - 22Web of Science - 21

Co-authors: Stranger MJA

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2004Treloar S, Taylor SD, Otlowski MFA, Barlow-Stewart K, Stranger MJA, et al., 'Methodological Considerations in the Study of Genetic Discrimination', Community Genetics, 7, (4) pp. 161-168. ISSN 1422-2795 (2004) [Refereed Article]

DOI: 10.1159/000082254 [eCite] [Details]

Citations: Scopus - 22Web of Science - 17

Co-authors: Taylor SD; Stranger MJA

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2003Otlowski MFA, 'Genetic Testing of Children: Implications for Insurance', Centre for Law and Genetics, 1, (Occasional Paper No. 5) pp. 24-41. ISSN 1445-2766 (2003) [Non Refereed Article]

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2003Otlowski MFA, 'HR and DR v Minister for Immigration and Multicultural and Indigenous Affairs', Current Family Law, 9, (6) pp. 309-315. ISSN 1037-6631 (2003) [Letter or Note in Journal]

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2003Otlowski MFA, 'Robson v Robson', Current Family Law, 9, (5) pp. 244-249. ISSN 1037-6631 (2003) [Letter or Note in Journal]

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2003Otlowski MFA, 'Ejee and Ejee', Current Family Law, 9, (2) pp. 96-98. ISSN 1037-6631 (2003) [Letter or Note in Journal]

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2003Otlowski MFA, 'Genetic Discrimination: Meeting the Challenges of an Emerging Issue', UNSW Law Journal - Forum, Genetics and the Law, 9, (2) pp. 15-18. ISSN 1447-7297 (2003) [Refereed Article]

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2003Otlowski MFA, 'Crown v Yarnold', Current Family Law, 9, (4) pp. 210-215. ISSN 1037-6631 (2003) [Letter or Note in Journal]

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2003Otlowski MFA, 'FJB v RNB', Current Family Law, 9, (3) pp. 148-152. ISSN 1037-6631 (2003) [Letter or Note in Journal]

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2003Otlowski MFA, 'The Adult Guardian and the Mother's Parents and B and the Child Representative', Current Family Law, 9, (2) pp. 51-56. ISSN 1037-6631 (2003) [Letter or Note in Journal]

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2003Otlowski MFA, 'ALRC/AHEC Report on the Protection of Genetic Information in Australia: Implications for the Employment Sector', Australian Journal of Labour Law, 16, (3) pp. 370-380. ISSN 1030-7222 (2003) [Letter or Note in Journal]

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2003Otlowski MFA, 'Essentially Yours: an overview of the ALRC/AHEC Report on the Protection of Human Genetic Information in Australia', Australian Health Law Bulletin, 12, (2) pp. 20-28. ISSN 1038-1473 (2003) [Professional, Non Refereed Article]

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2003Otlowski MFA, 'Genetic Discrimination: Meeting the Challenges of an Emerging Issue', The University of New South Wales Law Journal, 26, (3) pp. 764-769. ISSN 0313-0096 (2003) [Refereed Article]

PMID: 16617530 [eCite] [Details]

Citations: Scopus - 3

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2003Otlowski MFA, 'ALRC Report, Essentially Yours: The Protection of Human Genetic Information in Australia: Implications for Regulation of Parentage Testing', Australian Journal of Family Law, 17, (2) pp. 84-90. ISSN 0817-623X (2003) [Letter or Note in Journal]

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2003Otlowski MFA, Taylor SD, Barlow-Stewart K, 'Genetic discrimination: Too few data', European Journal of Human Genetics, 11, (1) pp. 1-2. ISSN 1018-4813 (2003) [Contribution to Refereed Journal]

DOI: 10.1038/sj.ejhg.5200910 [eCite] [Details]

Citations: Scopus - 15Web of Science - 14

Co-authors: Taylor SD

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2003Otlowski MFA, Williamson R, 'Ethical and legal issues and the 'new genetics'', The Medical Journal of Australia, 178, (11) pp. 582-585. ISSN 0025-729X (2003) [Refereed Article]

DOI: 10.5694/j.1326-5377.2003.tb05365.x [eCite] [Details]

Citations: Scopus - 7Web of Science - 2

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2003Reagan P, Hurst R, Cook L, Zbigniew Z, Otlowski MFA, et al., 'Physician-assisted death: dying with dignity?', The Lancet Neurology, 2, (10) pp. 637-643. ISSN 1474-4422 (2003) [Refereed Article]

DOI: 10.1016/S1474-4422(03)00536-2 [eCite] [Details]

Citations: Scopus - 8Web of Science - 6

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2002Otlowski MFA, 'Employers' Use of Genetic Test Information: Is There a Need for Regulation?', Australian Journal of Labour Law, 15, (1) pp. 1-39. ISSN 1030-7222 (2002) [Refereed Article]

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2002Otlowski MFA, 'Genetic Testing and Insurance: The Case for Regulation', AGENDA , 9, (4) pp. 335-354. ISSN 1322-1833 (2002) [Refereed Article]

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2002Otlowski MFA, 'What is the harm in it anyway?: Re Kevin and the recognition of transsexual marriage', Australian Journal of Family Law, 16, (2) pp. 146-155. ISSN 0817-623X (2002) [Refereed Article]

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2002Otlowski MFA, 'The Nancy Crick Case', Monash Bioethics Review, 21, (3) pp. 10-12. ISSN 1321-2753 (2002) [Letter or Note in Journal]

DOI: 10.1007/BF03351270 [eCite] [Details]

Citations: Scopus - 1

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2002Otlowski MFA, 'Protecting Genetic Privacy in the Research Context: Where to From Here', Macquarie Law Journal, 2, (1) pp. 87-118. ISSN 1445-386X (2002) [Refereed Article]

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2002Otlowski MFA, 'The Many-Sided Triangle: Adoption in Australia by Audrey Marshall and Margaret McDonald', Australian Journal of Family Law, 16, (3) pp. 253-258. ISSN 0817-623X (2002) [Letter or Note in Journal]

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2002Otlowski MFA, 'Euthanasia, Death with Dignity and the Law', Medical Law Review, 10, (2) pp. 238-244. ISSN 0967-0742 (2002) [Letter or Note in Journal]

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2002Otlowski MFA, McCrystal S, 'Reflections on the Industrial Relations Amendment Act 1999 (Tas) and Obstacles to Industrial Reform in Tasmania', Australian Journal of Labour Law, 15, (1) pp. 68-83. ISSN 1030-7222 (2002) [Professional, Non Refereed Article]

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2002Otlowski MFA, Taylor S, Barlow-Stewart K, 'Australian Empirical Study into Genetic Discrimination', Eubios Journal of Asian and International Bioethics, 12, (5) pp. 164-167. ISSN 1173-2571 (2002) [Letter or Note in Journal]

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2002Otlowski MFA, Taylor SD, Barlow-Stewart KK, 'Major Study Commencing into Genetic Discrimination in Australia', Journal of Law and Medicine, 10, (1) pp. 41-48. ISSN 1320-159X (2002) [Refereed Article]

PMID: 2002151903 [eCite] [Details]

Citations: Scopus - 14

Co-authors: Taylor SD

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2002Otlowski MFA, Taylor SD, Barlow-Stewart KK, 'Australian empirical study into genetic discrimination', Genetics in Medicine, 4, (5) pp. 392-395. ISSN 1098-3600 (2002) [Refereed Article]

DOI: 10.1097/00125817-200209000-00011 [eCite] [Details]

Citations: Scopus - 12Web of Science - 10

Co-authors: Taylor SD

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2001Nicol D, Otlowski MFA, Chalmers DRC, 'Consent, Commercialisation and Benefit-sharing', Journal of Law and Medicine, 9, (1) pp. 80-94. ISSN 1320-159X (2001) [Refereed Article]

PMID: 2002149509 [eCite] [Details]

Citations: Scopus - 17

Co-authors: Nicol D; Chalmers DRC

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2001Otlowski MFA, 'Avoiding genetic discrimination in insurance: An exploration of the legality and ethics of precautionary measures in anticipation of unfavourable test outcomes', Monash Bioethics Review, 20, (1) pp. 24-32. ISSN 1321-2753 (2001) [Refereed Article]

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2001Otlowski MFA, 'Review of the ACCC's decision on the IFSA genetic testing policy', Australian Insurance Law Bulletin, 16, (2) pp. 9-13. ISSN 1035-1639 (2001) [Professional, Non Refereed Article]

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2001Otlowski MFA, 'Consent Orders Set Aside in Circumstances where Parties Reconciled After Orders Implemented', Current Family Law, 7, (1) pp. 17-24. ISSN 1037-6631 (2001) [Letter or Note in Journal]

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2001Otlowski MFA, 'Issues of Procedural Fairness Arising in Relation to the Determination of the Asset pool in Property Proceedings - Trial Judge's Referral of Decision to Taxation Commissioner for Investigation of possible 'Tax Fraud'', Current Family Law, 7, (2) pp. 56-61. ISSN 1037-6631 (2001) [Letter or Note in Journal]

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2001Otlowski MFA, 'Disputed Paternity - Onus of Proof - Whether Mother Obliged to call Evidence to Disprove Paternity of Other People with Whom she had Intercourse', Current Family Law, 7, (3) pp. 98-101. ISSN 1037-6631 (2001) [Letter or Note in Journal]

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2001Otlowski MFA, 'De Facto Relationships - Joint Endeavour Principle - Claim for Compensation for Increment in Wealth of One Party Accruing During the Relationship', Current Family Law, 7, (4) pp. 134-138. ISSN 1037-6631 (2001) [Letter or Note in Journal]

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2001Otlowski MFA, 'Status of a Child Support Agreement Under the Child Support (Assessment) Act - Whether an 'Order for the Purpose of s.112AD of the Family Law Act 1989 (Cth)', Current Family Law, 7, (5) pp. 179-182. ISSN 1037-6631 (2001) [Letter or Note in Journal]

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2001Otlowski MFA, 'Residence - application to vary existing orders - whether test in Rice v Asplund applied and, if so, whether it was satisfied on the facts', Current Family Law, 7, (6) pp. 205-209. ISSN 1037-6631 (2001) [Letter or Note in Journal]

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2001Otlowski MFA, 'Is There Scope for Lawful Genetic Discrimination in Health Insurance in Australia?', Journal of Law and Medicine, 8, (4) pp. 427-432. ISSN 1320-159X (2001) [Refereed Article]

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2001Otlowski MFA, 'Employment Sector By-Passed by the Privacy Amendments', Australian Journal of Labour Law, 14, (2) pp. 169-177. ISSN 1030-7222 (2001) [Contribution to Refereed Journal]

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2001Otlowski MFA, 'Inquiry Underway in Australia on the Protection of Human Genetic Information', Genetics Law Monitor, 1, (6) pp. 6-9. ISSN 1471-3624 (2001) [Non Refereed Article]

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2001Otlowski MFA, 'A Review of the ACCC's decision on the IFSA genetic testing policy', Australian Health Law Bulletin, 9, (4) pp. 33-36. ISSN 1038-1473 (2001) [Professional, Non Refereed Article]

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2001Otlowski MFA, 'Inquiry Underway in Australia on the Protection of Human Genetic Information', Australian Health Law Bulletin, 9, (9) pp. 77-81. ISSN 1038-1473 (2001) [Non Refereed Article]

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2001Otlowski MFA, Klijn A, Trappenburg M, 'Regulating Physician-Negotiated Death' pp. 213. ISSN 1380-6424 (2001) [Edited Journal]

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2000Otlowski MFA, 'Resolving the Conundrum: Should Insurers be Entitled to Access to Genetic Test Information', Insurance Law Journal, 11, (3) pp. 193-215. ISSN 1030-2379 (2000) [Refereed Article]

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2000Otlowski MFA, 'Federal Court Rules Victoria's Infertility Treatment Act 1995 Discriminatory', Australian Health Law Bulletin, 9, (2) pp. 13-18. ISSN 1038-1473 (2000) [Professional, Non Refereed Article]

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2000Otlowski MFA, 'Dickson v Dickson', Current Family Law, 6, (1) pp. 36-43. ISSN 1037-6631 (2000) [Letter or Note in Journal]

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2000Otlowski MFA, 'Appeal Against Costs Judgment: Dickson v Dickson (No 2)', Current Family Law, 6, (2) pp. 93-96. ISSN 1037-6631 (2000) [Letter or Note in Journal]

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2000Otlowski MFA, 'Ivanovic v Ivanovic: Child Support - Application to vary a Lump Sum Order brought in Conjunction with an Application under s.85 of the Family Law Act to set aside a transaction in defeat of claim', Current Family Law, 6, (3) pp. 115-124. ISSN 1037-6631 (2000) [Letter or Note in Journal]

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2000Otlowski MFA, 'Johnson v Johnson: Application of Disqualification for Bias - Whether Trial Judge's Statement about Evidence to be Relied Upon gave rise to a reasonable Apprehension of Bias', Current Family Law, 6, (6) pp. 240-245. ISSN 1037-6631 (2000) [Letter or Note in Journal]

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2000Otlowski MFA, 'Re An Application Pursuant to the Births, Deaths and Marriages Registration Act 1997 (ACT)', Journal of Law and Medicine, 8, (2) pp. 164-166. ISSN 1020-159X (2000) [Letter or Note in Journal]

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2000Otlowski MFA, 'Hallinan v Witynski', Current Family Law, 6, (4) pp. 157-165. ISSN 1037-6631 (2000) [Letter or Note in Journal]

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1999Otlowski MFA, 'Insurers' Use of Genetic Information', Today's Life Science, 11, (1) pp. 16-20. ISSN 1033-6893 (1999) [Refereed Article]

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1999Otlowski MFA, 'Genetic Information in the Workplace', Today's Life Science, 11, (2) pp. 20-23. ISSN 1033-8693 (1999) [Refereed Article]

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1999Otlowski MFA, 'Re Evelyn - Reflections on Australia's First Litigated Surrogacy Case', Medical Law Review, 7, (1) pp. 38-57. ISSN 0967-0742 (1999) [Non Refereed Article]

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1999Otlowski MFA, 'McGillivray v Mitchell', Current Family Law, 5, (1) pp. 21-25. ISSN 1037-6631 (1999) [Letter or Note in Journal]

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1999Otlowski MFA, 'CDJ v VAJ', Current Family Law, 5, (1) pp. 31-41. ISSN 1037-6631 (1999) [Letter or Note in Journal]

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1999Otlowski MFA, 'Brown v George', Current Family Law, 5, (2) pp. 78-85. ISSN 1037-6631 (1999) [Letter or Note in Journal]

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1999Otlowski MFA, 'Richardson v Hough', Current Family Law, 5, (2) pp. 85-93. ISSN 1037-6631 (1999) [Letter or Note in Journal]

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1999Otlowski MFA, 'Webster v Webster', Current Family Law, 5, (3) pp. 128-136. ISSN 1037-6631 (1999) [Letter or Note in Journal]

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1999Otlowski MFA, 'CSN v JBN', Current Family Law, 5, (3) pp. 136-139. ISSN 1037-6631 (1999) [Letter or Note in Journal]

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1999Otlowski MFA, 'AB v Attorney-General (Vic)', Journal of Law and Medicine, 6, (3) pp. 226-229. ISSN 1320-159X (1999) [Letter or Note in Journal]

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1999Otlowski MFA, 'GWW v CMW', Journal of Law and Medicine, 7, (1) pp. 21-24. ISSN 1020-159X (1999) [Letter or Note in Journal]

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1999Otlowski MFA, 'Association's Ban on HIV Positive Player Ruled Discriminatory', Australian Health Law Bulletin, 7, (8) pp. 85-90. ISSN 1038-1473 (1999) [Professional, Non Refereed Article]

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1999Otlowski MFA, 'Blanch v Blanch', Current Family Law, 5, (4) pp. 182-187. ISSN 1037-6631 (1999) [Letter or Note in Journal]

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1999Otlowski MFA, 'Cooke v Stehbens', Current Family Law, 5, (4) pp. 190-194. ISSN 1037-6631 (1999) [Letter or Note in Journal]

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1999Otlowski MFA, 'De Facto Property Proceedings in Australia', Australian Journal of Family Law, 13, (2) pp. 177-182. ISSN 0817-623X (1999) [Letter or Note in Journal]

[eCite] [Details]

1998Otlowski MFA, 'The baby Evelyn surrogacy dispute escalates', Australian family law - family law news, 392, (September 1998) pp. 3-8. (1998) [Professional, Non Refereed Article]

[eCite] [Details]

1998Otlowski MFA, ''Re Evelyn': The Family Court's Foray into the Complex World of Surrogacy Arrangement', Australian family law - family law news, 390, (July 1998) pp. 5-9. (1998) [Professional, Non Refereed Article]

[eCite] [Details]

1998Otlowski MFA, 'Tasmanian Inquiry Rejects Legalisation of Voluntary Euthanasia', Australian Health Law Bulletin, 7, (2) pp. 13-16. ISSN 1038-1473 (1998) [Professional, Non Refereed Article]

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1998Otlowski MFA, 'The Law of Surrogacy in Australia and Some of the Issues Arising out of Re Evelyn', Current Family Law, 4, (6) pp. 258-269. ISSN 1037-6631 (1998) [Professional, Non Refereed Article]

[eCite] [Details]

1998Otlowski MFA, 'NSW Supreme Court Approves Adoption of Child Born Under Surrogacy Arrangement W: Re Adoption', Current Family Law, 4, (6) pp. 270-273. ISSN 1037-6631 (1998) [Letter or Note in Journal]

[eCite] [Details]

1998Otlowski MFA, Middleton SL, 'De Facto and Other Significant Relationships: Possible Tasmanian Direction for Reform', Australian Family Lawyer, 13, (1) pp. 25-29. ISSN 0817-6531 (1998) [Professional, Non Refereed Article]

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Co-authors: Middleton SL

1995Chalmers DRC, Otlowski MFA, Nicol D, Skene L, 'Current Research: Project on the Legal and Ethical Aspects of Genetic Research in Australia', Journal of Law and Medicine, 3, (1) pp. 30-35. ISSN 1320-159X (1995) [Refereed Article]

[eCite] [Details]

Co-authors: Chalmers DRC; Nicol D

1995Chalmers DRC, Otlowski MFA, Nicol D, Skene L, 'Legal and ethical implications of human genetic research: Australian perspectives', Law and the Human Genome Review, 3 pp. 211-220. ISSN 1134-7708 (1995) [Non Refereed Article]

[eCite] [Details]

Co-authors: Chalmers DRC; Nicol D

1995Otlowski MFA, 'Legal and Ethical Issues in Palliative Care', Monash Bioethics Review, 15 pp. 33-47. ISSN 1321-2753 (1995) [Refereed Article]

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1995Otlowski MFA, 'Euthanasia', Alternative Law Journal, 20 pp. 90-91, 93. ISSN 1037-969X (1995) [Non Refereed Article]

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1995Otlowski MFA, 'Industrial Relations Amendment Act 1994 (Tas)', Australian Industrial Digest, 2, (2) pp. 37-41. ISSN 1039-6896 (1995) [Professional, Non Refereed Article]

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Book

(5 outputs)
YearCitationAltmetrics
2001Otlowski MFA, 'Implications of Genetic Testing for Australian Insurance Law and Practice', University of Tasmania, Hobart, pp. 85. (2001) [Authored Other Book]

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2001Otlowski MFA, 'Implications of Genetic Testing for Australian Employment Law and Practice', University of Tasmania, Hobart, pp. 96. (2001) [Authored Other Book]

[eCite] [Details]

2000Otlowski MFA, 'Voluntary Euthanasia and the Common Law', Oxford University Press, New York, pp. 564. ISBN 0-19-825996-4 (2000) [Revision/New Edition]

[eCite] [Details]

1997Finlay HL, Otlowski MFA, Bailey-Harris R, 'Family Law in Australia', Butterworths, Sydney, pp. 579. ISBN 0-409-31057-3 (1997) [Authored Other Book]

[eCite] [Details]

Co-authors: Finlay HL

1997Otlowski MFA, 'Voluntary Euthanasia and the Common Law', Oxford University Press, Oxford, pp. 564. ISBN 0-19-825996-4 (1997) [Authored Research Book]

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Chapter in Book

(14 outputs)
YearCitationAltmetrics
2021Otlowski M, Freckelton I, 'Health Research and COVID-19', Pandemics, Public Health Emergencies and Government Powers, The Federation Press, B Bennett and I Freckelton (ed), Australia, pp. 330-352. ISBN 9781760022969 (2021) [Research Book Chapter]

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2018Otlowski M, Eckstein L, McWhirter R, 'Regulation of Genetic Testing', Health Law in Australia, Thomson Reuters (Professional) Australia, B White, F McDonald, L Willmott (ed), Australia, pp. 839-874. ISBN 9780455238753 (2018) [Revised Book Chapter]

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Co-authors: Eckstein L; McWhirter R

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2017Otlowski MFA, Eckstein LG, 'Genetic privacy', Tensions and Traumas in Health Law, The Federation Press, I Freckelton, K Petersen (ed), Australia, pp. 283-296. ISBN 9781760021498 (2017) [Research Book Chapter]

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Co-authors: Eckstein LG

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2014Otlowski MFA, 'Regulation of Genetic Technologies', Health in Law Australia, Thomson Reuters, Ben White, Fiona McDonald and Lindy Willmott (ed), Australia, pp. 801-833. ISBN 9780455231549 (2014) [Research Book Chapter]

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2013Otlowski MFA, Nicol D, 'The Regulatory Framework for Protection of Genetic Privacy in Australia', Genetic Privacy: An Evaluation of the Ethical and Legal Landscape, Imperial College Press, Terry Sheung-Hung Kaan and Calvin Wai-Loon Ho (ed), London, pp. 283-321. ISBN 9781783263059 (2013) [Research Book Chapter]

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Co-authors: Nicol D

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2011Romeo-Malanda S, Nicol D, Otlowski M, 'Genetic testing and protection of genetic privacy: A comparative legal analysis in Europe and Australia', Genomics and Bioethics: Interdisciplinary Perspectives, Technologies and Advancements, IGI Global, S Hongladarom (ed), Hershey, PA, USA, pp. 235-255. ISBN 978-1-61692-883-4 (2011) [Research Book Chapter]

DOI: 10.4018/978-1-61692-883-4.ch016 [eCite] [Details]

Citations: Scopus - 3

Co-authors: Nicol D

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2009Otlowski MFA, 'Developing an appropriate consent model for biobanks: in defence of 'broad' consent', Principles and Practice in Biobank Governance, Ashgate, J Kaye, M Stranger (ed), Farnham, pp. 79-92. ISBN 9780754678250 (2009) [Research Book Chapter]

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2008Otlowski MFA, 'Creating a Facilitative Environment for Genetic Research: The Central Role of Public Trust', Brave New World of Health, Federation Press, Belinda Bennett, Terry Carney, Isabel Karpin (ed), Annandale, NSW, pp. 128-143. ISBN 978-1-86287-672-9 (2008) [Research Book Chapter]

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2007Otlowski MFA, 'Exploration of Key Themes in the Policy Debate on Genetic Research and Genetic Databanks', Human Biotechnology & Public Trust: Trends, Perceptions and Regulation, Centre for Law and Genetics, Mark Stranger (ed), Hobart, pp. 204-218. ISBN 978-0-646-48478-5 (2007) [Other Book Chapter]

[eCite] [Details]

2007Otlowski MFA, Stranger MJA, Taylor S, Treloar S, Barlow-Stewart K, 'Consumer Experiences and Predictive Genetic Testing', Human Biotechnology & Public Trust: Trends, Perceptions and Regulation, Centre for Law and Genetics, Mark Stranger (ed), Hobart, pp. 149-166. ISBN 978-0-646-48478-5 (2007) [Other Book Chapter]

[eCite] [Details]

Co-authors: Stranger MJA

2007Taylor SD, Treloar S, Barlow-Stewart K, Otlowski MFA, Stranger MJA, 'Consumer Experiences and Predictive Genetic Testing', Human Biotechnology & Public Trust, Centre for Law and Genetics, M. Stranger (ed), Hobart, pp. 149-166. ISBN 9780646484785 (2007) [Research Book Chapter]

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Co-authors: Taylor SD; Stranger MJA

2006Otlowski MFA, Skene L, 'Genetic Privacy, discrimination and insurance', Disputes and Dilemmas in Health Law, Federation Press, Ian Freckelton and Kerry Petersen (ed), Sydney, pp. 622-638. ISBN 1-86287-553-7 (2006) [Research Book Chapter]

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2005Barlow-Stewart S, Taylor S, Otlowski MFA, 'Knowing Your Genes', Australian Social Attitudes: The First Report, University of New South Wales Press, S Wilson, G Meagher, R Gibson, D Denemark, M Western (ed), Sydney, pp. 204-219. ISBN 0868406716 (2005) [Research Book Chapter]

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2001Otlowski MFA, 'The Effectiveness of Legal Control of Euthanasia Lessons from Comparative Law', Regulating Physician-Negotiated Death, Elsevier, Albert Klijn, Margaret Otlowski, Margo Trappenburg (ed), Gravenhage, pp. 137-156. ISBN 90-5749-751-4 (2001) [Research Book Chapter]

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Review

(13 outputs)
YearCitationAltmetrics
2004Otlowski MFA, Nicol D, 'Review Article: Lisa Parker and Rachel Ankeny (eds), Mutating Concepts, Evolving Disciplines: Genetics, Medicine and Society', Monash Bioethics Review, 23, (1) pp. 37-44. (2004) [Review Single Work]

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Co-authors: Nicol D

2003Otlowski MFA, 'Emerging legal issues in relation to the use of genetic testing: An examination of the phenomenon of genetic discrimination', Plaintiff, 55 pp. 29-34. (2003) [Review Single Work]

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2002Otlowski MFA, 'The Nancy Crick Case', Newsletter of MBPSL, (6) pp. 3-4. (2002) [Other Review]

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2001Otlowski MFA, 'A review of the ACCC's decision on the IFSA genetic testing policy', Australian Health Law Bulletin, 9, (4) pp. 33-36. (2001) [Review Single Work]

[eCite] [Details]

2001Otlowski MFA, 'It's Just Not Fair', Law Society Journal, 39, (5) pp. 91. (2001) [Review Single Work]

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2000Otlowski MFA, McCrystal S, 'Industrial Law: Tasmania: Introduction', Halsbury's Laws of Australia, 14, (1) pp. 420,003-420,004. (2000) [Review Single Work]

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2000Otlowski MFA, McCrystal S, 'Industrial Law: Tasmania: Institutional Framework', Halsbury's Laws of Australia, 14, (1) pp. 420,055-420,072. (2000) [Substantial Review]

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2000Otlowski MFA, McCrystal S, 'Industrial Law: Tasmania: Industrial Disputes and Actions', Halsbury's Laws of Australia, 14, (1) pp. 420,123-420,128. (2000) [Substantial Review]

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2000Otlowski MFA, McCrystal S, 'Industrial Law: Tasmania: The Employment Relationship', Halsbury's Laws of Australia, 14, (1) pp. 420,255-420,274. (2000) [Substantial Review]

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2000Otlowski MFA, McCrystal S, 'Industrial Law: Tasmania: Dismissal and Redundancy', Halsbury's Laws of Australia, 14, (1) pp. 420,325-420,330. (2000) [Substantial Review]

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2000Otlowski MFA, McCrystal S, 'Industrial Law: Tasmania: Employer and Employee Organisations and Associations', Halsbury's Laws of Australia, 14, (1) pp. 420,381-420,395. (2000) [Substantial Review]

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2000Otlowski MFA, McCrystal S, 'Industrial Law: Tasmania: Investigations, Enforcement, Offences and Penalties', Halsbury's Laws of Australia, 14, (1) pp. 420,447-420,452. (2000) [Substantial Review]

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2000Otlowski MFA, McCrystal S, 'Industrial Law: Tasmania: Comity Provisions', Halsbury's Laws of Australia, 14, (1) pp. 420,503-420,505. (2000) [Review Single Work]

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Conference Publication

(39 outputs)
YearCitationAltmetrics
2012Otlowski MFA, 'Legal and Ethical Context of Next Generation Sequencing', Royal College of Pathologists of Australiasia Pathology Update 2012 Abstracts, 10 March 2012, Sydney, pp. S30. ISSN 0031-3025 (2012) [Conference Extract]

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2010Otlowski MFA, 'Getting the law right on physician-assisted dying', Delegates Programme, 6-10th October, 2010, Melbourne, pp. 20. (2010) [Conference Extract]

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2009Otlowski MFA, 'Developing an appropriate consent model for biobanks in a globalized environment: The case in support of 'broad' consent', New Challenges for Biobanks. Ethics, Law and Governance, 18-20 May, 2009, Belgium, pp. 43-44. (2009) [Conference Extract]

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2009Otlowski MFA, 'NHMRC Biobanks Information Paper', 7th Annual Australasian Biospecimen Network Meeting, November, 2009, Melbourne, pp. 1. (2009) [Conference Extract]

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2008Otlowski MFA, 'Developing an appropriate consent model for biobanks: In defence of 'broad' consent'', Governing Biobanks - What are the challenges? 2008 International Conference, 24-26 June 2008, Oxford, pp. 1 page. (2008) [Conference Extract]

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2008Otlowski MFA, Barlow-Stewart K, Taylor S, Treloar S, Stranger MJA, 'Verification of Consumers' Experiences and Perceptions of Genetic Discrimination and its Impact on Utilisation of Genetic Testing', European Journal of Human Genetics, May 31 - June 3, 2008, Spain, pp. 2. (2008) [Conference Extract]

[eCite] [Details]

Co-authors: Stranger MJA

2008Otlowski MFA, Taylor S, Barlow-Stewart K, Stranger MJA, Treloar S, 'Genetic Discrimination in Australia: Reporting on an Inter-Disciplinary Empirical Investigation', Genetics - Understanding Living Systems, 12-17 July 2008., Germany, pp. Page No 33. (2008) [Conference Extract]

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Co-authors: Stranger MJA

2007Otlowski MFA, 'Exploration of Key Themes in the Policy Debate on Genetic Research and Genetic Databanks', Human Biotechnology & Public Trust - Trends, Perceptions and Regulation, November 2006, Melbourne, pp. 204-218. ISBN 978-0-646-48478-5 (2007) [Refereed Conference Paper]

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2006Otlowski MFA, 'Exploration of key themes in the policy debate on genetic research and genetic databanks', Human Biotechnology and Public Trust: Taking stock in 2006 - trends, perceptions and regulation, 23-24 November 2006, Melbourne, pp. 24. (2006) [Conference Extract]

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2006Otlowski MFA, 'Donor Perspectives on Issues Associated with Donation of Samples and Information', Proceedings of the Australian Health and Medical Research Congress 2006, 26 November - 1 December 2006, Melbourne, pp. p.288. (2006) [Conference Extract]

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2006Otlowski MFA, 'Privacy and Discrimination Issues in Human Genetics', Medical Indemnity Conference, 5 December 006, Melbourne, pp. 6. (2006) [Conference Extract]

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2006Otlowski MFA, 'Tackling legal challenges posed by human genetic research databases: a focus on consent requirements', Public Policy and the Governance of Human Genetic Research Databases Symposium Handbook, 30th November 2006, University of Western Australia, pp. 1. (2006) [Conference Extract]

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2006Otlowski MFA, Chalmers DRC, Nicol D, Stranger MJA, 'Protecting Human Genetic Information in Australia: Processes and Outcomes for Public Consultation', Genomics and Society, 20-21 April, The Netherlands, pp. p.21. (2006) [Conference Extract]

[eCite] [Details]

Co-authors: Chalmers DRC; Nicol D; Stranger MJA

2006Otlowski MFA, Stranger MJA, Barlow-Stewart K, Treloar S, Taylor S, 'Genetic Discrimination in Australia: Third Party Perspectives', 11th International Congress of Human Genetics: Final Program and Abstract Book, 6-10 August 2006, Brisbane, pp. p.85. (2006) [Conference Extract]

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Co-authors: Stranger MJA

2006Otlowski MFA, Stranger MJA, Barlow-Stewart K, Treloar S, Taylor S, 'Genetic Discrimination in Australia: The Consumer Experience', 11th International Congress of Human Genetics: Final Program and Abstract Book, 6-10 August 2006, Brisbane, pp. 85. (2006) [Conference Extract]

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Co-authors: Stranger MJA

2005Otlowski MFA, Chalmers DRC, 'Research, Health and Public Trust', Constructions of Health, 4 November 2005, Sydney, pp. 7. (2005) [Conference Extract]

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Co-authors: Chalmers DRC

2005Otlowski MFA, Stranger MJA, Barlow-Stewart K, Taylor S, Treloar S, et al., 'Knowing your genes - freedom, burden or power? Australian views on uses of genetic test results and implications for public policy', HGSA 2005, 26-29 July 2005, Newcastle, pp. 1. (2005) [Conference Extract]

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Co-authors: Stranger MJA

2005Otlowski MFA, Taylor S, Treloar S, Barlow-Stewart K, Stranger MJA, 'Perceptions and Experiences of Benefit Disadvantage and Negative Treatment Associated with Genetic Information in an Australian Sample of Clinical Genetic Service Clients ', Proceedings of the 25th Annual Conference: HGSA, 26-29 July 2005, Newcastle, pp. 1. (2005) [Conference Extract]

[eCite] [Details]

Co-authors: Stranger MJA

2005Otlowski MFA, Taylor S, Treloar S, Barlow-Stewart K, Stranger MJA, 'Perceptions and Experiences of Benefit, Disadvantage, and Negative Treatment in a Sample of Australian Adults presenting at Clinical Genetic Services regarding predictive testing for Huntington's Disease', Journal of Neurology Neurosurgery & Psychiatry, 10-13 September 2005, Manchester, UK, pp. A52. ISSN 0022-3050 (2005) [Conference Extract]

[eCite] [Details]

Co-authors: Stranger MJA

2005Otlowski MFA, Taylor S, Treloar S, Barlow-Stewart K, Stranger MJA, 'The Genetic Discrimination Project: Benefit, Disadvantage and Negative Treatment Associated with Genetic Information in an Australian Sample of Clinical Genetic Service Clients - Australian and International Implications', The Human Society of Human Genetics, 27 October 2005, USA EJ ISSN 0002-9297 (2005) [Conference Extract]

[eCite] [Details]

Co-authors: Stranger MJA

2005Taylor S, Treloar S, Barlow-Stewart K, Stranger MJA, Otlowski MFA, 'Perceptions and Experiences of Benefit, Disadvantage and Negative Treatment in a Sample of Australian Adults Presenting at Clinical Genetic Services Regarding Familial Cancer', Proceedings of the Familial Cancer Conference 2005, 30 August - 3 September, Queensland, pp. 1. (2005) [Conference Extract]

[eCite] [Details]

Co-authors: Stranger MJA

2004Otlowski MFA, 'Evaluating Competing Models for the Protection of Genetic Information: Property, Privacy and Anti-discrimination Approaches', Contesting Freedoms in Healthcare: policy practice and ethics, 12-14 November 2004, Sydney, pp. 54. (2004) [Conference Extract]

[eCite] [Details]

2004Otlowski MFA, Barlow-Stewart K, Weisbrot D, Taylor S, 'Genetic Privacy and Discrimination in Australia', Deep Listening: Bridging Divides in Local and Global Ethics, November 2004, Sydney, pp. 46. (2004) [Conference Extract]

[eCite] [Details]

2004Otlowski MFA, Taylor S, Barlow-Stewart K, Stranger MJA, Treloar S, 'Genetic Discrimination Project: Overview of a Major Australian Empirical Research Initiative', Program and Abstract Book - The 15th World Congress on Medical Law, 1-5 August 2005, Sydney, pp. 79. ISBN 1 877040 21 5 (2004) [Conference Extract]

[eCite] [Details]

Co-authors: Stranger MJA

2003Otlowski MFA, 'Will our baby win gold?', Will our baby win Gold?, 20 May, Melbourne (2003) [Conference Extract]

[eCite] [Details]

2003Otlowski MFA, 'Investigating Genetic Discrimination in Australia: Issues, Challenges and Opportunities', XIX International Congress of Genetics, July 2003, Brisbane (2003) [Conference Extract]

[eCite] [Details]

2003Otlowski MFA, 'Genetic Discrimination Project', British Sociological Association's Medical Sociology Study Group Annual Conference 2003, Sept 2003, York, UK (2003) [Conference Extract]

[eCite] [Details]

2003Otlowski MFA, 'Scaremongering or Duty of Care? A legal perspective on the responsibilities of genetic clinicians and counsellors with regard to the issue of genetic discrimination', XIX International Congress of Genetics Handbook, July 2003, Brisbane (2003) [Conference Extract]

[eCite] [Details]

2002Otlowski MFA, 'Protecting Genetic Privacy:An Overview', Centre for Law and Genetics Occasional Paper No. 4, December 2001, Hobart, pp. 65-82. ISSN 1445-2766 (2002) [Non Refereed Conference Paper]

[eCite] [Details]

2002Otlowski MFA, 'Regulation of Employers' Use of Genetic Test Information', Conference Proceedings 2000 Boundary Disputes: Ethics, Law and Regulation, 5-9 July 2000, Sydney, pp. 163-170. ISBN 0 7334 1924 0 (2002) [Refereed Conference Paper]

[eCite] [Details]

2001Otlowski MFA, 'Ethical Considerations in Genetic Research Involving Commercial Use of Human Tissue', Regulating Human Genetics: A Symposium, November 2000, Hobart , pp. 27-42. ISSN 1445-2766 (2001) [Non Refereed Conference Paper]

[eCite] [Details]

2001Otlowski MFA, 'Genetics and Privacy', Communications Law Centre, June, Melbourne (2001) [Non Refereed Conference Paper]

[eCite] [Details]

2001Otlowski MFA, 'Privacy Issues in Relation to Human Genetic Information', Conference Papers from AIHLE's 6th Annual Conference , June 2001, Melbourne (2001) [Non Refereed Conference Paper]

[eCite] [Details]

2000Otlowski MFA, 'Genetic Discrimination and the Limits of the Law', Human Genome Research: How Far Should We Go?, 12-13 October 2000, Melbourne, pp. 1-10. (2000) [Non Refereed Conference Paper]

[eCite] [Details]

1999Otlowski MFA, 'Use and Misuse of Genetic Test Information: Should there be Restrictions on Insurer's Access?', Proceedings of the Australian Bioethics Association, October 1998, Hobart, pp. 163-172. ISBN 0 85901 840 7 (1999) [Refereed Conference Paper]

[eCite] [Details]

1998Otlowski MFA, 'The Family Law Reform Act 1995 (Cth): An Overview of the Recent Child Reforms', Boundaries and Beyond, 3-5 June 1998, Hobart, pp. 2-3. (1998) [Conference Extract]

[eCite] [Details]

1998Otlowski MFA, 'Use and Misuse of Genetic Test Information: Should There Be Restrictions On Insurers' Access?', Australian Bioethics Association 6th Annual Conference: Program and Abstracts, 2-4 October 1998, Hobart, pp. 8. (1998) [Conference Extract]

[eCite] [Details]

1998Otlowski MFA, Harper T, Johnson R, 'Euthanasia Workshop: Overview of Discussion', State Conference - Community Care: Meeting the Challenges Proceedings, 30-31 October 1997, Hobart, pp. 104-105. (1998) [Conference Extract]

[eCite] [Details]

1995Chalmers DRC, Otlowski MFA, Nicol D, Skene L, 'Legal Aspects of the Human Genome Project', Australasian Law Teachers' Association Conference. Proceedings of the 49th Conference, Hobart, pp. 1162-1169. (1995) [Non Refereed Conference Paper]

[eCite] [Details]

Co-authors: Chalmers DRC; Nicol D

Contract Report, Consultant's Report

(27 outputs)
YearCitationAltmetrics
2009Otlowski MFA, 'Use and Disclosure of Genetic Information to a Patient's Genetic Relatives Under s 95AA of the Privacy Act 1988 (Cth) - Guidelines for Health Practitioners in the Private Sector', NHMRC, 1 (2009) [Contract Report]

[eCite] [Details]

2009Otlowski MFA, 'Inquiry into the Dying with Dignity Bill', Joint Standing Committee on Community Development, 1 (2009) [Contract Report]

[eCite] [Details]

2009Otlowski MFA, Nicol D, Chalmers DRC, 'Non-Consensual Genetic Testing', Model Criminal Law Officers' Committee of the Standing Committee of Attorneys-General, 1 (2009) [Contract Report]

[eCite] [Details]

Co-authors: Nicol D; Chalmers DRC

2008Nicol D, Chalmers DRC, Otlowski MFA, Stranger MJA, 'Submission to the OECD on the Draft Guidelines for Human Biobanks and Genetic Research Databases', OECD, May 2008 (2008) [Consultants Report]

[eCite] [Details]

Co-authors: Nicol D; Chalmers DRC; Stranger MJA

2008Otlowski MFA, 'Submission on Draft Section 95AA Privacy Act 1988 (Cth)', National Health and Medical Research Council (2008) [Consultants Report]

[eCite] [Details]

2007Otlowski MFA, 'Framework for Fairness: Proposals for a Single Equality Bill for Great Britain Consultation'', Submission to the UK Discrimination Law Review Inquiry (2007) [Consultants Report]

[eCite] [Details]

2007Otlowski MFA, 'NHMRC targeted consultation: draft genetic privacy guidelines s95AA', NHMRC, December 2007 (2007) [Consultants Report]

[eCite] [Details]

2007Otlowski MFA, Nicol D, Chalmers DRC, 'Review of Privacy in Response to Issue Paper 31', Australian Law Reform Commission (2007) [Consultants Report]

[eCite] [Details]

Co-authors: Nicol D; Chalmers DRC

2007Otlowski MFA, Nicol D, Chalmers DRC, 'Review of Privacy in Response to Discussion Paper 72', Australian Law Reform Commission, December 2007 (2007) [Consultants Report]

[eCite] [Details]

Co-authors: Nicol D; Chalmers DRC

2006Chalmers DRC, Otlowski MFA, Nicol D, Skene L, Stranger MJA, 'Submission: Review of the National Statement on Ethical Conduct in Research - Second Consultation', Australian Government, National Health and Medical Research Council, 2nd Consultation (2006) [Consultants Report]

[eCite] [Details]

Co-authors: Chalmers DRC; Nicol D; Stranger MJA

2006Otlowski MFA, 'Investment and Financial Services Association (IFSA) applications for revocation and substitution of authorisations - draft determination', Australian Competition and Consumer Commission (2006) [Consultants Report]

[eCite] [Details]

2006Otlowski MFA, Nicol D, Stranger MJA, 'Submission on the Review of the Tasmanian Human Genetic Research Regulation Act 2003 and the Human Cloning and other Prohibited Practices Act 2003 Issues Paper', Tasmanian Government (2006) [Consultants Report]

[eCite] [Details]

Co-authors: Nicol D; Stranger MJA

2005Chalmers DRC, Otlowski MFA, Nicol D, Skene L, 'Submission on the Review of the National Statement on Ethical Conduct in Research Involving Humans: First Consultation Draft', NHMRC (2005) [Consultants Report]

[eCite] [Details]

Co-authors: Chalmers DRC; Nicol D

2005Otlowski MFA, 'IFSA's application for revocation and substitution (A90986 & A90989)', Australian Competition and Consumer Commission (2005) [Consultants Report]

[eCite] [Details]

2005Otlowski MFA, Chalmers DRC, Skene L, Nicol D, 'Submission on the Inquiry into the Privacy Act 1988 (Cth)', Senate Reference Committee (2005) [Consultants Report]

[eCite] [Details]

Co-authors: Chalmers DRC; Nicol D

2005Otlowski MFA, Taylor S, Barlow-Stewart K, 'Draft Medical History Underwriting Guidelines and Industry Standard', Insurance and Financial Services Association (2005) [Consultants Report]

[eCite] [Details]

2004Otlowski MFA, 'Submission on the Draft Revision: Guidelines for Providers of Insurance and Superannuation', Human Rights and Equal Opportunity Commission (2004) [Consultants Report]

[eCite] [Details]

2004Otlowski MFA, 'Review of the Disability Discrimination Act 1992', Productivity Commission (2004) [Consultants Report]

[eCite] [Details]

2003Otlowski MFA, 'Application for Revocation and Substitution lodged by the Investment and Financial Services Association (IFSA) in relation to clauses 10.1 and 10.3 of its Genetic Testing Policy - Draft Determination', Australian Competition and Consumer Commission (2003) [Consultants Report]

[eCite] [Details]

2003Otlowski MFA, 'Submission on VLRC Workplace Privacy Issues Paper', Victorian Law Reform Commission (2003) [Consultants Report]

[eCite] [Details]

2003Otlowski MFA, 'Application for Revocation and Substitution Authorisation Nos A30200 and A30201 lodged by the Investment and Financial Services Association', Australian Competition and Consumer Commission (2003) [Consultants Report]

[eCite] [Details]

2003Otlowski MFA, Nicol D, 'Submission to the Australian Health Ministers' Advisory Council on the National Health Privacy Code (Draft) Consultation Paper', Australian Health Minister's Advisory Council (2003) [Consultants Report]

[eCite] [Details]

Co-authors: Nicol D

2002Otlowski MFA, 'Genetic Testing of Children: Implications for Insurance', Australian Law Reform Commission (2002) [Consultants Report]

[eCite] [Details]

2002Otlowski MFA, 'Submission to the Inquiry into the Protection of Human Genetic Information', Australian Law Reform Commission , Discussion Paper (2002) [Consultants Report]

[eCite] [Details]

2002Otlowski MFA, Chalmers DRC, Nicol D, 'Submission to the Inquiry into the Protection of Human Genetic Information Issues Paper', Australian Law Reform Commission and Australian Health Ethics Committee (2002) [Consultants Report]

[eCite] [Details]

Co-authors: Chalmers DRC; Nicol D

2002Otlowski MFA, Chalmers DRC, Nicol D, 'Submission to the Inquiry into the Protection of Human Genetic Information', Australian Law Reform Commission and Australian Health Ethics Committee , Discussion Paper (2002) [Consultants Report]

[eCite] [Details]

Co-authors: Chalmers DRC; Nicol D

2002Otlowski MFA, Taylor S, Barlow-Stewart K, Treloar S, Stranger MJA, 'Genetic Discrimination in Australia: an exploration of the nature and extent of the phenomenon within the legal and social context', Australian Law Reform Commission and Australian Health Ethics Committee (2002) [Consultants Report]

[eCite] [Details]

Co-authors: Stranger MJA

Entry

(1 outputs)
YearCitationAltmetrics
2008Otlowski MFA, 'Euthanasia', The New Oxford Companion to Law, P Cane and J Conagahan (ed), UK, 2008, pp. 429-430 (2008) [Entry]

[eCite] [Details]

Other Public Output

(3 outputs)
YearCitationAltmetrics
2020Gogarty B, Clark M, Roydhouse J, Csabs C, Savage J, et al., 'Sexual Orientation and Gender Identity Conversion Practices', Tasmanian Law Reform Institute, Hobart, Tasmania, Issues Paper 31, November (2020) [Report Other]

[eCite] [Details]

Co-authors: Gogarty B; Clark M; Roydhouse J; Neil A; Hilkemeijer A

Tweet

2010Otlowski MFA, Nicol D, Stranger MJA, 'Biobanks', Information Paper, National Health and Medical Research Council, Australia, pp. 1-85. (2010) [Government or Industry Research]

[eCite] [Details]

Co-authors: Nicol D; Stranger MJA

Tweet

2006Otlowski MFA, Barlow-Stewart K, Taylor S, 'Genetic discrimination and familial cancer: A report from the Genetic Discrimination Project', Gene Trek, The Cancer Council, South Australia, October 2006, October 2006 (2006) [Magazine Article]

[eCite] [Details]

Grants & Funding

Together with colleagues from the Centre for Law and Genetics, Margaret has had a successful history of securing grants with the Australian Research Council, the National Health and Medical Research Council and more recently, through the Medical Research Future Fund, Genomics Health Futures Missions, ELSI Scheme.

Margaret has been a Chief Investigator (including first-named) on numerous large Australian Research Council and NHMRC Project grants examining the ethical, social and legal aspects of the new genetics/genomics. This has included collaborative projects on biobanking and personalised medicine

A significant project which she led was the ARC funded Genetic Discrimination Project (2002-2004); an inter-disciplinary exploration of the phenomenon of genetic discrimination in Australia undertaken with Dr Sandy Taylor and Dr Kristine Barlow-Stewart. This research team was the first to design a research study in this field involving a third-party verification component which led to verified data on instances of genetic discrimination in Australia. This study attracted significant interest nationally and internationally and led to a number of high impact publications.

Funding Summary

Number of grants

21

Total funding

$7,427,978

Projects

Assessment of Commonwealth, State and Territory legislation and regulations as it applies to the collection and use of health-related genomics information in the clinical and research setting (2020)$299,424
Description
The purpose of this Project is to undertake an assessment of the relevant Commonwealth, State and Territory legislation and regulations as it applies to the collection and use of health-related genomics information in the clinical and research settings, with a specific focus on current and emerging ethical, legal and social issues. This Project will deliver an evidence-based assessment of the relevant legislation and regulations and how these apply to the current and emerging ethical, legal and social issues identified, including any differences between jurisdictions. This project is intended to provide a high-level overview of the key issues and related legislative environment. It does not include development of recommendations or options to Government.
Funding
Department of Health (Cth) ($299,424)
Scheme
Contract Research
Administered By
University of Tasmania
Research Team
Nicol D; Chalmers DRC; Otlowski MFA; Nielsen JL; Eckstein LG; McWhirter R; Kaldor JC; Taylor M
Year
2020
Moratorium on Genetic Testing and Life Insurance: Monitoring the Impact (2020 - 2022)$499,999
Description
This project comes within the ELSI (Ethical, Legal and Social Issues) stream of the Genomics Health Futures Mission funding. It seeks to address an evidence gap to monitor the impact of the moratorium on life insurers use of genetic test information for insurance underwriting purposes. In doing so, it directly addresses the issue of genetic discrimination which has had a deterrent effect in Australia for the uptake of recommended clinical genetic testing as well as participation in genetic/genomic research.
Funding
Medical Research Future Fund ($499,999)
Scheme
Grant-Genomics Health Futures Mission ELSI scheme
Administered By
Monash University
Research Team
Lacaze P; Otlowski MFA
Period
2020 - 2022
Returning raw genomic data: patient autonomy or legal minefield? (2020 - 2022)$388,026
Description
This project will seek to answer the following question: Does the Australian legal framework provide sufficient clarity for clinicians, researchers, the public health system and those making requests, to deal with requests for the return of raw genomic sequence data to patients and research participants? It incorporates an interview-based component that will then be used to consider how requests for raw genomic data by patients and medical research participants are likely to be treated from a legal perspective. It will produce a set of recommendations and best practice protocols.
Funding
Medical Research Future Fund ($388,026)
Scheme
Grant-Genomics Health Futures Mission ELSI scheme
Administered By
University of Tasmania
Research Team
Nielsen JL; Otlowski MFA; McWhirter R
Period
2020 - 2022
Genomic Data Sharing: Issues in Law, Research Ethics and Society (2018 - 2021)$614,454
Funding
Australian Research Council ($614,454)
Scheme
Grant-Discovery Projects
Administered By
University of Tasmania
Research Team
Nicol D; Otlowski MFA; Critchley C; Eckstein LG; Nielsen JL; Chalmers DRC
Period
2018 - 2021
Grant Reference
DP180100269
From Discovery to therapy in genetic eye diseases (2017 - 2021)$2,498,223
Description
Ophthalmology has always been at the forefront of genetic discovery and this has led to an improved understanding of the biological mechanism of manyinherited eye diseases. This CRE brings together leading researchers from all the genetic eye disease groups across Australia to capitalize on the newtechnologies in ocular imaging and genetic discovery. The research team has a strong track record in identifying and characterising genes that cause bothMendelian and complex blinding eye diseases and in translating these findings into clinical care. Building on our previous experience and using new imagingtechnology such as optical coherence tomography, adaptive optics and micro-perimetry we will progress research to precisely define the natural history ofblinding eye diseases. This is essential for clinical trials to proceed efficiently. Access to a national network of patients and families with specific geneticsubtypes of eye diseases will enable us to facilitate and initiate treatment trials for inherited ophthalmic conditions. In conjunction with patient andcommunity organisations we will develop world leading models for genetic risk prediction and for feedback of genetic results for both Mendelian andcomplex eye diseases. Our work will extend to analyzing health economics as well as the legal and ethical aspects of genetic research. Central to the CRE willbe the training of researchers and eye care providers to develop best clinical practice using our research findings. Our team members are experiencedparticipants in international consortia for eye disease gene discovery; Australias national disease registries and biobanks place us in a key position to alsoparticipate in international gene based treatment trials for a large number of disorders. Translation of this research into care for genetic eye disease ispredictive, preventive, personalised and participatory.
Funding
National Health & Medical Research Council ($2,498,223)
Scheme
Grant-Centre of Research Excellence
Administered By
University of Western Australia
Research Team
Mackey D; Craig J; Hewitt A; Burdon KP; Jamieson R; Grigg JR; MacGregor S; Chen F; Otlowski MFA; Schofield D
Period
2017 - 2021
Grant Reference
1116360
Implementation of Genomics into Queensland healthcare: ethical, legal and social implications and policy challenges (2017)$218,709
Description
The explosion of genomic technologies offers the promise of revolutionising healthcare, but these new approaches to diagnosing and treating disease bring with them a host of ethical, legal and social and policy complexities. This application brings together a world-class team of scientists, legal experts, ethicists and physicians who will work together to develop protocols and policies within 6 themes: i) community engagement; ii) consent; iii) genomic research; iv) justice; v) clinical use of genomics and vi) health systems. The overall aim of the project is to ensure the safe delivery of genomic medicine for the people of Queensland.
Funding
Queensland Health ($218,709)
Scheme
Grant-Capability building Workstreams
Administered By
Queensland Health
Research Team
Waddell N; Bennett B; Devereux J; McGaughran J; Whiteman D; Naidoo S; Pratt G; McDonald F; Butler D; Cockburn T; Daly A; McGee A; Rimmer M; Smith M; Then S; Jacobs J; Hussey K; Morrison D; Li X; Connelly L; Nichols K; Lamont J; Rowell D; Crowden A; Savulescu J; Newson A; Otlowski MFA; Nicol D
Year
2017
Ensuring the utility and sustainability of tissue banks: Supporting translational research in Australia through informed regulation and community engagement (2012 - 2014)$437,215
Funding
National Health & Medical Research Council ($437,215)
Scheme
Grant-Project
Administered By
National Health & Medical Research Council
Research Team
Kerridge I; Stewart C; Marlton P; Otlowski MFA; Nicol D; Critchley C
Period
2012 - 2014
Grant Reference
1029929
The Australian Legal History Library: Creating historical depth in legal data on AustLII, to improve all legal research (2012)$590,000
Funding
Australian Research Council ($330,000)
Collaborators
Australian Catholic University ($20,000); Australian National University ($20,000); Griffith University ($10,000); University of Adelaide ($20,000); University of New South Wales ($140,000); University of Queensland ($20,000); University of Sydney ($20,000); University of Western Sydney ($10,000)
Scheme
Grant-Linkage Infrastructure
Administered By
University of Technology Sydney
Research Team
Mowbray A; Greenleaf G; Ford L; Nettelbeck A; Grantham R; Finnane MJ; Petrow S; Otlowski MFA; Twomey A
Year
2012
Grant Reference
LE120100062
The Age of Personalized Medicine: Regulatory Challenges for Australia (2011 - 2014)$281,000
Description
New genetic technologies create the potential for personalized therapies and direct- to-consumer genetic tests. Changes to clinical trials and increased reliance on biobanks and data linkage by commercial entities are predicted. These developments demand ethical, regulatory and social scrutiny. This project will: create a map of personalized medicine in Australia; identify ethical, regulatory and social challenges; assess benefit sharing and public trust issues; evaluate and make recommendations on regulatory and governance measures needed to ensure best practice and highest ethical standards. This will help create better regulatory and governance environments for facilitating responsible research and clinical service delivery in Australia.
Funding
Australian Research Council ($281,000)
Scheme
Grant-Discovery Projects
Administered By
University of Tasmania
Research Team
Nicol D; Chalmers DRC; Otlowski MFA; Critchley C
Period
2011 - 2014
Grant Reference
DP110100694
Drafting of Human Genetic Testing paper (2008)$4,564
Funding
National Health & Medical Research Council ($4,564)
Scheme
Consultancy
Administered By
University of Tasmania
Research Team
Otlowski MFA
Year
2008
An Information Paper on the Management and Governance of Biobanks in Australia (2008)$49,090
Funding
National Health & Medical Research Council ($49,090)
Scheme
Consultancy
Administered By
University of Tasmania
Research Team
Otlowski MFA; Nicol D; Stranger MJA
Year
2008
Expand the Capacity of an International Multidisciplinary Research Network Focussed on the Ethical, Legal and Social Implications of Emerging Biotechnologies (2006 - 2007)$20,000
Funding
Australian Research Council ($20,000)
Scheme
Grant-Linkage International
Administered By
University of Tasmania
Research Team
Chalmers DRC; Nicol D; Otlowski MFA; Skene L; Stranger MJA; Knoppers B; Webster A; Yoon Jeong-Ro
Period
2006 - 2007
Grant Reference
LX0668594
Facilitation and Regulation of Research and Development Involving Human Genetic Databanks (2005 - 2009)$602,597
Funding
Australian Research Council ($602,597)
Scheme
Grant-Discovery Projects
Administered By
University of Tasmania
Research Team
Chalmers DRC; Nicol D; Otlowski MFA; Skene L
Period
2005 - 2009
Grant Reference
DP0559760
Developing a Multidisciplinary International Research Network Focussed on Maximizing the Social and Health Benefits to Australia of Human Genetic Technologies (2003)$10,000
Funding
Australian Research Council ($10,000)
Scheme
Grant-SRI Seed Funding for Research Networks
Administered By
University of Tasmania
Research Team
Chalmers DRC; Otlowski MFA; Nicol D; Stranger MJA
Year
2003
Grant Reference
SR0354765
Legal and Ethical Regulation of the Use and Commercialisation of Human Biological Material (2002 - 2004)$364,323
Funding
Australian Research Council ($364,323)
Scheme
Grant-Discovery Projects
Administered By
University of Tasmania
Research Team
Chalmers DRC; Nicol D; Skene L; Otlowski MFA
Period
2002 - 2004
Grant Reference
DP0208258
Genetic Discrimination in Australia: An Exploration of the Nature and Extent of the Phenomenon Within the Legal and Social Context (2002 - 2004)$266,349
Funding
Australian Research Council ($266,349)
Scheme
Grant-Discovery Projects
Administered By
University of Tasmania
Research Team
Otlowski MFA; Taylor S; Barlow-Stewart KK
Period
2002 - 2004
Grant Reference
DP0208853
Examination of the Application of the Rules of Evidence in Proceedings of Quasi-judicial Tribunals (2001 - 2003)$75,000
Funding
Australian Research Council ($75,000)
Scheme
Grant-SPIRT
Administered By
University of Tasmania
Research Team
Henning T; Otlowski MFA; Blackwood JB
Period
2001 - 2003
Grant Reference
C00107034
Legal Standards in the Commercialisation of Human Genetic Technology (1999 - 2001)$115,000
Funding
Australian Research Council ($115,000)
Scheme
Grant-Large
Administered By
University of Tasmania
Research Team
Chalmers DRC; Otlowski MFA; Skene L
Period
1999 - 2001
Grant Reference
A59905742
Supplementary Funding (1998)$10,000
Funding
University of Tasmania ($10,000)
Scheme
Grant-Supplementary
Administered By
University of Tasmania
Research Team
Chalmers DRC; Otlowski MFA; Skene L
Year
1998
Legal and ethical implications of human genetic research: Australian perspectives (1995 - 1997)$79,005
Funding
Australian Research Council ($79,005)
Scheme
Grant-Large
Administered By
University of Tasmania
Research Team
Chalmers DRC; Otlowski MFA; Skene L
Period
1995 - 1997
Grant Reference
A59532751
Mercy killing cases in the criminal justice system : an evaluation (1990)$5,000
Funding
University of Tasmania ($5,000)
Scheme
Grant-New Staff Research Priming
Administered By
University of Tasmania
Research Team
Otlowski MFA
Year
1990

Research Supervision

Margaret has supervised a range of PhD and LLM to successful completion predominantly on health law topics, including as part of an interdisciplinary supervision team. She also regularly examines Research Higher Degree theses. She welcomes inquiries from prospective candidates in her areas of expertise.

Current

2

Completed

12

Current

DegreeTitleCommenced
PhDTowards an Effective Engagement with the Critiques of Human Rights2018
PhDAn Examination of Whether and How Discrimination Law Could Use a Conceptual Framework that Incorporates Learnings from Other Disciplines such Learnings about Prejudice and Unconscious Bias from Psychology, and What Effect this Might have on Prevention and Resolution Outcomes2018

Completed

DegreeTitleCompleted
PhDThink Before you Spit and Share: Protecting consumers in Australia's direct-to-consumer health-related genetic testing (DTCGT) space
Candidate: Mary Jan Marcelline Charbonneau
2019
MastersThe Standard of Medical Care in Malaysia: The Case for Legislative Reform
Candidate: Joseph Ming Yong Lee
2012
PhDA Comparative Analysis of the Medico-legal and Ethical Issues Associated with Embryonic Stem Cell Research in Australia and Malaysia
Candidate: Chee Kuen Foong
2012
PhDJudicial Meetings with Children in Australian Family Law Proceedings: Hearing Children's Voices
Candidate: Michelle Meilin Fernando
2011
MastersCircumcision in Australia: Reforming the Law
Candidate: Warwick Edward Marshall
2011
PhDThe Legal Injury Narrative: Personal Injury Litigation and Melodrama
Candidate: Samantha Jane Hardy
2006
PhDA Twitch upon a Thread: Regulation of Human Tissue use in Australia and the Application of Property Law
Candidate: Imogen Louise Goold
2005
PhDStrengthening the Rule of Law or Serving as a Tool of War? A Critical Analysis of United Nations Sanctions
Candidate: Jeremy Matam Farrall
2005
PhDStrike or Strike Out: An Analysis of Australian Compliance with International Standards on the Right to Strike
Candidate: Shae Louise McCrystal
2005
PhDInterventions in Perinatal Medicine: A Jurisdictional Analysis
Candidate: Brenda McGivern
2005
MastersRegulating work in the public interest - A comparison of Commonwealth, Victorian and British Minimum Wage Regimes (1890-1936)
Candidate: Rohan Bruce Edward Price
2002
PhDThe Relevance of Domestic Violence in Proceedings for Financial Relief under the Family Law Act 1975 (CTH)
Candidate: Sarah Lee Middleton
2001