Profiles
Jessica Roydhouse
Jessica Roydhouse
Select Foundation
Senior Research Fellow in Health Services Research
Room 354a , MSP 2
0362264794 (phone)
Dr Jessica Roydhouse is a Select Foundation Senior Research Fellow in Health Services Research at the Menzies Institute for Medical Research. Her research interests include patient-reported outcomes, missing data, clinical trials and causal inference. Prior to coming to the Menzies, she was an ORISE Fellow at the Food and Drug Administration (FDA), where she conducted methodological research on patient-reported outcomes in clinical cancer trials.
Biography
Prior to her PhD, Jessica worked at the University of Sydney, where she coordinated a community-based randomised controlled trial and worked on health services research projects in cancer care. She completed her PhD at Brown University, focusing on proxy reporting for patient-reported outcomes in cancer, and then spent over two years at the FDA working on methodological research in cancer trials.
Career summary
Qualifications
PhD, Brown University, USA, 2017. Improving patient-reported outcomes in cancer care: non-response and the role of proxies.
Memberships
Professional practice
American Statistical Association
International Society for Pharmacoeconomics and Outcomes Research
International Society for Quality of Life Research
Psycho-Oncology Co-Operative Research Group
Administrative expertise
Jessica previously coordinated a community-based randomised controlled trial in Sydney. She is the co-chair of the International Society for Quality of Life Research (ISOQOL) Proxy Task Force.
View more on Dr Jessica Roydhouse in WARP
Expertise
- Patient-reported outcomes
- Prostate cancer
- Lung cancer
- Colorectal cancer
- Multiple myeloma
- Clinical trials
- Observational studies
- Missing data
- Causal inference
- Drug development and regulation
Research Themes
Jessica's research aligns with the University's theme of Better Health. As an ORISE Fellow at the FDA, she examined the issue of open-label bias in clinical trials and proposed a possible method for evaluating patient-reported outcome data that may be subject to open-label bias.
Collaboration
Jessica is currently involved in several international projects, most of which focus on methodological issues and patient-reported outcomes in cancer research. These collaborations include researchers in Europe and North America.
Awards
2017. New Investigator Travel Scholarship, International Society for Quality of Life Research.
Fields of Research
- Oncology and carcinogenesis (321199)
- Health services and systems (420399)
- Nursing (420599)
- Health promotion (420603)
- Other biomedical and clinical sciences (329999)
- Primary health care (420319)
- Solid tumours (321111)
- Haematological tumours (321106)
- Health care administration (420306)
- Respiratory diseases (320103)
- Biostatistics (490502)
- Other health sciences (429999)
- Cancer therapy (excl. chemotherapy and radiation therapy) (321104)
- Mental health services (420313)
- Law reform (480406)
- Injury prevention (420604)
- Occupational and workplace health and safety (350505)
- Social psychology (520505)
- Epidemiology (420299)
- Health surveillance (420310)
- Cancer genetics (321103)
- Cancer diagnosis (321102)
- Small business organisation and management (350716)
- Special needs dentistry (320312)
- Gender psychology (520502)
- Maritime transportation and freight services (350904)
- Health economics (380108)
- Psychology of religion (520504)
Research Objectives
- Evaluation of health outcomes (200202)
- Evaluation of health and support services (200299)
- Behaviour and health (200401)
- Clinical health (200199)
- Nursing (200307)
- Public health (excl. specific population health) (200499)
- Provision of health and support services (200399)
- Health education and promotion (200203)
- Law reform (230405)
- Injury prevention and control (200408)
- Neonatal and child health (200506)
- Health status (incl. wellbeing) (200407)
- Management (150302)
- Mental health (200409)
- Coastal sea freight transport (270402)
- Health inequalities (200204)
- Allied health therapies (excl. mental health services) (200301)
- Prevention of human diseases and conditions (200104)
- Specific population health (excl. Indigenous health) (200599)
- Religion and society (130501)
- Adolescent health (200501)
- Diagnosis of human diseases and conditions (200101)
- Treatment of human diseases and conditions (200105)
- Preventive medicine (200412)
Publications
Total publications
45
Journal Article
(42 outputs)| Year | Citation | Altmetrics |
|---|---|---|
| 2021 | Roydhouse JK, Cohen ML, Eshoj HR, Corsini N, Yucel E, et al., 'The use of proxies and proxy-reported measures: a report of the international society for quality of life research (ISOQOL) proxy task force', Quality of Life Research Article ePub ahead of print. ISSN 0962-9343 (2021) [Refereed Article] | |
| 2021 | Roydhouse JK, Mishra-Kalyani PS, Bhatnagar V, Gutman R, King-Kallimanis BL, et al., 'Does knowledge of treatment assignment affect patient report of symptoms, function, and health status? An evaluation using multiple myeloma trials', Value in Health ISSN 1098-3015 (2021) [Refereed Article] DOI: 10.1016/j.jval.2020.12.015 [eCite] [Details] Citations: Scopus - 1Web of Science - 1 | |
| 2021 | Roydhouse JK, Wilson IB, Gutman R, Wallace RB, Berman T, et al., 'Association of patient-reported physician awareness of complementary medicine, medical care experience and care quality', Journal of Patient Experience, 8 pp. 1-5. ISSN 2374-3735 (2021) [Refereed Article] | |
| 2020 | Roydhouse J, Gutman R, Keating NL, Mor V, Wilson IB, 'Propensity scores for proxy reports of care experience and quality: are they useful?', Health Services and Outcomes Research Methodology, 20 pp. 40-59. ISSN 1387-3741 (2020) [Refereed Article] | |
| 2020 | Roydhouse J, King-Kallimanis BL, Roy P, Weinstock C, Krol D, et al., 'Exploration of baseline patient-reported side effect bother from cancer therapy', Clinical Trials, 17, (3) pp. 332-337. ISSN 1740-7745 (2020) [Refereed Article] DOI: 10.1177/1740774520910389 [eCite] [Details] Citations: Web of Science - 1 | |
| 2020 | Roydhouse JK, Gutman R, Wilson IB, Kehl KL, Keating NL, 'Patient and proxy reports regarding the experience of treatment decision-making in cancer care', Psycho-Oncology, 29, (11) pp. 1943-1950. ISSN 1057-9249 (2020) [Refereed Article] DOI: 10.1002/pon.5528 [eCite] [Details] Citations: Scopus - 1Web of Science - 1 | |
| 2020 | Roydhouse JK, Menapace LA, Xia H, Song P, Berman TJ, et al., 'Concomitant botanical medicine use among patients participating in commercial prostate cancer trials', Complementary Therapies in Medicine, 54 pp. 1-8. ISSN 0965-2299 (2020) [Refereed Article] | |
| 2019 | Fiero MH, Roydhouse J, Vallejo J, King-Kallimanis B, Kluetz PG, et al., 'US Food and Drug Administration review of statistical analysis of patient-reported outcomes in lung cancer clinical trials approved between January, 2008, and December, 2017', Lancet Oncology, 20, (10) pp. e582-e589. ISSN 1470-2045 (2019) [Refereed Article] DOI: 10.1016/S1470-2045(19)30335-3 [eCite] [Details] Citations: Scopus - 14Web of Science - 14 | |
| 2019 | King-Kallimanis BL, Howie LJ, Roydhouse J, Singh H, Theoret MR, et al., 'Patient reported outcomes in anti-PD-1/PD-L1 inhibitor immunotherapy registration trials: FDA analysis of data submitted and future directions', Clinical Trials, 16, (3) pp. 322-326. ISSN 1740-7745 (2019) [Refereed Article] DOI: 10.1177/1740774519836991 [eCite] [Details] Citations: Scopus - 17Web of Science - 14 | |
| 2019 | Mercieca-Bebber R, Williams D, Tait M-A, Rutherford C, Busija L, et al., 'Trials with proxy-reported outcomes registered on the Australian New Zealand Clinical Trials Registry (ANZCTR)', Quality of Life Research, 28 pp. 955-962. ISSN 0962-9343 (2019) [Refereed Article] DOI: 10.1007/s11136-018-2080-4 [eCite] [Details] Citations: Scopus - 2Web of Science - 1 | |
| 2019 | Roydhouse J, Fiero MH, Kluetz PG, 'Investigating potential bias in patient-reported outcomes in open-label cancer trials', JAMA Oncology, 5, (4) pp. 457-458. ISSN 2374-2437 (2019) [Letter or Note in Journal] DOI: 10.1001/jamaoncol.2018.6205 [eCite] [Details] Citations: Scopus - 15Web of Science - 17 | |
| 2019 | Roydhouse J, Gutman R, Bhatnagar V, Kluetz PG, Sridhara R, et al., 'Analyzing patient-reported outcome data when completion differs between arms in open-label trials: an application of principal stratification', Pharmacoepidemiology and Drug Safety, 28, (10) pp. 1386-1394. ISSN 1053-8569 (2019) [Refereed Article] DOI: 10.1002/pds.4875 [eCite] [Details] Citations: Scopus - 1Web of Science - 1 | |
| 2019 | Roydhouse J, King-Kallimanis BL, Howie LJ, Singh H, Kluetz PG, 'Blinding and patient-reported outcome completion rates in US Food and Drug Administration cancer trial submissions, 2007-2017', Journal of the National Cancer Institute, 111, (5) pp. 459-464. ISSN 0027-8874 (2019) [Refereed Article] DOI: 10.1093/jnci/djy181 [eCite] [Details] Citations: Scopus - 11Web of Science - 12 | |
| 2019 | Roydhouse J, Suzman DL, Menapace LA, Mishra-Kalyani PS, Sridhara R, et al., 'Global variation in Opioid use in prostate cancer trials', JAMA Oncology, 5, (11) Article e192971. ISSN 2374-2445 (2019) [Refereed Article] DOI: 10.1001/jamaoncol.2019.2971 [eCite] [Details] Citations: Scopus - 4Web of Science - 3 | |
| 2018 | Al sheyab NA, Khader YS, Shah S, Roydhouse J, Gallagher R, 'The effect of a 'class smoke free pledge' on breath carbon monoxide in Arabic male adolescents', Nicotine & Tobacco Research pp. 568-574. ISSN 1469-994X (2018) [Refereed Article] DOI: 10.1093/ntr/ntx050 [eCite] [Details] Citations: Scopus - 3Web of Science - 3 | |
| 2018 | Mercieca-Bebber R, Williams D, Tait M-A, Roydhouse J, Busija L, et al., 'Trials with patient-reported outcomes registered on the Australian New Zealand Clinical Trials Registry (ANZCTR)', Quality of Life Research, 27, (10) pp. 2581-2591. ISSN 0962-9343 (2018) [Refereed Article] DOI: 10.1007/s11136-018-1921-5 [eCite] [Details] Citations: Scopus - 7Web of Science - 8 | |
| 2018 | Roydhouse J, Gutman R, Keating NL, Mor V, Wilson IB, 'The association of proxy care engagement with proxy reports of patient experience and quality of life', Health Services Research, 53, (5) pp. 3809-3824. ISSN 1475-6773 (2018) [Refereed Article] DOI: 10.1111/1475-6773.12980 [eCite] [Details] Citations: Scopus - 4Web of Science - 4 | |
| 2018 | Roydhouse J, Gutman R, Keating NL, Mor V, Wilson IB, 'Proxy and patient reports of health-related quality of life in a national cancer survey', Health and Quality of Life Outcomes, 16, (6) pp. 1-11. ISSN 1477-7525 (2018) [Refereed Article] DOI: 10.1186/s12955-017-0823-5 [eCite] [Details] Citations: Scopus - 12Web of Science - 14 | |
| 2018 | Roydhouse J, Gutman R, Keating NL, Mor V, Wilson IB, 'Differences between proxy and patient assessments of cancer care experiences and quality ratings', Health Services Research, 53, (2) pp. 919-943. ISSN 1475-6773 (2018) [Refereed Article] DOI: 10.1111/1475-6773.12672 [eCite] [Details] Citations: Scopus - 5Web of Science - 5 | |
| 2017 | Roydhouse J, Wilson IB, 'Systematic review of caregiver responses for patient health-related quality of life in adult cancer care', Quality of Life Research, 26 pp. 1925-1954. ISSN 1573-2649 (2017) [Refereed Article] DOI: 10.1007/s11136-017-1540-6 [eCite] [Details] Citations: Scopus - 15Web of Science - 16 | |
| 2015 | Simpson GK, Dall'Armi L, Roydhouse J, Forstner D, Daher M, et al., 'Does resilience mediate carer distress after head and neck cancer?', Cancer Nursing, 38, (6) pp. E30-E36. ISSN 0162-220X (2015) [Refereed Article] DOI: 10.1097/NCC.0000000000000229 [eCite] [Details] Citations: Scopus - 12Web of Science - 11 | |
| 2014 | Oates J, Davies S, Roydhouse J, Fethney J, White K, 'The effect of cancer stage and treatment modality on quality of life in oropharyngeal cancer', Laryngoscope, 124, (1) pp. 151-158. ISSN 0023-852X (2014) [Refereed Article] DOI: 10.1002/lary.24136 [eCite] [Details] Citations: Scopus - 16Web of Science - 12 | |
| 2014 | Shah S, Roydhouse J, Toelle BG, Mellis CM, Jenkins CR, et al., 'Recruiting and retaining general practitioners to a primary care asthma-intervention study in Australia', Australian Journal of Primary Health, 20, (1) pp. 98-102. ISSN 1448-7527 (2014) [Refereed Article] DOI: 10.1071/PY12093 [eCite] [Details] Citations: Scopus - 4Web of Science - 5 | |
| 2013 | Cox K, Karikios D, Roydhouse J, White K, 'Nurse-led supportive care management: a 6-month review of the role of a nurse practitioner in a chemotherapy unit', Australian Health Review, 37, (5) pp. 632-635. ISSN 0156-5788 (2013) [Contribution to Refereed Journal] DOI: 10.1071/AH13069 [eCite] [Details] Citations: Scopus - 10Web of Science - 10 | |
| 2013 | Dall'Armi L, Simpson GK, Forstner D, Simpson T, Roydhouse J, et al., 'The information needs of patients with head and neck cancer and their caregivers: a short report of instrument development and testing', Applied Nursing Research, 26, (1) pp. 40-44. ISSN 0897-1897 (2013) [Refereed Article] DOI: 10.1016/j.apnr.2012.08.001 [eCite] [Details] Citations: Scopus - 12Web of Science - 13 | |
| 2013 | Scott K, White K, Roydhouse J, 'Advancing the educational and career pathway for clinical trials nurses', Journal of Continuing Education in Nursing, 44, (4) pp. 165-170. ISSN 0022-0124 (2013) [Refereed Article] DOI: 10.3928/00220124-20121217-38 [eCite] [Details] Citations: Scopus - 4Web of Science - 4 | |
| 2012 | Al-Sheyab NA, Gallagher R, Roydhouse J, Crisp J, Shah S, 'Feasibility of a peer-led, school-based asthma education programme for adolescents in Jordan', Eastern Mediterranean Health Journal, 18, (5) pp. 468-473. ISSN 1020-3397 (2012) [Refereed Article] | |
| 2012 | Kassab MI, Roydhouse J, Fowler C, Foureur M, 'The effectiveness of glucose in reducing needle-related procedural pain in infants', Journal of Pediatric Nursing, 27, (1) pp. 3-17. ISSN 0882-5963 (2012) [Refereed Article] DOI: 10.1016/j.pedn.2010.10.008 [eCite] [Details] Citations: Scopus - 19Web of Science - 12 | |
| 2012 | Koo FK, Kwok C, White K, D Abrew N, Roydhouse J, 'Strategies for piloting a breast health promotion program in the Chinese-Australian population', Preventing Chronic Disease, 9 Article 100293. ISSN 1545-1151 (2012) [Refereed Article] DOI: 10.5888/pcd9.100293 [eCite] [Details] Citations: Scopus - 5Web of Science - 14 | |
| 2012 | Roydhouse J, Allman-Farinelli M, McGeechan K, Ferrar K, Olds T, 'An exploratory analysis of active and low energy behaviour in Australian adolescents', Australian Journal of Primary Health, 18, (3) pp. 248-257. ISSN 1448-7527 (2012) [Refereed Article] | |
| 2012 | Ryan M, White K, Roydhouse J, Fethney J, 'A description of the nutritional status and quality of life of Australian gynaecological cancer patients over time', European Journal of Oncology Nursing, 16, (5) pp. 453-459. ISSN 1462-3889 (2012) [Refereed Article] DOI: 10.1016/j.ejon.2011.10.007 [eCite] [Details] Citations: Scopus - 9Web of Science - 8 | |
| 2012 | Scott K, White K, Johnson C, Roydhouse J, 'Knowledge and skills of cancer clinical trials nurses in Australia', Journal of Advanced Nursing, 68, (5) pp. 1111-1121. ISSN 0309-2402 (2012) [Refereed Article] DOI: 10.1111/j.1365-2648.2011.05816.x [eCite] [Details] Citations: Scopus - 4Web of Science - 3 | |
| 2011 | Chiarella M, Roydhouse J, 'Hospital churn and casemix instability: implications for planning and educating the nursing workforce', Australian Health Review, 35, (1) pp. 95-98. ISSN 0156-5788 (2011) [Refereed Article] DOI: 10.1071/AH09862 [eCite] [Details] Citations: Scopus - 1Web of Science - 1 | |
| 2011 | Kwok C, Koo FK, D Abrew N, White K, Roydhouse J, 'East meets West: a brief report of a culturally sensitive breast health education program for Chinese-Australian women', Journal of Cancer Education, 26, (3) pp. 540-546. ISSN 0885-8195 (2011) [Refereed Article] DOI: 10.1007/s13187-011-0212-4 [eCite] [Details] Citations: Scopus - 5Web of Science - 4 | |
| 2011 | Kwok C, White K, Roydhouse J, 'Chinese-Australian women's knowledge, facilitators and barriers related to cervical cancer screening: a qualitative study', Journal of Immigrant and Minority Health, 13, (6) pp. 1076-1083. ISSN 1557-1912 (2011) [Refereed Article] DOI: 10.1007/s10903-011-9491-4 [eCite] [Details] Citations: Scopus - 32Web of Science - 32 | |
| 2011 | Roydhouse J, Shah S, Toelle BG, Sawyer SM, Mellis CM, et al., 'A snapshot of general practitioner attitudes, levels of confidence and self-reported paediatric asthma management practice', Australian Journal of Primary Health, 17, (3) pp. 288-293. ISSN 1448-7527 (2011) [Refereed Article] DOI: 10.1071/PY11009 [eCite] [Details] Citations: Scopus - 6Web of Science - 6 | |
| 2011 | White KJ, Roydhouse J, D Abrew NK, Katris P, O Connor M, et al., 'Unmet psychological and practical needs of patients with cancer in rural and remote areas of Western Australia', Rural and Remote Health, 11, (3) Article 1784. ISSN 1445-6354 (2011) [Refereed Article] | |
| 2011 | White KJ, Roydhouse J, Scott K, 'Psychosocial impact of cutaneous toxicities associated with epidermal growth factor receptor-inhibitor treatment', Clinical Journal of Oncology Nursing, 15, (1) pp. 88-96. ISSN 1092-1095 (2011) [Refereed Article] DOI: 10.1188/11.CJON.88-96 [eCite] [Details] Citations: Scopus - 8Web of Science - 5 | |
| 2010 | Shah S, Toelle BG, Sawyer SM, Roydhouse J, Edwards P, et al., 'Feasibility study of a communication and education asthma intervention for general practitioners in Australia', Australian Journal of Primary Health, 16, (1) pp. 75-80. ISSN 1836-7399 (2010) [Refereed Article] DOI: 10.1071/py09056 [eCite] [Details] Citations: Web of Science - 11 | |
| 2009 | Roydhouse J, 'Becoming Australian? Two different approaches to health care reform in the United States', Australian Health Review, 33, (2) pp. 303-310. ISSN 0156-5788 (2009) [Refereed Article] | |
| 2008 | Shah S, Roydhouse J, Sawyer SM, 'Asthma education in primary healthcare settings', Current Opinion in Pediatrics, 20, (6) pp. 705-710. ISSN 1040-8703 (2008) [Refereed Article] DOI: 10.1097/MOP.0b013e32831551fa [eCite] [Details] Citations: Scopus - 15Web of Science - 10 | |
| 2008 | Shah S, Sawyer SM, Roydhouse J, 'Medical students go back to school: the Triple A journey', Australian Family Physician, 37, (11) pp. 952-954. ISSN 0300-8495 (2008) [Refereed Article] Citations: Web of Science - 8 |
Conference Publication
(1 outputs)| Year | Citation | Altmetrics |
|---|---|---|
| 2020 | Roydhouse J, Cappelleri JC, Colantuoni E, Alemayehu D, 'Methods to Evaluate and Correct for Bias in Patient-Reported Outcomes in Clinical Trials: A Discussion', JSM 2020 Proceedings, 2-6 August, online (2020) [Non Refereed Conference Paper] |
Other Public Output
(2 outputs)| Year | Citation | Altmetrics |
|---|---|---|
| 2020 | Gogarty B, Clark M, Roydhouse J, Csabs C, Savage J, et al., 'Sexual Orientation and Gender Identity Conversion Practices', Tasmanian Law Reform Institute, Hobart, Tasmania, Issues Paper 31, November (2020) [Report Other] Co-authors: Gogarty B; Clark M; Neil A; Otlowski M; Hilkemeijer A | |
| 2020 | Manson S, Roydhouse J, Mishra-Kalyani P, Stull D, 'PROactive Linking design, analysis, and interpretation of patient-reported outcomes in clinical trials', Value & Outcomes Spotlight, ISPOR: A Magazine for the Global HEOR community, 6, 4 (2020) [Magazine Article] |
Grants & Funding
Funding Summary
Number of grants
5
Total funding
Projects
- Description
- The goal of this project is to develop user friendly resources and training with regard to the use and reporting of PRO data in trials
- Funding
- University of Birmingham Enterprise ($3,787)
- Scheme
- Consultancy
- Administered By
- University of Tasmania
- Research Team
- Roydhouse J
- Year
- 2021
- Description
- The project aims to assess the experience of patients with chronic haematologic malignancies, specifically relapsed/refractory multiple myeloma (RRMM) and myelodysplastic syndrome (MDS) and their carers. Although these conditions are treatable, they are not curable and the treatments can impose significant side effects. As they are incurable, patient quality of life and symptom burden and management are important concerns. This study will help us understand the patient experience in these areas, thereby leading to appropriate interventions and potentially better care.
- Funding
- Royal Hobart Hospital Research Foundation ($18,017)
- Scheme
- Grant-Project
- Administered By
- University of Tasmania
- Research Team
- Roydhouse J; Harrup R; Nicholson L; Thompson D; Campbell JA; Jose KA; Raj S
- Year
- 2021
- Description
- The project seeks to develop a database of adverse events and outcomes for patients with non-small cell lung cancer who received PD-1/PD-L1 immunotherapy drugs in Southern Tasmania. As these drugs are increasingly in use, understanding their real-world impact, particularly for patients who would otherwise be trial-ineligible, is important. The goal of this project is to evaluate the incidence and severity of adverse events and important outcomes (survival, disease progression), and compare this based on key patient characteristics that affect trial eligibility (e.g. brain metastases, performance status). This will provide clinically relevant information about the patient experience on these therapies.
- Funding
- Royal Hobart Hospital Research Foundation ($4,375)
- Scheme
- Grant-Incubator
- Administered By
- University of Tasmania
- Research Team
- Roydhouse J; Tay R; Nott L; Black Allison; Grundy R; Dixon-Douglas JR; Fitzgerald LM
- Year
- 2021
- Description
- The project seeks to review the evidence relating to screening for liver cancer in primary care. In particular, we will seek to identify barriers and facilitators to screening for both patients and providers. The goal of this project is to summarise the evidence in the field, which can provide a basis for customised interventions to improve screening uptake.
- Funding
- Primary Care Collaborative Cancer Clinical Trials Group ($0)
- Scheme
- Award - Training Award
- Administered By
- University of Tasmania
- Research Team
- de Graaff B; Roydhouse J
- Period
- 2020 - 2021
- Description
- A five year fellowship provided from philanthropy from the Select Foundation
- Funding
- The Select Foundation ($500,000)
- Scheme
- Fellowship-Senior Research
- Administered By
- University of Tasmania
- Research Team
- Roydhouse J
- Period
- 2020 - 2023